Rare Disease Day was established in 2008 to raise awareness about rare diseases, which together impact millions of people worldwide. While the Raynaud’s population is too large to be considered in this category, many among us with secondary Raynaud’s suffer from these rare medical conditions. [Read more...]
Read the Stats – You’re Not Alone!
February 20, 2011 By 1 Comment
Raynaud’s Phenomenon: More Common Than You Think
By Laurie Saloman
Quality Health
“…understand that Raynaud’s disease is far from rare. Estimates are that anywhere from five to 10 percent of people have it, with women nine times more likely to be affected than men. The peak age for diagnosis is between 15 and 30 years old. In fact, some experts estimate that up to one-fifth of all women of childbearing age have Raynaud’s…”
Read the full article: http://is.gd/XJRezP
Acute Ischemia in Raynaud’s Needs Urgent Care
February 20, 2011 By 8 Comments
By: BRUCE JANCIN
Internal Medicine News Digital Network
Persistent pain and nonreversible digital discoloration in a patient with Raynaud’s phenomenon are indicators of critical ischemia constituting a medical emergency.
“Raynaud’s patients will often say, ‘My fingers are uncomfortable. I feel pins and needles.’ But when they say it actually hurts, you’re in trouble. Particularly if they say, ‘It hurts beyond my finger, it hurts in the palm of my hand and radiates up in my arm, I have to hang my hand off the edge of the bed to get relief, it’s worse at nighttime,’ then you’ve reached the point of critical ischemia and if you don’t react you’re going to have big trouble,” Dr. Fredrick M. Wigley said at a symposium sponsored by the American College of Rheumatology. [Read more...]
Help for Pregnant & Breastfeeding Moms
February 8, 2011 By 8 Comments
Raynaud’s of the nipple most commonly occurs in pregnant or breastfeeding mothers, but can also occur in women who have never been pregnant. Like Raynaud’s in other parts of the body, it is a condition that can usually be managed and, when triggers can be avoided, the vasospasm events will reduce or stop.
Women who have Raynaud’s of the fingers and toes may develop Raynaud’s of the nipple when they become pregnant or start to breastfeed. This does not happen to all women with Raynaud’s in other body parts, but these women should be aware of this condition, and should take precautionary measures where possible. [Read more...]
No One Seems to Get It
February 8, 2011 By Leave a Comment
When I was a teenager my parents and I noticed how sensitive my fingers were to the cold. One day my mother got nervous I was going to lose my fingers because they all turned white and I told her they went numb on me.
She had me go to the doctor who did some tests. I remember he had me put my hands in ice water for about 5 minutes and then he examined them. That was not fun. 
He determined I had Raynaud’s. [Read more...]
Cold Weather Skin Conditions: Frostbite, Raynaud’s Phenomenon, and Pernio (Chilblains)
February 5, 2011 By Leave a Comment
This article does a good job of differentiating between a number of cold weather symptoms and their related medical implications:
Your Feedback Could be Worth $5,000!
February 3, 2011 By 3 Comments
The Raynaud’s Association needs your help! We have an opportunity to win the $5,000 prize that GuideStar USA, Inc., the leading source of nonprofit information, and KIMBIA, a group that empowers nonprofits and other organizations to increase giving, are making available through their Winter 2011 GuideStar-KIMBIA Nonprofit Giveaway. Anyone with firsthand knowledge about us who is not a paid employee of the Raynaud’s Association—donors, volunteers, board members, Forum members, any recipients of our services—can write a review about us on GuideStar at http://is.gd/0UW1NT.
The funds will go a long way in helping us spread the word about Raynaud’s and in providing assistance to the Raynaud’s community. We’ll really appreciate your support. If we win the $5,000, we all win!
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