Forum Replies Created
March 15, 2013 at 7:16 am in reply to: Texture sensitivity on fingertips and tips of toes? #3799
I have to be very careful and keep my fingers and toes moisturized or the skin cracks and hurts. I have lupus and limited scleroderma. The overproduction of collagen makes the skin rough and it dries out easily.
Hello Caroline and welcome to the forum. Thanks for your introduction. I hope you find lots of information to help you deal with Raynaud’s and will share what has worked for you.
Hello Shonda and welcome to the forum. My advice is to schedule an appointment with a rheumatologist who is the specialist for Raynaud’s. I would only be speculating about what is going on and I don’t want to do that.
I hope you are able to see a rhematologist soon and will post again.
Hi Mar and thanks for joining the Raynaud’s forum.
I encourage everyone reading this post to register and post in the new updated forum. Thanks for your support.
Hi mzmarygolds and welcome to the forum. Thanks for your post.
Should I be going to a ra specialist? Rheumatologists see the most people with Raynaud’s and therefore have a better understanding of the problems patients face and how best to treat them. If you are not satisfied with your present treatment, I would suggest seeing a rheumatologist.
Many people with primary Raynaud’s are monitored periodically by a rheumatologist since it can take many years for blood tests to become positive.
Hello, have you been seen by a rheumatologist, the specialist for Raynaud’s? What you are experiencing needs to be looked at by a doctor to receive a dignosis and treatment.
Please keep us updated.
Procardia is the brand name of the generic calcium channel blocker, CCB, nifedipine. CCB’s are usually the first drug tried for Raynaud’s. Procardia relaxes the peripheral arteries in the hands and feet, causing them to widen and improves blood circulation to the fingers and toes.
Common side effects are headache, flushing, swollen ankles and tiredness. These usually go away or get better after a few days of treatment.
Please let us know how you do on the Procardia.
What symptoms are you having? There are autoimmune diseases that can affect the eyes causing dryness.February 8, 2013 at 5:18 am in reply to: At what age did you develop Raynaud's? Is it Primary or Secondary? #3580
I was 28 when I first developed Raynaud’s. I was pregnant with my first child. Systemic lupus was diagnosed several months after the delivery. Twenty years later I was also diagnosed with limited scleroderma.
Karen, those sound very painful. I hope the doctor can prescribe something to make them heal.
Fractures and broken bones are not connected to Raynaud’s. If you are experiencing pain or swelling that does not go away after a reasonable amount of time, your doctor should be consulted. The rheumatologist is the best type of doctor to see when Raynaud’s is present.
We are often asked this question, Do I have Raynaud’s? None of us are medical professionals on this forum. If you have not seen a doctor about these symptoms I encourage you to do so. The doctor is the best person to decide whether what you are experiencing is Raynaud’s and determine whether it is primary or secondary.
The Frequently Asked Questions found at the top of this page may help you decide if what you are experiencing is Raynaud’s.
I had to do a Wikipedia search to familiarize myself with HLA-B27. HLA-B27 is strongly associated with ankylosing spondylitis (AS), and other associated inflammatory diseases. To be honest I am not familiar with AS and do not know if there is a connection. Your doctor would be the best person to answer this question. I am sorry I can’t help you but hope you will continue to post on the forum.
Hello planb and thanks for posting.
It is important to keep the core body warm. Dress in layers. Mittens are much better for fingers than gloves. Have you looked through our forum archives under Hot Products? The archives can be found by placing your cursor over discuss at the top, right hand side of this page.
When warming techniques don’t work it may be time to talk to your doctor about medication. I hope you will continue to post about your experience with Raynaud’s.