Sixth grader Mackenzie Conkling didn’t need to look too far to find inspiration for her winning entry in the 2011 Bubble Wrap® Competition for Young Inventors.  The solution was right at hand. At her mother’s hands, to be precise.  The 13-year old honor student from Massapequa, Long Island, created the “Uber Bubble Glove” – a glove to warm [...]

Survey is now closed.  We had an awesome response – thanks for your support! Orion Pharma, a pharmaceutical company based in Finland, would like to gather information about Raynaud’s from people suffering from this condition.  The data gathered in the research will be used by Orion to help develop a new class of medication for Raynaud’s patients. [...]

After knowing for years that something was wrong but not having enough to go on to prove it, my pediatrician suspected that my then 5 year old had Juvenile Arthritis.   It took a long time to diagnose her- almost a year! Eventually she was also diagnosed with scleroderma and mixed connective tissue disease.  Her new [...]

The Scleroderma Foundation/Tri-State Chapter is holding an upcoming fundraising event in New York City:  Stepping Out to Cure Scleroderma Manhattan Walk Location:  Battery Park Date:  Sunday, June 12th Registration:  9:00AM          Walk: 10:15AM For further walk or volunteer information call the Scleroderma Foundation/Tri-State, Inc. Chapter office at 800-867-0885 or email sdtristate@scleroderma.org.

After my friend with Raynaud’s told me she had some success with acupuncture, I decided to give it a try.  Before sharing with you my experience to date, first a few caveats: There is to date no accepted clinical evidence for the effectiveness of acupuncture as a treatment for alleviating Raynaud’s symptoms. I’ve found articles [...]