http://www.raynauds.org provide support and education to the millions of sufferers of Raynaud’s Phenomenon Thu, 11 Mar 2010 01:05:42 +0000 http://backend.userland.com/rss092 en Our Winter-Spring 2010 issue of Cold Cuts is now posted on the site.   This issue includes lots of member stories - thanks for all of your contributions, please keep them coming! We're planning to launch our first email version of Cold Cuts with this issue.  Members who've supplied their email addresses in ... http://www.raynauds.org/index.php/2010/03/latest-issue-of-cold-cuts-hot-off-the-press/ I was diagnosed about 4 years ago with Raynaud's Disease.  I had gone through many many tests to make sure I didn't have Lupus like my aunt does, or any other autoimmune disease.  I do live in a cold climate, and although it's not too cold for most, I think ... http://www.raynauds.org/index.php/2010/03/member-story-a-place-to-call-my-own/ I have suffered from Raynaud’s for several years but as I have aged the symptoms have increased and have made life a little less enjoyable especially during our cold Midwest winters.    My doctor tried calcium blockers that gave me only minimum relief but I had to stop taking it due to ... http://www.raynauds.org/index.php/2010/02/my-story-i-feel-like-i-won-the-lottery/ By raising your hand, you show your support for the 30 million Americans who are affected by rare diseases.  Lundbeck Inc., a Rare Disease Day Partner, announced the launch of a campaign to raise funds for rare disease research in conjunction with Rare Disease Day.  Lundbeck has created a “Raise Your ... http://www.raynauds.org/index.php/2010/02/raise-your-hand-and-make-a-difference/ Rare Disease Day is an annual event observed worldwide on the last day of February each year.   The purpose of this day is to raise awareness of rare diseases as a public health issue.  In the U.S., a rare disease is defined as affecting fewer than 200,000 people.  There are nearly ... http://www.raynauds.org/index.php/2010/01/unite-for-rare-disease-day/ http://www.raynauds.org/index.php/2010/01/follow-the-raynauds-association-on-twitter/ The Sjögren’s Syndrome Foundation is holding its 5th annual Sjögren’s Walkabout and Autoimmune Disease Health Awareness Fair on Saturday, February 27th, 2010 at the Paradise Valley Mall in Phoenix, Arizona.  This is an educational and family fun event to help raise vital funds to support the Foundation's research and education programs.  Click the link for ... http://www.raynauds.org/index.php/2010/01/phoenix-sjogrens-walkabout-and-autoimmune-disease-health-awareness-fair/ Thanks to the positive response from our members, we've recruited our test group for these socks.  We'll be requesting more testers for additional products in the future, so please keep watching the site for new announcements. We’re looking for Raynaud’s sufferers who specifically have problems with cold feet to help us test a new ... http://www.raynauds.org/index.php/2010/01/cold-feet-found/ GoodShop.com is a gateway to over 100 great stores including Target, Macy’s, The Gap, Best Buy, Nordstrom, PetSmart, Staples and Wal-Mart.  When you start your shopping at www.goodshop.com each of these major stores share a percentage of every dollar you spend with the Raynaud’s Association.  So before you redeem those holiday gift cards ... http://www.raynauds.org/index.php/2010/01/post-holiday-shopping-can-benefit-raynauds/ Checks continue to come in from our fundraising campaign.  Thanks to all of our supporters these past few weeks.  Between our recent fundaising mailing and the donors responding to our onsite challenge, we raised a total of $1,680 - over three times our goal! Together we can continue to work towards beating Raynaud's.  ... http://www.raynauds.org/index.php/2009/12/thanks-for-making-our-holiday-challenge-a-success/