Well & Good, a publication in New Zealand, recently published an article titled How to Manage the Pain of Raynaud’s Disease. We’re always glad to see Raynaud’s in the press, and given the fact that it’s now winter in that part of the world, this is very timely content for local Kiwis. We may not agree […]
I am so excited that I came across this page. I look forward to discussions and the insight I will gain on this site. by N.E. (Facebook Fan)
Thank you for all of your hard work…your web site has helped me so much. by N.P. (MA)
I am so happy I found this page. Having recently been diagnosed with RP, I’m trying to adjust to it and make sense of it all. by A. S. (Facebook Fan)
I have learned so much useful information from this site. I have been able to explain what Raynaud’s is to people , they make it easy for the normal average person to understand. by S. Y. (Facebook Fan)
Thank you so much for such an informative site. I really feel you have helped me not only understand the disease, but how to deal with it effectively. by L.W. (MD)
This nonprofit made me realize I wasn’t alone, and referred me to some great gloves that have changed my life!! by Anonymous
Thank GOODNESS. In my years of perusing the web, I just found this group. by Forum Member
I recently found your website and love the Cold Cuts Newsletter! by P.M. (OK)
I appreciate your website and organization as it is a great source of information as I try my best to manage my Raynaud’s. by N.Z. (Canada)
It helps to have someone listen to our stories and makes us feel that we are not alone. by S.P. (IN)
Welcome to the Raynaud's Association
- If your fingertips, toes or any other extremity become painful when exposed to cold temperatures, you might be suffering from Raynaud's phenomenon.
- If holding an iced drink - or putting your hands in the freezer - causes your fingers to turn blue (or white), you could be one of an estimated 28 million people in the US who have Raynaud's phenomenon.
- If air conditioning often triggers your fingers or toes to hurt, you might be experiencing a Raynaud's spasm.
The Raynaud's Association is here to help. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures.
What Is Raynaud's
Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. The disease causes an interruption of blood flow to the fingers, toes, nose, and/or ears when a spasm occurs in the blood vessels of these areas. Spasms are caused by exposure to cold or emotional stress. Typically, the affected area turns white, then blue, then bright red over the course of the attack. There may be associated tingling, swelling, or painful throbbing. The attacks may last from minutes to hours. In severe cases, the area may develop ulcerations and infections, which can lead to gangrene.
Raynaud’s can occur as a “primary” disease; that is, with no associated disorder. It can also occur as a “secondary” condition related to other diseases, such as scleroderma, lupus, and rheumatoid arthritis.
Approximately 5-10 percent of all Americans suffer from Raynaud’s, but only one out of ten sufferers seeks treatment. Both men and women suffer from Raynaud’s, but women are nine times more likely to be affected. Some researchers estimate as many as 20% of all women in their childbearing years have Raynaud’s.
Although it’s been over 100 years since Raynaud’s was recognized, little is still known about the condition, its cause, or its cure. The Raynaud’s Association seeks to raise awareness and understanding of this perplexing phenomenon.
In The News…
Our 2016-2017 Awareness Campaign public service announcements were just completed. They will be distributed to hundreds of television stations across the country in time to promote Raynaud’s Awareness Month this October, and will continue to run throughout the 2016-2017 season. To date, our earlier public service announcements have achieved over 238 million impressions and generated over $6 […]
By Ronni Shulman Vice Chair Raynaud’s Association When USA Gymnastics Champion Kristle Lowell won the Gold Medal at the National Trampoline and Tumbling Championship in Providence, RI in June, few of the cheering spectators knew just how many twists and turns she had taken to get there. The 24-year-old athlete holds the world record in […]
It’s not easy finding products for us Frosties over the summer months, but we did discover a few that may be of interest to Raynaud’s sufferers, and good news – some are even on sale! Comforting Wrist Warmers – These soft chenille fingerless gloves have a pocket to insert a microwaveable warmer filled with rice and flaxseed. We’re not […]
While no product will work for everyone, it’s good to know that some Frosties are finding solutions that are bringing them relief. Kristel (MO) is a runner and one of her tips shared on Facebook says she’s found that placing a disposable hand warmer (like Grabber® or HotHands® ) along the waist band of her running pants helps […]
Last year we were fortunate to have a fellow Frostie volunteer to help with our t-shirt design promoting Raynaud’s Awareness Month. Here’s the design we used for our long-sleeve tee’s showcasing our mascot SHIVERS. This year, we’re considering different premiums (hoodies, tote bags, etc.) and would love your input, but most of all we’d love […]
Victoria Abbott-Fleming, the founder of a web site called Burning Nights, shared with us the infographic below. Burning Nights is a charity based in the UK supporting sufferers of complex regional pain syndrome (CRPS), a chronic pain condition most often affecting one of the limbs. The infographic was inspired by the millions of people around […]
This is that time of year when publications run articles about how office air conditioning erupts in office thermostat wars. It’s frustrating when publications recognize females as the usual frozen victims, but never mention why, with Raynaud’s being a potential cause of our chilly discomfort. Last year the New York Times published our editorial response to their article […]