Our Sponsor at Heat Holders® has expanded their product line to much more than the basic thermal socks we feature in our Marketplace section. To help introduce their full line of products to Raynaud’s sufferers, they are offering to give away one of each of the following products to lucky Frosties: Heat Holders® Original Socks – Keep […]
I haven’t spent much time on this forum but I have to say I have learned so much about my own condition…Today I used a tip that I read on this site..I am happy to say that it works! by P.M. (Raynaud’s Forum Member)
No one understands me, that’s why I’m glad I found you all. by D.D. (Facebook Fan)
Thanks for the support, information, help, advice, and all things you do. by S. M. (Spain)
I had no idea there was a name for what I’d been experiencing…found the Raynaud’s Association. THERE I found useful information & was connected with a network of support. I’ve learned so much & am so grateful to have this resource. by S. F. (Facebook Fan)
Great video. Many people, including family members, simply do not understand this condition. by T. G. (Facebook Fan)
Being a Frostie, I love all the hints and tips from you guys 🙂 by S.A.. (UK)
I am grateful to have a wonderful site like this where I can read other people’s stories or product suggestions…None of us are alone. by M.W. (NJ)
Incredibly helpful and useful resource for an underfunded cause. So many sufferers and even more who remain undiagnosed. Thanks. by Anonymous
It’s really nice to have come across this support page…most of my family just don’t understand…I appreciate this group so much! by H.B. (Facebook Fan)
Good job guys!! Thanks for giving us Frosties support. by S. R. (Facebook Fan)
Welcome to the Raynaud's Association
- If your fingertips, toes or any other extremity become painful when exposed to cold temperatures, you might be suffering from Raynaud's phenomenon.
- If holding an iced drink - or putting your hands in the freezer - causes your fingers to turn blue (or white), you could be one of an estimated 28 million people in the US who have Raynaud's phenomenon.
- If air conditioning often triggers your fingers or toes to hurt, you might be experiencing a Raynaud's spasm.
The Raynaud's Association is here to help. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures.
What Is Raynaud's
Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. The disease causes an interruption of blood flow to the fingers, toes, nose, and/or ears when a spasm occurs in the blood vessels of these areas. Spasms are caused by exposure to cold or emotional stress. Typically, the affected area turns white, then blue, then bright red over the course of the attack. There may be associated tingling, swelling, or painful throbbing. The attacks may last from minutes to hours. In severe cases, the area may develop ulcerations and infections, which can lead to gangrene.
Raynaud’s can occur as a “primary” disease; that is, with no associated disorder. It can also occur as a “secondary” condition related to other diseases, such as scleroderma, lupus, and rheumatoid arthritis.
Approximately 5-10 percent of all Americans suffer from Raynaud’s, but only one out of ten sufferers seeks treatment. Both men and women suffer from Raynaud’s, but women are nine times more likely to be affected. Some researchers estimate as many as 20% of all women in their childbearing years have Raynaud’s.
Although it’s been over 100 years since Raynaud’s was recognized, little is still known about the condition, its cause, or its cure. The Raynaud’s Association seeks to raise awareness and understanding of this perplexing phenomenon.
In The News…
We found a blog called Girl on the River written by Patricia Carswell, a freelance journalist whose work is focused on health, fitness, lifestyle and travel. Patricia has several physical challenges that would put the odds of taking up rowing against her – she’s petite in height (5’3″), and suffers from myalgic encephalopathy and chronic fatigue syndrome, causing debilitating fatigue, […]
We were surprised to find an article titled “My Raynaud’s Disease Means I Have to Wear Gloves All Year Round” on Racked, Vox’s online magazine on style and shopping. It’s an essay written by Jennifer Billock, a fellow Frostie, who shares her pain, along with her shopping and wardrobe challenges living with Raynaud’s. It’s well-written, and surely fellow […]
NHS Inform is Scotland’s national health information service with a mission to provide accurate and relevant information for making informed health decisions. In addition to information about medical conditions and related news and events, the service offers interactive self-help guides and a National Services Directory containing hundreds of support groups and thousands of NHS services in Scotland. Their […]
We recently introduced a new product line in our Marketplace section: Öjbro Swedish Gloves and Mittens – beautiful, colorful designs made of 100% merino wool, reinforced with four layers of insulation that will keep you warm and toasty! Sweater Chalet, our Sponsor who represents Öjbro in the U.S., wants Raynaud’s sufferers to get to know the brand […]
For years we’ve lamented the lack of fashionable choices for Raynaud’s sufferers who want warm fingers in the dead of winter. Most options force us to wear thick, stiff bulky gloves and mittens that look like they were made for ski bunnies. This year we’ve discovered new options that offer Frosties stylish gloves and mittens […]
What a surprise to see a full feature article in the New York Times this past week on the Blue-Footed Booby, our organizations’s mascot (we named him Shivers!). The article covers a lot of information we hadn’t seen before about these cute seabirds with webbed teal blue feet, and we wanted to share these new […]
Editor’s note: Herbal remedies and wellness techniques are not clinically proven to successfully alleviate Raynaud’s symptoms. Please speak with your doctor before trying any herbal treatment strategies, as they can interact with medications.