New FDA Bill Passes Senate in Support of Rare Diseases

*** ADVOCACY ALERT ***

NORD Calls Bill Passed By Senate Today Most Important Since Orphan Drug Act

Praises Senate for Addressing Needs of Rare Disease Patients

May 22, 2012, WASHINGTON, DC— The National Organization for Rare Disorders (NORD) applauds legislation passed today by the U.S. Senate — S 3187, the Food and Drug Administration Safety & Innovation Act of 2012 (FDASIA) — and says it contains the most comprehensive improvements to public policy for rare disease therapies since the landmark Orphan Drug Act of 1983. [Read more...]

Linking Together for a Cure – AARDA Fundraising Walk

American Autoimmune Related Diseases Association (AARDA) is dedicated to curing autoimmune diseases and alleviating the devastating impact of autoimmune diseases through funding research and awareness.  The AARDA is having its first ever Autoimmune Walk to raise funds and awareness for all autoimmune diseases. There are upcoming walks in Evanston, IL, Manhattan, NY, and even a virtual walk. [Read more...]