Thanks so much for having this page, I’d be so freaked out without you guys! by L.D. (Facebook Fan)
I’m pleased to find this website. I’m learning more than I ever knew about my condition. Thank you. by R.Z. (PA)
I just discovered this page and am greatly encouraged by knowing that I’m not alone. by R.J. (Facebook Fan)
Just learned I have Raynaud’s…Glad to have found this org! by N.H. (Canada)
Hi, I did not know what I had until I found this site. I have both rosasea and Raynauds and it is affecting my life…Thank you so much. by K.R. (Ontario)
Thank you for all that you do!! by D. R. (Facebook Fan)
Thank you for the info! First time I have been here, and it’s nice to have the ‘connection’ with others in the world! by J.F. (NY)
No one understands me, that’s why I’m glad I found you all. by D.D. (Facebook Fan)
I am going to find some good help here…Thank you so much for your help… by M.S. (Facebook Fan)
I am so glad I found this website. Please keep me on your mailing and email list. THANK YOU So much! by C.W. (KS)
Welcome to the Raynaud's Association
- If your fingertips, toes or any other extremity become painful when exposed to cold temperatures, you might be suffering from Raynaud's phenomenon.
- If holding an iced drink - or putting your hands in the freezer - causes your fingers to turn blue (or white), you could be one of an estimated 28 million people in the US who have Raynaud's phenomenon.
- If air conditioning often triggers your fingers or toes to hurt, you might be experiencing a Raynaud's spasm.
The Raynaud's Association is here to help. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures.
What Is Raynaud's
Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. The disease causes an interruption of blood flow to the fingers, toes, nose, and/or ears when a spasm occurs in the blood vessels of these areas. Spasms are caused by exposure to cold or emotional stress. Typically, the affected area turns white, then blue, then bright red over the course of the attack. There may be associated tingling, swelling, or painful throbbing. The attacks may last from minutes to hours. In severe cases, the area may develop ulcerations and infections, which can lead to gangrene.
Raynaud’s can occur as a “primary” disease; that is, with no associated disorder. It can also occur as a “secondary” condition related to other diseases, such as scleroderma, lupus, and rheumatoid arthritis.
Approximately 5-10 percent of all Americans suffer from Raynaud’s, but only one out of five sufferers seeks treatment. Both men and women suffer from Raynaud’s, but women are nine times more likely to be affected. Some researchers estimate as many as 20% of all women in their childbearing years have Raynaud’s.
Although it’s been over 100 years since Raynaud’s was recognized, little is still known about the condition, its cause, or its cure. The Raynaud’s Association seeks to raise awareness and understanding of this perplexing phenomenon.
In The News…
The Sclerodema Foundation’s Tri-State group is hosting phone-in events through their new Tri-State Connect Program. Our own Jan Gnall, Board member with the Raynaud’s Association, is the program’s Group Leader and event host. Events are held the third Tuesday of each month.
Check out these special offers for our members. DISCLAIMER: Product reviews are the opinion of the reviewer(s) and are not formally endorsed. While the evaluation process is not clinically-based, products are tested by Raynaud’s sufferers for their potential benefit in real life situations. Products have not been tested by nor are regulated by the FDA.
The American Self-Help Clearinghouse is working to proclaim January as “National Support Group Awareness Month.” You can help by signing their petition addressed to the White House.
One frustration with Raynaud’s is that there’s no definitive scientific test for diagnosing the condition. While there are blood tests and diagnostics to determine if a patient’s Raynaud’s is a by-product of a more serious autoimmune disorder, only through a review of symptoms with your doctor or by a medical professional witnessing an attack can [...]
One recent article in the Independent Mail on stess and Raynaud’s made some good suggestions regarding the importance of taking care of your skin for Raynaud’s sufferers:
It’s important to understand and identify the factors most likely to trigger a patient’s Raynaud’s in order to best defend against attacks. While each sufferer may have a different response or threshold level to key stimuli associated with Raynaud’s, the following triggers were noted in a recent article published in Yahoo! Voices:
Announcing the launch of a new web site to help the 50 million americans with autoimmune diseases (including Raynaud’s) live better.
Good news! Scientists have pinpointed specific proteins within the skin’s blood vessels that play a part in the body’s reaction to cold stimuli and may provide clues to the mystery behind Raynaud’s attacks.