We worked with our partners at HotHands to create two infographics on Raynaud’s Myths. Here’s Part 1.
It is so wonderful to have a resource for my condition. They provide me with support and resources that I can’t get elsewhere. by Anonymous
I’m so thankful for this forum. It’s great to have the support when needed. by Raynaud’s Forum Member
I love the product reviews and great ideas for keeping warm. by K.T. (PA)
I am thankful to have the Raynaud’s Association as a very important source of information, without you guys many of us would never know of the useful tips and information you share! by J. W. (Canada)
You guys and gals are awesome. Thanks! by L.C. (Facebook Fan)
I stumbled across this website because I have a research paper I am doing on Raynaud’s…and seemed to have found a place to call my own! by E.P. (UK)
I am so happy there is this site to help us & others understand what this is & how they can help someone. And the vendors too are great giving ideas for warmth & special deals on pricing..best site ever.. by D.J. (AR)
The Raynaud’s Association is, without a doubt, the best source of information for anyone with Raynaud’s. They are always sharing the latest medical information, information about products & tips to help Raynaud’s sufferers. I have found out more helpful information from them than I have from my doctor. by J.W. (Canada)
I’m happy to find a group that understands this disorder and is supporting it. Thanks! by L.K. (KY)
I’m glad I found this on facebook, at least I could get some info here… by S.F. (Facebook Fan)
Welcome to the Raynaud's Association
- If your fingertips, toes or any other extremity become painful when exposed to cold temperatures, you might be suffering from Raynaud's phenomenon.
- If holding an iced drink - or putting your hands in the freezer - causes your fingers to turn blue (or white), you could be one of an estimated 28 million people in the US who have Raynaud's phenomenon.
- If air conditioning often triggers your fingers or toes to hurt, you might be experiencing a Raynaud's spasm.
The Raynaud's Association is here to help. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures.
What Is Raynaud's
Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. The disease causes an interruption of blood flow to the fingers, toes, nose, and/or ears when a spasm occurs in the blood vessels of these areas. Spasms are caused by exposure to cold or emotional stress. Typically, the affected area turns white, then blue, then bright red over the course of the attack. There may be associated tingling, swelling, or painful throbbing. The attacks may last from minutes to hours. In severe cases, the area may develop ulcerations and infections, which can lead to gangrene.
Raynaud’s can occur as a “primary” disease; that is, with no associated disorder. It can also occur as a “secondary” condition related to other diseases, such as scleroderma, lupus, and rheumatoid arthritis.
Approximately 5-10 percent of all Americans suffer from Raynaud’s, but only one out of ten sufferers seeks treatment. Both men and women suffer from Raynaud’s, but women are nine times more likely to be affected. Some researchers estimate as many as 20% of all women in their childbearing years have Raynaud’s.
Although it’s been over 100 years since Raynaud’s was recognized, little is still known about the condition, its cause, or its cure. The Raynaud’s Association seeks to raise awareness and understanding of this perplexing phenomenon.
In The News…
By Joe Fleming President ViveHealth.com Managing Raynaud’s Phenomenon and preventing attacks always seems to be about what you put on the outside of your body, right? Gloves, scarves, socks, hats . . . the list goes on. As the weather cools off and the crisp Autumn winds roll in, however, colder temperatures might suggest thinking […]
We found an editorial in the Valley Bugler, a newspaper published in Reton, Washington. The publisher/editor is a Frostie, her mother was a Frostie, and the editorial is about the advent of Fall and the coming winter months that bring on chills, something we all lament! It’s great seeing local papers build awareness of Raynaud’s, […]
Thanks to all of our members, fans and followers who posted positive reviews on the Great Nonprofits web site, we made the list of Top Rated Nonprofit Organizations again for 2017! Here’s what the award is all about: The GreatNonprofits Top-Rated Awards is a people’s choice award where volunteers, donors, and people served cast their vote […]
Here’s the Times Square photo that accompanied our Raynaud’s Awareness Month press release.
Ever find yourself freezing in an airport and wish you’d brought something warmer to snuggle up in on the plane? Or realized you forgot to pack your warm jacket on a trip headed north? No problem – just look for the Uniglo vending machine! Uniglo is stocking airport vending machines in limited markets with basic, […]
A couple of years ago, we wrote a post about how smart wearables would soon make life easier and more tolerable for Raynaud’s sufferers. One of the earliest products we found in the wearable category was Digitsoles, and they’ve just become available in the U.S. market. Digitsoles are the first connected, interactive, heated insoles that […]
Since there’s no single test to diagnose Raynaud’s, doctors generally rely on either witnessing an attack or listening to a patient describe their symptoms. But if their description doesn’t correspond to the text book triad of color changes (white/blue/red) or reference to pain or experience (e.g., numbness) they studied in medical school, Raynaud’s symptoms can […]