I am going to find some good help here…Thank you so much for your help… by M.S. (Facebook Fan)
Thanks for all the very useful info and tips! by J.W. (Facebook Fan)
Just wanna say I love your site because it helped me learn more about Raynaud’s…thought I was alone until I found you all…getting to read what others do for it helps a lot…thank you for your association :) by C.U. (KY)
Thank you for all that you do!! by D. R. (Facebook Fan)
I just wanted to thank you for this newsletter. It helps me to know I am not the only one suffering with this bizarre illness. Keep up the great job. by D.Y. (NJ)
It is nice to have an association where others are going through the same thing I am. by P.S. (NJ)
Love reading the posts on here, such great advice on how to stay warm. by C.U. (WA)
I thank God there’s a web site like this. by C. (Blog Post)
I was recently diagnosed with Raynaud’s, and I have found it to be a blessing to have found this Facebook page. I now don’t feel as alone, and it has really helped me to understand the disease. by T.E. (Facebook Fan)
I just found this Facebook page today and think it will be of great help. by K.M. (Facebook Fan)
Welcome to the Raynaud's Association
- If your fingertips, toes or any other extremity become painful when exposed to cold temperatures, you might be suffering from Raynaud's phenomenon.
- If holding an iced drink - or putting your hands in the freezer - causes your fingers to turn blue (or white), you could be one of an estimated 28 million people in the US who have Raynaud's phenomenon.
- If air conditioning often triggers your fingers or toes to hurt, you might be experiencing a Raynaud's spasm.
The Raynaud's Association is here to help. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures.
What Is Raynaud's
Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. The disease causes an interruption of blood flow to the fingers, toes, nose, and/or ears when a spasm occurs in the blood vessels of these areas. Spasms are caused by exposure to cold or emotional stress. Typically, the affected area turns white, then blue, then bright red over the course of the attack. There may be associated tingling, swelling, or painful throbbing. The attacks may last from minutes to hours. In severe cases, the area may develop ulcerations and infections, which can lead to gangrene.
Raynaud’s can occur as a “primary” disease; that is, with no associated disorder. It can also occur as a “secondary” condition related to other diseases, such as scleroderma, lupus, and rheumatoid arthritis.
Approximately 5-10 percent of all Americans suffer from Raynaud’s, but only one out of five sufferers seeks treatment. Both men and women suffer from Raynaud’s, but women are nine times more likely to be affected. Some researchers estimate as many as 20% of all women in their childbearing years have Raynaud’s.
Although it’s been over 100 years since Raynaud’s was recognized, little is still known about the condition, its cause, or its cure. The Raynaud’s Association seeks to raise awareness and understanding of this perplexing phenomenon.
In The News…
Our mission has always included the goal of building awareness for Raynaud’s among patients, the medical community and pharmaceutical companies. To be successful against this objective requires considerable effort, and, given our limited resources, we’ve not been able to make progress on this front. All of our efforts to date have been focused on patient [...]
We came across the following new products that may bring warmth and comfort to Raynaud’s sufferers. Customizable UGGs® – Seems like we’re always finding good solutions for Raynaud’s sufferers from UGG®. The latest find is a “design your own” feature. Select your favorite combination of sheepskin colors, heel fabrics, bindings, and outer soles. Watch the [...]
Olivia (Facebook Fan) posted her tips for outdoor running in colder months on our Facebook Fan Page: “I try to keep my upper body and arms as warm as possible and wear a pair of light gloves during my run, so I often am wearing shorts and then a long-sleeve tech shirt and sometimes a running [...]
We found this post by blogger manicnymph (sorry, that’s the only ID we found was her user name) on Squidoo with lots of useful info: A short educational introduction on Raynaud’s Her personal story and how her Raynaud’s evolved over the years since her teens Polls throughout the post with real time results 33 Tips and Tricks [...]
We found a useful article by Anne Mawdsley, the Founder of the Raynaud’s and Scleroderma Association in the UK, that was published in the British Journal of Health Care Assistants. It’s titled: Raynaud’s Phenomenon: What Can Be Done for Patients? As it’s written by someone who has experienced Raynaud’s first-hand (most articles published in journals are authored [...]
If our information and resources have been useful, please help us achieve a 2013 GreatNonprofits Top-Rated Award. Write a review of your experience with us at http://greatnonprofits.org/org/raynauds-association-inc. We just need 9 more reviews to make the cut! The designation helps all Raynaud’s sufferers by promoting our cause with the media and foundation community, so please review us now. [...]
We found information suggesting saunas may offer benefits for Raynaud’s sufferers. Granted, the info is published on a web site selling saunas, likely a bit biased, so we did a bit more research with more objective resources. Discovery Fit and Health offers an explanation of how saunas differ from steam baths: Unlike the moist heat [...]
Check out the Summer 2013 Cold Cuts Newsletter. Contents include: What Doctors Don’t Always Share About Raynaud’s Why Drugs Commonly Used for Weight Loss Can Be Bad for Autoimmune Sufferers Simple Stress (and Raynaud’s) Relievers Some Raynaud’s Fun From Twitter Hot Product Discoveries