We found some new products on the market that may be of interest to Raynaud’s sufferers: Eight Mattress Cover – Eight is a smart mattress cover that can track your sleep patterns, monitor your vital signs and – best of all for us Frosties – offers personalized climate controls with 10 different temperature levels. Choose between three […]
Sad to see so many suffer from this, and yet, comforting to have an outlet to talk. by L.D. (Facebook Fan)
Great website! Nice to read about people just like me! No one in my family understands how debilitating this can be-especially with winters in Iowa. by L.H. (IA)
…relieved to know what it is…comforted to know there are other folks that have this condition…nice to have a place to share what works for us. by J.J. (VA)
Thanks for all the work you do and the posts – you give us sufferers hope! by M.S. (CA)
I just wanted to thank you for this newsletter. It helps me to know I am not the only one suffering with this bizarre illness. Keep up the great job. by D.Y. (NJ)
Glad I found this page. I live in the UK…My hubby and I are glad there is an Association out there where we can get information from. by J.H. (Facebook Fan)
Thank you for allowing me to join this group…I am so miserable right now. It somehow makes me feel a little better to know someone else understands. by L.R. (Facebook Fan)
Thank you a lot. So glad I found you…this PDF is great. Bless you. by P. P. (Facebook Fan)
I’m happy to find a group that understands this disorder and is supporting it. Thanks! by L.K. (KY)
I am thrilled to find this organization. I have suffered with Raynaud’s for probably 20 years and just dealt with it. Thank you for existing. by S.W. (CA)
Welcome to the Raynaud's Association
- If your fingertips, toes or any other extremity become painful when exposed to cold temperatures, you might be suffering from Raynaud's phenomenon.
- If holding an iced drink - or putting your hands in the freezer - causes your fingers to turn blue (or white), you could be one of an estimated 28 million people in the US who have Raynaud's phenomenon.
- If air conditioning often triggers your fingers or toes to hurt, you might be experiencing a Raynaud's spasm.
The Raynaud's Association is here to help. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures.
What Is Raynaud's
Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. The disease causes an interruption of blood flow to the fingers, toes, nose, and/or ears when a spasm occurs in the blood vessels of these areas. Spasms are caused by exposure to cold or emotional stress. Typically, the affected area turns white, then blue, then bright red over the course of the attack. There may be associated tingling, swelling, or painful throbbing. The attacks may last from minutes to hours. In severe cases, the area may develop ulcerations and infections, which can lead to gangrene.
Raynaud’s can occur as a “primary” disease; that is, with no associated disorder. It can also occur as a “secondary” condition related to other diseases, such as scleroderma, lupus, and rheumatoid arthritis.
Approximately 5-10 percent of all Americans suffer from Raynaud’s, but only one out of five sufferers seeks treatment. Both men and women suffer from Raynaud’s, but women are nine times more likely to be affected. Some researchers estimate as many as 20% of all women in their childbearing years have Raynaud’s.
Although it’s been over 100 years since Raynaud’s was recognized, little is still known about the condition, its cause, or its cure. The Raynaud’s Association seeks to raise awareness and understanding of this perplexing phenomenon.
In The News…
Scleroderma Foundation Member (Tri-State) – A participant in a teleconference seminar with members of the Scleroderma Foundation suggested Raynaud’s sufferers try Russian Friction Massage therapy. The technique uses friction to stimulate heat within the body with slower, more gentle motions than used in a typical sports massage. The friction, combined with the use of kneading, slapping […]
We found a web site called Another Mother Runner that collected a list of tips and preventative measures from fellow runners with Raynaud’s. The tips are organized by the stage of the run: Pre-run, During, and Post-workout. You may find some of the suggestion to be obvious, but we wanted to pass them all along: Pre-run Tips Avoid […]
Our Vice Chair, Ronni Shulman, published an article on Raynaud’s in the Spring 2016 issue of Women magazine titled: The Cold Truth: Raynaud’s Phenomenon. The print version of the magazine is available at Walmart stores and by subscription. You can access it online via the link awomanshealth.com, or here’s a PDF of the article: The […]
We found this infographic on a Pinterest page of one of our followers and wanted to share it with fellow Frosties: Presented By Therapy Stockings Compression Garments Here’s a link to the original post: http://www.therapystockings.com/lifestyle-tips-to-improve-circulation-infographic/ Editor’s Note: While the author groups Raynaud’s in the category of people with poor circulation, most Raynaud’s sufferers have […]
A recent editorial in the Wall Street Journal by Dr. Joseph V. Gulfo, author of Innovation Breakdown: How the FDA and Wall Street Cripple Medical Advances, reviews recent developments in the approval practices associated with off-label drugs. For those not familiar with the term, an off-label drug is one that is approved by the FDA […]
The Wall Street Journal recently ran an article titled Best Temperature for Sleep. It reports the results of a study published by the journal Current Biology in October examining the role of temperature on our ability to sleep – even more so than light, which was previously considered to have a greater impact. When researching participants […]
A thermal image grapically showing the difference between a healthy hand and that of a Raynaud’s sufferer after exposure to cold water is one of this year’s winners of the Wellcome Image Awards. The awards are given by the Wellcome Trust in the UK, considered one of the world’s leading resources for medical imagery, “to […]