Nearly a year ago, we shared the inspirational story of Alison Levine, diagnosed with Wolff-Parkinson-White Syndrome at age 17 and Raynaud’s in her early 20′s. Despite these disorders, she become team captain of the first American Women’s Everest Expedition and one of only 30 people in the world to have successfully climbed the highest peaks [...]

We just read where a high school in Wichita Falls scheduled their three-hour PSAT’s in the town’s local colisium hockey arena.  All that stood between the shivering students and the ice was a thin flooring made of lightweight plastic.  The cold was bad enough, but it was further complicated by the wet condensation covering the [...]

Janet in NY is having success keeping her fingers warm while typing with a special tape developed to help heal muscle and joint injuries for athletes.  Here’s her story:

So happy to find you… A few days ago, I had a daydream that there was a support group for people like me (which I just discovered has an actual name). I was feeling so alone, so sad and so frustrated with the pain I feel from temperatures I experience as cold – but no [...]

Just found this quote in a legal newsbrief about dress codes in the workplace as they relate to Raynaud’s.  We had a member a couple of years ago who was let go from a theatre as a volunteer for this very reason – wearing a sweater!

After knowing for years that something was wrong but not having enough to go on to prove it, my pediatrician suspected that my then 5 year old had Juvenile Arthritis.   It took a long time to diagnose her- almost a year! Eventually she was also diagnosed with scleroderma and mixed connective tissue disease.  Her new [...]

After my friend with Raynaud’s told me she had some success with acupuncture, I decided to give it a try.  Before sharing with you my experience to date, first a few caveats: There is to date no accepted clinical evidence for the effectiveness of acupuncture as a treatment for alleviating Raynaud’s symptoms. I’ve found articles [...]

How did you celebrate???

  Sound Familiar???   http://www.cnn.com/2011/HEALTH/03/02/thermostat.arguments/

I have had Raynaud’s for as long as I can remember. As a child, when my friends and I would go out sledding, I would always be the first one to get cold and want to go home. No matter what kind or how many gloves, socks and boots I wore, my fingers and toes [...]