Archive for the 'Stories' Category

Who controls the thermostat in your home?

Thursday, March 3rd, 2011

  Sound Familiar???   http://www.cnn.com/2011/HEALTH/03/02/thermostat.arguments/

Best Thing About Raynaud’s: It’s Not a Life Threatening Ailment

Saturday, February 12th, 2011

I have had Raynaud’s for as long as I can remember. As a child, when my friends and I would go out sledding, I would always be the first one to get cold and want to go home. No matter what kind or how many gloves, socks and boots I wore, my fingers and toes [...]

Alison Levine – What an Inspiration!

Friday, February 11th, 2011

One of our Fans on Facebook shared with us the story of Alison Levine, diagnosed with Wolff-Parkinson-White Syndrome at age 17 and Raynaud’s in her early 20′s.  Despite these disorders, she become team captain of the first American Women’s Everest Expedition. She has ascended the highest peaks on every continent and also skied to both the [...]

No More Queen of the Rainbow!

Tuesday, February 8th, 2011

I have not had a single attack since I started on time release nitroglycerin tablets.  Before that? The queen of the rainbow.  My first noticeable issue with Raynaud’s was in the early 80’s and my doctors kept telling me I must have frozen my feet and fingers. I’ve lived on niacin for years being the [...]

No One Seems to Get It

Tuesday, February 8th, 2011

When I was a teenager my parents and I noticed how sensitive my fingers were to the cold. One day my mother got nervous I was going to lose my fingers because they all turned white and I told her they went numb on me. She had me go to the doctor who did some [...]

Fall 2010 Cold Cuts Newsletter

Sunday, December 5th, 2010

For any of our new members who missed the Fall 2010 email version of our Cold Cuts newsletter, you can find a copy here:  Fall 2010 Cold Cuts Newsletter.        

Raynaud’s Health Guide at NYTimes.com

Friday, April 30th, 2010

The New York Times has published a new Health Guide on its web site devoted to Raynaud’s Phenomenon at Raynaud’s Health Guide   

Member Story: A Place to Call My Own!

Thursday, March 4th, 2010

I was diagnosed about 4 years ago with Raynaud’s Disease.  I had gone through many many tests to make sure I didn’t have Lupus like my aunt does, or any other autoimmune disease.  I do live in a cold climate, and although it’s not too cold for most, I think I am in the deep [...]

Member Story: I Feel Like I Won the Lottery

Saturday, February 13th, 2010

I have suffered from Raynaud’s for several years but as I have aged the symptoms have increased and have made life a little less enjoyable especially during our cold Midwest winters.