Shelby Barker from Facebook delighted us with her story told in a blog post on Odyssey titled “My Life With Raynaud’s Disease: No, I’m not just a wimp in the cold.” She identifies the cold as her life’s enemy since she was about 16 years old. One reason she may have been fortunate enough to be […]
Thanks for all the info you guys provide. by J.L. (CA)
So nice to know there are fellow “frosties” out there – just found out what my white fingers were all about… by C. C. (Facebook Fan)
No one understands me, that’s why I’m glad I found you all. by D.D. (Facebook Fan)
I am so happy I found this page. Having recently been diagnosed with RP, I’m trying to adjust to it and make sense of it all. by A. S. (Facebook Fan)
Going back to the doctor after your website helped inform me better! by K. M. (Twitter Follower)
The site is great! by B.F. (IA)
I just found this Facebook page today and think it will be of great help. by K.M. (Facebook Fan)
I’m so glad to have discovered this group because I feel like you people here are my 7400 new best friends. Nobody else “gets it!” by L. G. (Facebook Fan)
This nonprofit made me realize I wasn’t alone, and referred me to some great gloves that have changed my life!! by Anonymous
My 17 year old daughter has recently been diagnosed with Raynauds…I love this website and find it very helpful. Thank you. by L.B. (IL)
Welcome to the Raynaud's Association
- If your fingertips, toes or any other extremity become painful when exposed to cold temperatures, you might be suffering from Raynaud's phenomenon.
- If holding an iced drink - or putting your hands in the freezer - causes your fingers to turn blue (or white), you could be one of an estimated 28 million people in the US who have Raynaud's phenomenon.
- If air conditioning often triggers your fingers or toes to hurt, you might be experiencing a Raynaud's spasm.
The Raynaud's Association is here to help. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures.
What Is Raynaud's
Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. The disease causes an interruption of blood flow to the fingers, toes, nose, and/or ears when a spasm occurs in the blood vessels of these areas. Spasms are caused by exposure to cold or emotional stress. Typically, the affected area turns white, then blue, then bright red over the course of the attack. There may be associated tingling, swelling, or painful throbbing. The attacks may last from minutes to hours. In severe cases, the area may develop ulcerations and infections, which can lead to gangrene.
Raynaud’s can occur as a “primary” disease; that is, with no associated disorder. It can also occur as a “secondary” condition related to other diseases, such as scleroderma, lupus, and rheumatoid arthritis.
Approximately 5-10 percent of all Americans suffer from Raynaud’s, but only one out of five sufferers seeks treatment. Both men and women suffer from Raynaud’s, but women are nine times more likely to be affected. Some researchers estimate as many as 20% of all women in their childbearing years have Raynaud’s.
Although it’s been over 100 years since Raynaud’s was recognized, little is still known about the condition, its cause, or its cure. The Raynaud’s Association seeks to raise awareness and understanding of this perplexing phenomenon.
In The News…
GivingTuesday.org is sponsoring a new storytelling contest this year asking people to share their personal reasons for giving (time or money) to their favorite nonprofit organization (we hope we’re on your list!). The stories will be shared on Facebook and the 6 winning entrants will receive $100-500 GlobalGiving gift cards – plus $1,000-5,000 grants will […]
Imagine a store filled with heated products – gloves, jackets, socks, vests, blankets, even heaters: every heated product you can imagine! You’d think you’d arrived in Frostie heaven, right? No, you’ve just discovered The Warming Store (TWS), one of the largest online retailers of heated clothing, winter apparel, and electronic heating equipment. Even better, The […]
Thanks to all of our members, fans and followers who posted positive reviews on the Great Nonprofits web site, we made the list of Top Rated Nonprofit Organizations for 2015! Here’s what the award is all about: The GreatNonprofits Top-Rated Awards is a people’s choice award where volunteers, donors, and people served cast their vote in […]
The first line of an article published this fall in the Wall Street Journal titled Gloves: More than Accessorties, They Are Statements opens with “Gloves were ubitquitous on fall’s runways,” and it gives Raynaud’s sufferers lots of tips on how to keep their hands and fingers warm yet fashionable. Victoria Stapleton, founder and creative director of luxury fashion label Brora […]
Susan on Facebook posted a link to a roadtrip most Frosties would love: It’s a year-long trek across the United States designed to experience temperatures of 70 degrees every single day! It was published in an article called A 13,235-Mile Road Trip for 70-Degree Weather Every Day on Atlantc Monthly’s CityLab site. While some readers commented […]
We’ve tested socks and gloves in the past that have silver content, and learned that silver has some redeeming properties for Raynaud’s sufferers: First, it works to reflect body heat, and second, it helps regulate and even out the temperature in the areas exposed to fabric containing silver content. Recently we found an article on a news site […]
One of our members, Geoff Chellis, sent an email with a story we thought would be inspiring for fellow Frosties, and he agreed to let us publish it. Warning: Just reading this story can give you the chills! In the spirit of Raynaud’s Awareness Month I thought I’d share a recent story and a donation to further […]