Kansas State University is recruiting Raynaud’s sufferers to participate in a survey correlating lifestyle and nutrition to Raynaud’s symptoms. Below is a background statement from the researcher who initiated the study, along with a link to the survey: Hello fellow Raynaud’s Association members! My name is Kourtney Foley and I currently attend Kansas State University. I have been […]
…So happy I found this page – thanks for being here. by J.R. (Facebook Fan)
I am so excited that I came across this page. I look forward to discussions and the insight I will gain on this site. by N.E. (Facebook Fan)
I’m so thankful for this forum. It’s great to have the support when needed. by Raynaud’s Forum Member
I’m sure all who visit this page will agree that the Raynaud’s Association is the best source of information and support for all of us with Raynaud’s… by J.W. (Canada)
Thank you so much for such an informative site. I really feel you have helped me not only understand the disease, but how to deal with it effectively. by L.W. (MD)
Glad I found you! I live in Minnesota and I am really glad you test products that might help me. I’ll keep an eye on your web site this winter! by C.G. (MN)
Thank you for helping me understand why I am so messed up! I am so grateful to know I am not alone!
by L.O. (WI)
You guys are great! by J.W. (Facebook Fan)
I am so thankful and happy that I have found the Raynaud’s Association, and I have already learned so much just by reading through the site. Thank you so much for your time and dedication to the awareness of Raynaud’s. by S. C. (AL)
Just learned I have Raynaud’s…Glad to have found this org! by N.H. (Canada)
Welcome to the Raynaud's Association
- If your fingertips, toes or any other extremity become painful when exposed to cold temperatures, you might be suffering from Raynaud's phenomenon.
- If holding an iced drink - or putting your hands in the freezer - causes your fingers to turn blue (or white), you could be one of an estimated 28 million people in the US who have Raynaud's phenomenon.
- If air conditioning often triggers your fingers or toes to hurt, you might be experiencing a Raynaud's spasm.
The Raynaud's Association is here to help. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures.
What Is Raynaud's
Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. The disease causes an interruption of blood flow to the fingers, toes, nose, and/or ears when a spasm occurs in the blood vessels of these areas. Spasms are caused by exposure to cold or emotional stress. Typically, the affected area turns white, then blue, then bright red over the course of the attack. There may be associated tingling, swelling, or painful throbbing. The attacks may last from minutes to hours. In severe cases, the area may develop ulcerations and infections, which can lead to gangrene.
Raynaud’s can occur as a “primary” disease; that is, with no associated disorder. It can also occur as a “secondary” condition related to other diseases, such as scleroderma, lupus, and rheumatoid arthritis.
Approximately 5-10 percent of all Americans suffer from Raynaud’s, but only one out of five sufferers seeks treatment. Both men and women suffer from Raynaud’s, but women are nine times more likely to be affected. Some researchers estimate as many as 20% of all women in their childbearing years have Raynaud’s.
Although it’s been over 100 years since Raynaud’s was recognized, little is still known about the condition, its cause, or its cure. The Raynaud’s Association seeks to raise awareness and understanding of this perplexing phenomenon.
In The News…
The author of this comic Adam Ford must either have or know someone with Raynaud’s because it does such a great job of communicating our pain! We found it on Facebook and Adam graciously agreed to let us share it with our members and followers – enjoy!
Much as we love the concept of heated gloves, many of us have experienced the hurdles they present: heavy batteries that dig into the wrist, thick material that makes it difficult to do simple tasks like putting coins in a parking meter, and more. Those that offer greater dexterity tend to be made for less […]
Last fall we published a post about a number of smart wearable products in development, including one called Wristify – a high-tech bracelet with a built-in thermostat. The bracelet uses thermoelectric material and sensors that have learned your personal preferences to determine when to give your wrist a pulse of heat (or a cool blast), providing temperature relief […]
Most academic articles require a medical dictionary to understand them, but this one titled Raynaud’s Phenomenon by Frank L. Urbano, MD published in Hospital Physician several years ago does a good job of educating readers who aren’t part of the medical community (give or take a few words or phrases in medicalese, particularly the Pathogenesis section). Contents […]
Special thanks to our friends at HeatMax, makers of Grabber® and HotHands® warmers, for helping us put together this infographic on Raynaud’s.
One of our Facebook followers shared an article published in BuzzFeed titled 16 Genius Ways To Keep Your Feet Toasty, According to Lumberjacks and we wanted to pass along some of their tips to fellow Frosties. BuzzFeed has a formula for maximizing impressions, and lists are one of their favorite techniques for attracting readers. In reviewing the […]
We found a post from The World According to Lupus – a blog written by Atlanta Titus, a Lupus sufferer and fellow Frostie. The post is titled Icy Fingers and Toes: A Guide to Raynaud’s – so it got our attention. It’s always enlightening to hear sufferers describe their symptoms related to Raynaud’s, because we find […]