By Ronni Shulman Vice Chair, Raynaud’s Association When Nicole Edwards hears physicians say Raynaud’s sufferers should avoid the cold, she laughs. “I live in Yukon Territory,” she says. “That’s not an option for me!” The 45-year-old professional singer-songwriter-musician (www.NicoleEdwardsMusic.com) has dealt with Raynaud’s for nearly 15 years, a secondary symptom of her scleroderma. “I’d get […]
You guys are great! by J.W. (Facebook Fan)
This nonprofit made me realize I wasn’t alone, and referred me to some great gloves that have changed my life!! by Anonymous
Going back to the doctor after your website helped inform me better! by K. M. (Twitter Follower)
I just found this Facebook page today and think it will be of great help. by K.M. (Facebook Fan)
Everyone with Raynaud’s should Like and follow the Raynaud’s Association, it’s the best source for information, both from the association itself and fellow followers. by J.W. (Facebook Fan)
It’s really nice to have come across this support page…most of my family just don’t understand…I appreciate this group so much! by H.B. (Facebook Fan)
I am glad I found this site, and you, and now I have some hope and at least I can talk to people that have this…OMG! Thanks so much you’re a lifesaver… by S.F. (Facebook Fan)
My 17 year old daughter has recently been diagnosed with Raynauds…I love this website and find it very helpful. Thank you. by L.B. (IL)
I really value the Raynaud’s Association; it’s so nice to know that I’m not alone. by J. S. (OH)
So nice to know there are fellow “frosties” out there – just found out what my white fingers were all about… by C. C. (Facebook Fan)
Welcome to the Raynaud's Association
- If your fingertips, toes or any other extremity become painful when exposed to cold temperatures, you might be suffering from Raynaud's phenomenon.
- If holding an iced drink - or putting your hands in the freezer - causes your fingers to turn blue (or white), you could be one of an estimated 28 million people in the US who have Raynaud's phenomenon.
- If air conditioning often triggers your fingers or toes to hurt, you might be experiencing a Raynaud's spasm.
The Raynaud's Association is here to help. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures.
What Is Raynaud's
Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. The disease causes an interruption of blood flow to the fingers, toes, nose, and/or ears when a spasm occurs in the blood vessels of these areas. Spasms are caused by exposure to cold or emotional stress. Typically, the affected area turns white, then blue, then bright red over the course of the attack. There may be associated tingling, swelling, or painful throbbing. The attacks may last from minutes to hours. In severe cases, the area may develop ulcerations and infections, which can lead to gangrene.
Raynaud’s can occur as a “primary” disease; that is, with no associated disorder. It can also occur as a “secondary” condition related to other diseases, such as scleroderma, lupus, and rheumatoid arthritis.
Approximately 5-10 percent of all Americans suffer from Raynaud’s, but only one out of five sufferers seeks treatment. Both men and women suffer from Raynaud’s, but women are nine times more likely to be affected. Some researchers estimate as many as 20% of all women in their childbearing years have Raynaud’s.
Although it’s been over 100 years since Raynaud’s was recognized, little is still known about the condition, its cause, or its cure. The Raynaud’s Association seeks to raise awareness and understanding of this perplexing phenomenon.
In The News…
Everyday Gaiters is a Minnesota based family-run company that manufactures HuggerWear Apparel truly designed to help fight the cold! All of their products are made from a special Polartec® Power Stretch fabric that is a thinner version than those most often used for apparel. The result is that it keeps you dry, warm and comfy, […]
We were happy to see the Fox News affiliate in Hartford, CT ran a story helping to increase the awareness of Raynaud’s in their community: For Raynaud’s sufferers, cold weather can be a problem. Wish the doctor had been a bit more knowledgeable on a few facts (fingers turn blue from lack of oxygen during […]
Many Frosties are dog owners, and – no matter how cold it is outside – our furry loved ones need to be walked. But while Fido is wearing a fur coat, our Frostie paws may be freezing on a bitter cold, windy day. That’s the perfect day for using a Winter Leash! Winter Leash is […]
We published a post little over a year ago on “What’s the Best Glove for Raynaud’s Sufferers?” and it’s gotten so much positive feedback, we decided to do a similar post on foot solutions. As with gloves and mittens, no one sock or toe product will work for every person, but we hope the options listed […]
Every Raynaud’s sufferer is familiar with the winter fashion statement we make wrapped up like Nanook of the North trying to stay warm under lots of thick layers. Not really beauty pagent material! But there’s good news for us Frosties: A recent article in the Wall Street Journal reports technology is helping manufacturers develop thinner, […]
It’s finally that time of year when we find a number of products that can bring warmth and comfort to Raynaud’s sufferers. Here are some of our more recent discoveries: Serta Electric Foot Warmer – This product is like a heating pad with pockets for your frozen toes and feet. The fabric is described as “Angel Fleece” which […]
By Michael Wald, M.D. As we know, Raynaud’s phenomenon is a common and painful condition that results in varying degrees of ischemia, or lack of blood supply, in the fingers and/or toes. Raynaud’s often involves the immune system and always involves the autonomic nervous system. It is the involvement of the autonomic nervous system that […]