- A short educational introduction on Raynaud’s
- Her personal story and how her Raynaud’s evolved over the years since her teens
- Polls throughout the post with real time results
- 33 Tips and Tricks for staying warm
One note regarding the educational introduction: The author references primary Raynaud’s (no underlying more serious autoimmune disorder involved, as is the case for the majority of Raynaud’s patients). The post then talks about how severe cases can result in skin ulcers and gangrene. These serious medical issues are more closely associated with sufferers who have the secondary form of Raynaud’s which is not referenced until the next paragraph. Don’t want to alarm the majority of sufferers who have the primary form.
Two sections stood out for me. First, many of us can identify with the section on “The Touch of Death.” Here’s what manicnymph reports:
“My husband affectionately refers to me as ‘the touch of death’. Even without having an episode, my fingers are almost always cold. If I hold his hand, or touch his skin, he says that he can still feel my icy touch for several minutes after I let go. He jokes that the only reason there’s a pulse in my wrist is because it’s an echo from somewhere near my heart that actually has blood flow. My husband is naturally a very warm person, and can dress in a simple rain jacket in five degree weather. I’m thankful for this because it means I always have a reliable heat source. ; )”
The second is her section on “Curse of the Ballet Slippers.” I’m a former dancer, and studied and danced professionally from age 6 until a serious foot injury at 17. While not formally diagnosed with Raynaud’s until my mid-thirties, I’ve was always cold throughout childhood and lived with the concept of having poor circulation for years. It never occurred to me that I was at a disadvantage breaking in ballet slippers or toe shoes, nor that the shoes themselves may have triggered issues by restricting blood flow until reading about the author’s experience. Years after my foot injury I developed a hypothesis that wearing ballet shoes that were too small for my feet may have contributed to the career-breaking joint issue on the ball of my foot. But I hadn’t connected any of this to the Raynaud’s symptoms in my feet until now. So this information was personally eye-opening!
Would love to hear from fellow Frosties who also experienced similar issues years back that may be related in some way to current Raynaud’s symptoms. In the meantime, we hope you’ll find some useful information and warming strategies in this article.