Thanks for all the very useful info and tips! by J.W. (Facebook Fan)
You guys and gals are awesome. Thanks! by L.C. (Facebook Fan)
I’m sure all who visit this page will agree that the Raynaud’s Association is the best source of information and support for all of us with Raynaud’s. by J.W. (Facebook Fan)
I appreciate your website and organization as it is a great source of information as I try my best to manage my Raynaud’s. by N.Z. (Canada)
Thanks for your website, my first visit has really helped!! by R.L. (OH)
(Your moderator) was very kind, helpful and patient with me!…I’m elated to return to this wonderful forum. Thank you. by A.K. (WI)
I was recently diagnosed with Raynaud’s, and I have found it to be a blessing to have found this Facebook page. I now don’t feel as alone, and it has really helped me to understand the disease. by T.E. (Facebook Fan)
I’m thrilled I found your website – glad to know there are others just like me out there dealing with ‘cold’ fingers. Can’t wait to be included on your mailing list and newsletter. Thanks! by S.S. (PA)
No one understands me, that’s why I’m glad I found you all. by D.D. (Facebook Fan)
Being a Frostie, I love all the hints and tips from you guys by S.A.. (UK)
Welcome to the Raynaud's Association
- If your fingertips, toes or any other extremity become painful when exposed to cold temperatures, you might be suffering from Raynaud's phenomenon.
- If holding an iced drink - or putting your hands in the freezer - causes your fingers to turn blue (or white), you could be one of an estimated 28 million people in the US who have Raynaud's phenomenon.
- If air conditioning often triggers your fingers or toes to hurt, you might be experiencing a Raynaud's spasm.
The Raynaud's Association is here to help. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures.
What Is Raynaud's
Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. The disease causes an interruption of blood flow to the fingers, toes, nose, and/or ears when a spasm occurs in the blood vessels of these areas. Spasms are caused by exposure to cold or emotional stress. Typically, the affected area turns white, then blue, then bright red over the course of the attack. There may be associated tingling, swelling, or painful throbbing. The attacks may last from minutes to hours. In severe cases, the area may develop ulcerations and infections, which can lead to gangrene.
Raynaud’s can occur as a “primary” disease; that is, with no associated disorder. It can also occur as a “secondary” condition related to other diseases, such as scleroderma, lupus, and rheumatoid arthritis.
Approximately 5-10 percent of all Americans suffer from Raynaud’s, but only one out of five sufferers seeks treatment. Both men and women suffer from Raynaud’s, but women are nine times more likely to be affected. Some researchers estimate as many as 20% of all women in their childbearing years have Raynaud’s.
Although it’s been over 100 years since Raynaud’s was recognized, little is still known about the condition, its cause, or its cure. The Raynaud’s Association seeks to raise awareness and understanding of this perplexing phenomenon.
In The News…
Touchscreen-friendly gloves serve an important role for Raynaud’s sufferers, since exposing our frosted paws outside to send or receive messages can result in painful attacks. We wanted to find a good solution for fellow Frosties and found one in Glider Gloves. My first reaction to the gloves was – a bit thick for a liner, […]
The support for making this cute Blue-footed Booby the new “spokesbird” for the Raynaud’s Association has been incredible! Here’s our original post where we shared our discovery of this adorable creature with blue feet. We’ve read that their deep blue color plays an important role in the mating game (video) for this breed in attracting […]
A woman grew up cold much of the time as a child. She didn’t understand why she couldn’t wear the strappy little dresses or cute sandals worn by her friends without being in pain. As she grew into her mid-thirties, suddenly the pain in her feet on cold days was unbearable. She would go barefoot […]
By Rachel Boehm You may have heard I dedicated my first 50-mile run, the JFK 50, to Raynaud’s awareness. Many of those who heard about this via the Raynaud’s Association’s Facebook page asked about my strategy for staying warm. Here’s what I did (for more tips on endurance events, check out my blog post geared […]
Catherine (Facebook Fan) suggests: “I have been known to use my nose when my finger doesn’t register on a touch screen. :-)” We’ve all been there, trying to punch numbers into the ATM and nothing happens. It may look funny, but could be effective! Claire (Facebook Fan) shared the following idea: “Tip for anyone working in […]
Purlygirl knits was created in 2006 by Jill Wieder after a local retailer admired the hand-knit scarf she was wearing and asked her to knit a collection for his fall/winter season. With a background in art and design, Jill has a keen eye that really comes across in her one-of-a-kind colorful and fun hand warmers, […]
We have been contacted by a pharmaceutical company to help recruit patients for a clinical trial being conducted in patients with Raynaud’s phenomenon secondary to scleroderma/systemic sclerosis. The study medication is a topical cream that will be applied to the hand. Participation will require travel to a clinical site. The first site is in Encinitas, […]
This past week two major news groups published articles promoting hot products any Raynaud’s sufferer would love! The Huffington Post article is titled “21 Ridiculously Hot Products That Every Ridiculously Cold Person Will Want” – that’s us! While it includes some products we’ve featured in past newsletters, like the hand-warming Toasty Mug and heated toilets, […]