This has been one of the worst winters on record for cold temperatures, and February carried the worst of the cold, wind, snow and ice this season in most areas. New York isn’t home to all Frosties, but I think Raynaud’s sufferers everywhere can identify with this recent New York Times article on the frustrations of dealing with February’s weather […]
Kudos. Great web site. Keep up the good work. by E. C. N. (NY)
…relieved to know what it is…comforted to know there are other folks that have this condition…nice to have a place to share what works for us. by J.J. (VA)
Thank you for the info! First time I have been here, and it’s nice to have the ‘connection’ with others in the world! by J.F. (NY)
Hi Raynaud’s – I am glad that I’m not “alone”. by I.C. (Facebook Fan)
Many thanks…your web site looks great! by K.T. (New Zealand)
Your site has been very helpful. Continue to do your good work. by T. B. (CT)
Thank you so much for your suggestion…Much appreciated and now not feeling like such an oddity! Great that someone knows what I am talking about. by S.M. (UK)
Thanks for all the info you guys provide. by J.L. (CA)
Thanks for your website, my first visit has really helped!! by R.L. (OH)
Thanks so much for the web site and the information…I was feeling quite alone but your web site made me feel much better about what I can do to control my symptoms. by A.A. (Ontario)
Welcome to the Raynaud's Association
- If your fingertips, toes or any other extremity become painful when exposed to cold temperatures, you might be suffering from Raynaud's phenomenon.
- If holding an iced drink - or putting your hands in the freezer - causes your fingers to turn blue (or white), you could be one of an estimated 28 million people in the US who have Raynaud's phenomenon.
- If air conditioning often triggers your fingers or toes to hurt, you might be experiencing a Raynaud's spasm.
The Raynaud's Association is here to help. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures.
What Is Raynaud's
Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. The disease causes an interruption of blood flow to the fingers, toes, nose, and/or ears when a spasm occurs in the blood vessels of these areas. Spasms are caused by exposure to cold or emotional stress. Typically, the affected area turns white, then blue, then bright red over the course of the attack. There may be associated tingling, swelling, or painful throbbing. The attacks may last from minutes to hours. In severe cases, the area may develop ulcerations and infections, which can lead to gangrene.
Raynaud’s can occur as a “primary” disease; that is, with no associated disorder. It can also occur as a “secondary” condition related to other diseases, such as scleroderma, lupus, and rheumatoid arthritis.
Approximately 5-10 percent of all Americans suffer from Raynaud’s, but only one out of five sufferers seeks treatment. Both men and women suffer from Raynaud’s, but women are nine times more likely to be affected. Some researchers estimate as many as 20% of all women in their childbearing years have Raynaud’s.
Although it’s been over 100 years since Raynaud’s was recognized, little is still known about the condition, its cause, or its cure. The Raynaud’s Association seeks to raise awareness and understanding of this perplexing phenomenon.
In The News…
For most Raynaud’s sufferers – unless it’s secondary to another more serious autoimmune condition – there’s no explanation for the cause of their discomfort. But for those who have a history of working with vibrating tools and equipment, or people whose occupations subject their hands/fingers to unusual wear and tear, such as typists, stenographers and […]
As part of our 2015 Raynaud’s Awareness Campaign, we produced two public service announcements – one 30 second spot and one 60 second version. They’ve been distributed to hundreds of TV stations around the country and we hope to get good coverage from the broadcast community. You can view them on our YouTube channel, or […]
Dr. Fredrick Wigley of Johns Hopkins, along with several other noted specialists in the field, have just published a comprehensive book on Raynaud’s: Raynaud’s Phenomenon – A Guide to Pathogenesis and Treatment. It’s written for the medical community, but patients may find some valuable insights and information. The publisher’s description says it all: “…comprehensively reviews […]
It’s been a tough season so far, and we know fellow Frosties are searching for products that will keep them warm and cozy. Here are a few new discoveries we haven’t yet tried, but appear to have good potential to come to the aid of Raynaud’s sufferers: Astec Self-Heating Insoles – We’re usually skeptical of […]
Botulinum toxin, commonly known as the drug Botox® – bringing the fountain of youth to aging baby boomers – has shown promising results in treating Raynaud’s patients across several studies by reducing pain and the presence of skin ulcers in study participants. Previous research, however, has been only directional, as study designs did not include control […]
Jan on Facebook shared with us a video posted on LittleThings.com for making your own disposable hand warmers. The formula makes what is known as “Hot Ice,” and the ingredients require only baking soda, vinegar and boiling water The post includes a video from Household Hacker with everything you need to know to create the Hot […]
We found an excellent blog post written by fellow Frostie Tami Veldura. It starts out much like an AA confession: “Hello folks, my name is Tami and I have Raynaud’s Syndrome” and includes her 8-step program for minimizing attacks, the last one being the need to control her intake of alcohol (told you there’s an AA theme […]