July 31st is Raynaud’s Day – Save the Date!

We’re working with the Scleroderma Foundation to add a separate RAYNAUD’S DAY to their National Patient Education Conference this year.

The date is:
Saturday
July 31, 2010
Sheraton Boston Hotel
Boston, Massachusetts

 

Watch our web site and your mailbox for more information.

This entry was posted on Friday, March 19th, 2010 at 9:53 pm and is filed under In The News. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.

6 Responses to “July 31st is Raynaud’s Day – Save the Date!”

  1. Alecia Says:
    April 5th, 2010 at 12:55 pm

    This is great news! I look forward to learning more.

  2. Leeane Keating Says:
    April 15th, 2010 at 6:37 pm

    Looking for support group in Columbia Mo for my daughter who has severe Raynaud’s. Is there a Raynaud’s Foundation?

  3. Leeane Keating Says:
    April 15th, 2010 at 6:38 pm

    I need information on support group in Columbia, Mo

  4. Frostie Says:
    April 19th, 2010 at 9:52 pm

    We’ve tried on many occasions to start satellite groups around the country, and so far we have not been very successful in expanding to local chapters. So our key focus now is on the web site – particularly our Discussion Forum: http://www.raynauds.org/support/forums/forum/index.cfm.
    Here you can speak with and share experiences with Raynaud’s sufferers from all over the world. We’ve had young people participate along with their parents. The traffic has grown quickly and appears to be serving a great need for members.

    If there’s a specific question we can address for you, please let us know.

  5. Mildred Goss Says:
    July 26th, 2010 at 2:02 pm

    My bosses at work and co-workers do not understand, do not care and do not want to know about Raynaud’s or what I am going through. They will literally turn the thermostats down to their lowest possable settings (50 degrees on one and 65 degrees on the other). Is there anything I can do? Is this a ADA (American DIsability Act) concern?

  6. Frostie Says:
    July 26th, 2010 at 8:36 pm

    My personal office solution is duct tape over the vents…I know how frustrating and painful the situation can be!

    But while primary Raynaud’s is considered uncomfortable and inconvenient, it is not a fatal disease. So as difficult as your work situation may be, unless there is a causal relationship to the condition in your profession (e.g., working with vibrating tools), or exposure to cold in your job (e.g., a postal worker), it may be difficult to support a claim.

    The Raynaud’s Association was recently contacted by a law firm experienced in disability claims for Raynaud’s patients. We’ll be happy to provide their contact information if you phone or email us: http://www.raynauds.org/index.php/contact-us/

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