One of our Facebook followers shared an article published in BuzzFeed titled 16 Genius Ways To Keep Your Feet Toasty, According to Lumberjacks and we wanted to pass along some of their tips to fellow Frosties. BuzzFeed has a formula for maximizing impressions, and lists are one of their favorite techniques for attracting readers. In reviewing the […]
I am so glad we have social media to help us keep up-to-date and in contact with others. by B.B. (Facebook Fan)
I am going to find some good help here…Thank you so much for your help… by M.S. (Facebook Fan)
I’m so glad to have discovered this group because I feel like you people here are my 7400 new best friends. Nobody else “gets it!” by L. G. (Facebook Fan)
I haven’t spent much time on this forum but I have to say I have learned so much about my own condition…Today I used a tip that I read on this site..I am happy to say that it works! by P.M. (Raynaud’s Forum Member)
Just wanna say I love your site because it helped me learn more about Raynaud’s…thought I was alone until I found you all…getting to read what others do for it helps a lot…thank you for your association by C.U. (KY)
I am grateful to have a wonderful site like this where I can read other people’s stories or product suggestions…None of us are alone. by M.W. (NJ)
Hi, I just joined today and I’m so happy to find this site. Only other sufferers can truly understand Raynauds. by Raynaud’s Forum Member
I was diagnosed with Raynaud’s at age 16, I am now 41. Every day is a new adventure in keeping and staying warm, summer or winter. Thank you for this website. by E.G. (NY)
Love reading the posts on here, such great advice on how to stay warm. by C.U. (WA)
Thank you so much for such an informative site. I really feel you have helped me not only understand the disease, but how to deal with it effectively. by L.W. (MD)
Welcome to the Raynaud's Association
- If your fingertips, toes or any other extremity become painful when exposed to cold temperatures, you might be suffering from Raynaud's phenomenon.
- If holding an iced drink - or putting your hands in the freezer - causes your fingers to turn blue (or white), you could be one of an estimated 28 million people in the US who have Raynaud's phenomenon.
- If air conditioning often triggers your fingers or toes to hurt, you might be experiencing a Raynaud's spasm.
The Raynaud's Association is here to help. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures.
What Is Raynaud's
Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. The disease causes an interruption of blood flow to the fingers, toes, nose, and/or ears when a spasm occurs in the blood vessels of these areas. Spasms are caused by exposure to cold or emotional stress. Typically, the affected area turns white, then blue, then bright red over the course of the attack. There may be associated tingling, swelling, or painful throbbing. The attacks may last from minutes to hours. In severe cases, the area may develop ulcerations and infections, which can lead to gangrene.
Raynaud’s can occur as a “primary” disease; that is, with no associated disorder. It can also occur as a “secondary” condition related to other diseases, such as scleroderma, lupus, and rheumatoid arthritis.
Approximately 5-10 percent of all Americans suffer from Raynaud’s, but only one out of five sufferers seeks treatment. Both men and women suffer from Raynaud’s, but women are nine times more likely to be affected. Some researchers estimate as many as 20% of all women in their childbearing years have Raynaud’s.
Although it’s been over 100 years since Raynaud’s was recognized, little is still known about the condition, its cause, or its cure. The Raynaud’s Association seeks to raise awareness and understanding of this perplexing phenomenon.
In The News…
We found a post from The World According to Lupus – a blog written by Atlanta Titus, a Lupus sufferer and fellow Frostie. The post is titled Icy Fingers and Toes: A Guide to Raynaud’s – so it got our attention. It’s always enlightening to hear sufferers describe their symptoms related to Raynaud’s, because we find […]
Business Week just ran an article you might expect to find in a supermarket newsstand magazine titled “Bare-Legged in Winter: Trying out a cycling trick in place of tights.” The writer, Molly Young, discovered a strategy used by hard-core cyclists to keep their bare skin warm in cold weather. Her hope was that it would provide a […]
This has been one of the worst winters on record for cold temperatures, and February carried the worst of the cold, wind, snow and ice this season in most areas. New York isn’t home to all Frosties, but I think Raynaud’s sufferers everywhere can identify with this recent New York Times article on the frustrations of dealing with February’s weather […]
For most Raynaud’s sufferers – unless it’s secondary to another more serious autoimmune condition – there’s no explanation for the cause of their discomfort. But for those who have a history of working with vibrating tools and equipment, or people whose occupations subject their hands/fingers to unusual wear and tear, such as typists, stenographers and […]
As part of our 2015 Raynaud’s Awareness Campaign, we produced two public service announcements – one 30 second spot and one 60 second version. They’ve been distributed to hundreds of TV stations around the country and we hope to get good coverage from the broadcast community. You can view them on our YouTube channel, or […]
Dr. Fredrick Wigley of Johns Hopkins, along with several other noted specialists in the field, have just published a comprehensive book on Raynaud’s: Raynaud’s Phenomenon – A Guide to Pathogenesis and Treatment. It’s written for the medical community, but patients may find some valuable insights and information. The publisher’s description says it all: “…comprehensively reviews […]
It’s been a tough season so far, and we know fellow Frosties are searching for products that will keep them warm and cozy. Here are a few new discoveries we haven’t yet tried, but appear to have good potential to come to the aid of Raynaud’s sufferers: Astec Self-Heating Insoles – We’re usually skeptical of […]