Rare Disease Day was established in 2008 to raise awareness about rare diseases, which together impact millions of people worldwide.  While the Raynaud’s population is too large to be considered in this category, many among us with secondary Raynaud’s suffer from these rare medical conditions.  

Raynaud’s Phenomenon: More Common Than You Think By Laurie Saloman Quality Health “…understand that Raynaud’s disease is far from rare. Estimates are that anywhere from five to 10 percent of people have it, with women nine times more likely to be affected than men. The peak age for diagnosis is between 15 and 30 years [...]

By:  BRUCE JANCIN Internal Medicine News Digital Network   Persistent pain and nonreversible digital discoloration in a patient with Raynaud’s phenomenon are indicators of critical ischemia constituting a medical emergency. “Raynaud’s patients will often say, ‘My fingers are uncomfortable. I feel pins and needles.’ But when they say it actually hurts, you’re in trouble. Particularly [...]

I have had Raynaud’s for as long as I can remember. As a child, when my friends and I would go out sledding, I would always be the first one to get cold and want to go home. No matter what kind or how many gloves, socks and boots I wore, my fingers and toes [...]

One of our Fans on Facebook shared with us the story of Alison Levine, diagnosed with Wolff-Parkinson-White Syndrome at age 17 and Raynaud’s in her early 20′s.  Despite these disorders, she become team captain of the first American Women’s Everest Expedition. She has ascended the highest peaks on every continent and also skied to both the [...]

Raynaud’s of the nipple most commonly occurs in pregnant or breastfeeding mothers, but can also occur in women who have never been pregnant. Like Raynaud’s in other parts of the body, it is a condition that can usually be managed and, when triggers can be avoided, the vasospasm events will reduce or stop. Women who [...]

I have not had a single attack since I started on time release nitroglycerin tablets.  Before that? The queen of the rainbow.  My first noticeable issue with Raynaud’s was in the early 80’s and my doctors kept telling me I must have frozen my feet and fingers. I’ve lived on niacin for years being the [...]

When I was a teenager my parents and I noticed how sensitive my fingers were to the cold. One day my mother got nervous I was going to lose my fingers because they all turned white and I told her they went numb on me. She had me go to the doctor who did some [...]

This article does a good job of differentiating between a number of cold weather symptoms and their related medical implications:  http://is.gd/Qmeaxv

The Raynaud’s Association needs your help!  We have an opportunity to win the $5,000 prize that GuideStar USA, Inc., the leading source of nonprofit information, and KIMBIA, a group that empowers nonprofits and other organizations to increase giving, are making available through their Winter 2011 GuideStar-KIMBIA Nonprofit Giveaway.  Anyone with firsthand knowledge about us who is [...]