Member Story: A Place to Call My Own!
I was diagnosed about 4 years ago with Raynaud’s Disease. I had gone through many many tests to make sure I didn’t have Lupus like my aunt does, or any other autoimmune disease. I do live in a cold climate, and although it’s not too cold for most, I think I am in the deep freeze 365 days a year!
Even in the summer when it’s 70 to 80 degrees, I am wearing jeans, a t-shirt, socks and shoes and even my hoodie. I cannot even carry a gallon of milk to the checkstand without my fingers turning white. I stumbled across this website because I have a research paper I am doing on Raynaud’s for my anatomy class. I am looking into new cures or treatments for Raynaud’s and seemed to of found a place to call my own!
Sincerely,
E. P.
Washington
March 9th, 2010 at 6:27 am
E.P.
I was diagnosed 3 years ago. To touch anything cold just sets my hands into a Raynauds attack. I too am so terribly cold all the time. I sleep at night with 4 blankets and a heated mattress pad. In the summertime, I will drive around with the ac off and the windows up because I am so cold. I hope someday there is a cure or treatment for this so that people like us can step out into the world without or blankets and extra clothing. Good Luck!!
April 21st, 2010 at 8:50 pm
E.P,
I was diagnosed within the last year and a half with Raynaud’s Phenomenon. I have suffered with frozen hands and feet almost all of my life but only recently can put a name to it. I have gone through many tests to make sure I don’t have Lupus, Rheumatoid Arthritis or any other autoimmune disease as well. I constantly wear gloves or mittens and at home I stay cuddled under a heating blanket with my dog to keep warm.
I also live in Washington and understand being cold all of the time. I am sure the dampness of the air makes things worse, but I love the mountains here. Someday I hope to be able to go outside in the summer without long pants and a sweatshirt. My friends call me “cold-blooded” because in the summer I am often seen sunning myself outside to try and keep warm. Keep on smiling, there is hope!
May 24th, 2010 at 8:05 am
I was told I have Raynaud’s, but my symptoms do not match the ones spoken above. I have lots of trouble in the winter with my body being so extremely COLD. In the summer I am so overly hot that I get sick, so there is no happy medium for me. I have found that when I am under alot of stress, my body goes into freeze mode and it is so PAINFUL! Is this really Raynaud’s or something else? Also, my feet and hands turn colors when I am really cold or upset….
May 28th, 2010 at 9:33 pm
Hi CD,
You don’t state how or by whom you were told Raynaud’s is the explanation for your discomfort. While some of your symptoms appear consistent with Raynaud’s, it is really difficult to make a judgment – best to see a medical professional.
Rheumatologists are the specialists most knowledgeable about Raynaud’s as they treat the more serious autoimmune conditions most closely associated with the disorder. We’d recommend seeing a rheumatologist as the next step.
You might also want to read through the list of Frequently Asked Questions on this web site at:
http://www.raynauds.org/index.php/raynauds/frequently-asked-questions/
October 26th, 2010 at 6:06 pm
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January 31st, 2011 at 10:10 pm
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February 12th, 2011 at 8:29 pm
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February 12th, 2011 at 8:33 pm
Glad you’re enjoying our site. This is a custom design within WordPress.
February 23rd, 2011 at 10:51 am
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February 23rd, 2011 at 6:01 pm
Thanks for the positive feedback. I tried sending you an email, but unfortunately it bounced.
To your question, we had a firm set up our template working off the colors and feel of our logo – which was created by a separate graphic designer.
The guy who did this specific design is no longer with the firm, but I’ve since done other projects with this company and really like working with them. They are very reasonably priced (especially for us non-profits), and really know their stuff. They also pretty much trained me in WordPress. The firm is Sirius Innovations: http://www.siriusinnovations.com/
There’s a contact page on their site. I hope they can help you with your blog – good luck with it!
December 5th, 2011 at 10:12 am
I was diagnosed with Raynaud’s about a year ago. I did not have any of the symptoms that people say they had. My hands were blue for two weeks and would swell and would tingle for long periods of times. I went to the doctors and they told me what I had after so many blood tests. I still do not know what Raynaud’s decease is. All I know is that I am not supposed to let my hands get cold, I can not go from hot to cold or cold to hot, and the doctors also said that it is most important that I do not smoke because it will make it worse. That is pretty much what I know. My doctor did not give me anything else on this. I am going to be writing a paper for my Emergency Medical Class and I chose this as a topic so that I could learn more about what I a going to deal with growing up.