The Raynaud's Association » Uncategorized

Our New Site Sponsor: Gerbing’s Core Heat Products

Lynn Wunderman — Thu, 17 Jun 2010 22:38:16 +0000

We’re happy to announce Gerbings’s Core Heat Products is the Raynaud’s Association’s new Site Sponsor. You may already know about the company’s rechargeable, battery-operated heated products and how they provide warmth to protect us Frosties against winter chills.

What you probably don’t know is that the company’s spokesperson Stephanie Rainey is a Raynaud’s sufferer. Hear Stephanie’s story:

Stephanie Rainey for Gerbing Core Heat Fleece Gloves

Stephanie’s passions are hiking, camping, fishing, hunting, archery, backpacking – if it’s an outdoor sport, it’s on Stephanie’s “to do” list. She shares her outdoor adventures as host of the TV show Stepping Outdoors, a cable program about the people and places of the White Mountains of Northern Arizona. Stephanie finds that the warmth of Gerbing’s allows her to tolerate the cold temperatures she battles in cold weather sports, while the gloves’ flexibility allows her to operate a camera – important in her role as photographer, videographer and freelance writer.

Come meet Stephanie at our National Conference July 31st. She’ll be participating in our live product demo session! For more information or to register for the conference, click here.

For more information about Gerbing’s Core Heat Fleece Gloves, click here for our Product Review.

Help Us Chase Dollars for Raynaud’s

Lynn Wunderman — Thu, 17 Jun 2010 02:59:52 +0000

Please vote for the Raynaud’s Association! Chase is donating a total of $5 million to 200 local charities. The Raynaud’s Association
helps the 5 to 10% of the population that suffers from Raynaud’s cope with this widespread but little known autoimmune condition. To get our share of the $5 million Chase is giving away, you must vote now! Please help us spread the word – tell your friends on Facebook.

Vote for the Raynaud’s Association!

Online Registration Now Available for Raynaud’s Conference!

Lynn Wunderman — Fri, 21 May 2010 19:56:22 +0000

The Raynaud’s Association is partnering with the Scleroderma Foundation in creating a special Raynaud’s Education & Support Day – our first National Conference!

Join us for a full day of informative and involving workshops:

Saturday, July 31st
Conference Workshops:
10:15 AM to 5:30 PM
Sheraton Hotel
Boston, MA
Register for $75 Now!

Download the Raynaud’s Conference Registration Form
(PDF Version)

Or Click to Register Online Now!

Holiday Challenge: Help Us Beat Raynaud’s

Lynn Wunderman — Wed, 16 Dec 2009 02:11:55 +0000

If everyone who has Raynaud’s donated just one dollar, we could probably wipe it out. We’re looking to raise $500 on the website before the end of the year. Every $1, $5, $10 helps us help you. Your help can help beat Raynaud’s. Please donate now!

Hello Fellow Frosties!

admin — Thu, 10 Dec 2009 07:13:43 +0000

Welcome to the new version of our web site. For some time members have been able to read and post news, ask questions, and share treatment ideas through our Forum. And we’re happy to report our Forum has grown to over 2,000 members!

But we understand that not every Raynaud’s sufferer will want to join the Forum. And, given the all-volunteer army of three supporting the Raynaud’s Association at headquarters plus our limited budget, newsletters can only be published twice a year. So we wanted to add the ability to post news, important info for Raynaud’s patients, and highlight articles from our newsletters right on our home page. The new format will help us share more current information with members and will give Raynaud’s patients the opportunity to share their input and opinions on these postings and help further the dialogue among fellow Frosties.

We hope you’ll enjoy the new format, and will be vocal with us in sharing your ideas about additional ways we can improve this web site and our communications with members.

In the meantime, we’re glad you found us and please know that you’re not alone!

Do Your Part This Holiday Season

jhayes — Wed, 09 Dec 2009 00:08:48 +0000

As you, your family and friends get ready to make year-end tax-deductible charitable donations, please consider making a donation to the Raynaud’s Association.

As someone who has supported or joined our cause in the past, you could make an important difference by reaching out to your friends and loved ones on our behalf. Please download our Holiday Donor Letter asking for help in donating to this cause that holds special meaning to you. Feel free to make your appeal more personal by signing your own name and including a line such as: “as you may know, (I’m/name of family member is) one of these sufferers.”

All donors will receive a thank you letter and a receipt for their tax-deductible contribution. Make your holiday donation now. What a rewarding tribute and gift to give during this holiday season!