Member Testimonials

Below is just a short list of what our members are saying!

I am interested in learning more about the association…It is so frustrating as I am so active in the outdoors. It limits most outdoor activities that are below 65 degrees…Thanks for your website!!!!!!!!!!!!!!!
by S.H. (WI)
Thanks for providing this wonderful website so we can learn more!
by J.Z. (OH)
I want to learn everything I can about this disease and to deal with it…Thank you for this website.
by M.R-B. (VA)
I am thrilled to find this organization. I have suffered with Raynauds for probably 20 years and just dealt with it. Thank you for existing.
by S.W. (CA)
The Forum has been so helpful…Thank you for all who are involved. I am grateful.
by D.C. (CA)
Thank you for the info! First time I have been here, and it’s nice to have the ‘connection’ with others in the world!
by J.F. (NY)
I have enjoyed belonging to the group (the Forum) and participating in it. Thanks for a wonderful site.
by L.D. (GA)
My 17 year old daughter has recently been diagnosed with Raynauds…I love this website and find it very helpful. Thank you.
by L.B. (IL)
I found the information very informative and would like to receive the newsletter. Thank you!
by L.S. (NM)
Thanks so much for the web site and the information that you have made available to all those that have Raynaud’s and for those who love someone with Raynaud’s. I was feeling quite alone but your web site made me feel much better about what I can do to control my symptoms.
by A.A. (Ontario)
I just wanted to thank you for this newsletter. It helps me to know I am not the only one suffering with this bizarre illness. Keep up the great job.
by D.Y. (NJ)
I’m pleased to find this website. I’m learning more than I ever knew about my condition. Thank you.
by R.Z. (PA)
I am so glad I found this website.  Please keep me on your mailing and email list.  THANK YOU So much!
by C.W. (KS)
Thanks for your website, my first visit has really helped!!
by R.L. (OH)
Hi, I did not know what I had until I found this site. I have both rosasea and Raynauds and it is affecting my life…Thank you so much.
by K.R. (Ontario)
Thank you! This newsletter is SO comforting and helpful.
by A.C. (NE)
Thank you for maintaining this organization and for the newsletters.
by M.L. (KS)
I’m thrilled I found your website – glad to know there are others just like me out there dealing with ‘cold’ fingers. Can’t wait to be included on your mailing list and newsletter. Thanks!
by S.S. (PA)
This site has helped me a lot and I wanted to know if I could put a link to it on my web site…I think it is important to spread the good news about your site.
by T.B. (NY)
I would like to send a BIG thank you to all those involved with getting this information out to those of us who are living with Raynaud’s…Once again, thank you for the informative site. It is so nice to have someplace to turn to with those who understand a connection with others experiencing the same problems!
by M.M. (AR)
I was diagnosed with Raynaud’s at age 16, I am now 41. Every day is a new adventure in keeping and staying warm, summer or winter. Thank you for this website.
by E.G. (NY)
Great website. Thanks for the helpful information and products!
by C.S. (PA)

I haven’t spent much time on this forum but I have to say I have learned so much about my own condition…Today I used a tip that I read on this site. I could not get my fingers to warm up this morning. I have the heating pad on high and my hands were plenty warm but my fingers were still cold. I ran hot water over my hands for a few minutes and they were pink and warm. I don’t remember who mentioned it but I am happy to say that it works!

     by P.M. (Raynaud’s Forum Member) 

(Your moderator) was very kind, helpful and patient with me!…I’m elated to return to this wonderful forum.  Thank you. 

     by A.K. (WI) 

The site is great!

     by B.F. (IA) 

Great website!  Nice to read about people just like me!  No one in my family understands how debilitating this can be-especially with winters in Iowa.

     by L.H. (IA)

Hi, I am so happy to have found your organization.  It was so nice to talk to Lynn Wunderman last week.  Enclosed is a donation…Please add me to your membership list.  I have had extreme cold fingers for years and years.

     by M. J. L. (OH) 

I went to your website today for the first time and was very impressed.  I joined the Raynaud’s Association by completing and submitting the membership information form.  A check…for my membership dues is enclosed.  I have had Raynaud’s disease for many years and sadly it is getting worse all the time.  I’m anxious to learn how to control the symptoms and am anxious to receive your newsletter.

     by B.C. (NJ) 

Kudos.  Great web site.  Keep up the good work.

     by E. C. N.  (NY)

I really appreciate your web-site and information you give to us.   I’ve learned more about the disease from you than from my doctors.   Thanks and God bless.

     by M-J F (IL) 

Pulling up this website and reading what is here has saved me. I have felt miserable and depressed and have found something that helps here on this site. It was so comforting to know that I am not crazy, that others suffer as I do, and that I don’t have to convice you (as I had to convince my LAST doctor) that this is not a normal condition. It is indeed a refuge and I want to say thank you to all that take the time to post suggestions, ways of staying warm, and your thoughts. It has helped me more than my LAST doctor and I can’t say thanks enough to all of you for saving my sanity. You actually ‘get me’.

     by Raynaud’s Forum Member 

Your site has been very helpful. Continue to do your good work.

      by T. B. (CT)

Thanks for always being there for me!

     by J.K. (PA) 

Thank you so much for such an informative site.  I really feel you have helped me not only understand the disease, but how to deal with it effectively.  

     by L.W. (MD)

Thank you for the newsletter.  I liked it very much.

     by B.M. (WA)

So glad I found this site…It’s great to know that support is out there – I always thought I would have to do this alone, but now I have hope to find some answers other than put on some weight and it’s not cold, it’s all in you head!!!!

     by Raynaud’s Forum Member

I’m happy to find a group that understands this disorder and is supporting it. Thanks! 

     by  L.K. (KY)

I’m so thankful for this forum.  It’s great to have the support when needed.

     by Raynaud’s Forum Member

I am glad I have found this website. I have been searching the internet forever for solid information. Thank you for creating it.

     by C.B. (TN)

I stumbled across this website because I have a research paper I am doing on Raynaud’s…and seemed to have found a place to call my own!  

      by E.P. (UK)