I was diagnosed with primary raynauds about 5 years ago but i’ve had it since i was about 13/14 (i’m 32 now). I’ve noticed over the past few months that after an attack my fingers hurt for ages even after the circulation has returned to normal. The past week or so i’ve noticed that touching anything causes pain in my fingertips, they’re just really sensitive to everything right now.
So does anyone know if raynauds can cause nerve damage over a long period of time?
I’ve searched around online for an answer but most people treat primary as if it’s just a nuisance that can be lived with, ‘modify your lifestyle or take medications’ sort of thing. Mine affects everything i do, my life revolves around my attacks and the pain. I have very severe attacks that affect all of my fingers, toes and both my thumbs.
Raynaud’s symptoms that worsen should be brought to the attention of a doctor preferably a rheumatologist. Complications such as nerve pain and ulcers can develop in some cases. There are medications that can help relieve attacks and prevent complications.
The important thing is to be evaluated by a doctor to rule out lupus, scleroderma and RA. Since you are having severe attacks and pain that affect “all of my fingers and toes and both my thumbs” I would advise seeing a rheumatologist.
Hi Sarah, Thanks for the reply.
I’ve had everything ruled out by the rheumatologist, i went about 2 years ago and he all but booted me out of his office once he diagnosed primary raynauds. He said there was nothing he could do and i should keep an eye on it.
I can’t take ca blockers a they make me pass out due to my low blood pressure.
My attacks were very severe then, i showed him a photo of an attack he said should be in a medical text book. My regular doctor also said mine was in the top ten worst she’d ever seen. It’s been this severe for years but the nerve issues are new.
I’ll maybe try a different rheumatologist and see if i can find a more sensitive one.
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