Fellow Frostie and world champion gymnast Kristle Lowell celebrated the eclipse on August 21st with one of her amazing trampoline jumps – what an incredible photo! For more about Kristle’s accomplishments, see our earlier posts: World Champion Gymnast Finds Warm-Ups Among Her Biggest Challenges Raynaud’s, Plus New Diagnosis, Doesn’t Deter Champion Gymnast Athlete […]
I am happy to finally come across a site like this…I really hope to learn more about this through other fellow members…and to try to help them with my experience. by H.R. (NY)
I like your Facebook page ’cause it has a lot of information, news and is very helpful for Raynaud’s sufferers. by S. R. (Facebook Fan)
It helps to have someone listen to our stories and makes us feel that we are not alone. by S.P. (IN)
I am so excited that I came across this page. I look forward to discussions and the insight I will gain on this site. by N.E. (Facebook Fan)
Great resource! Incredible experience and caring people. by K. (Twitter Follower)
Thank you for all of your hard work…your web site has helped me so much. by N.P. (MA)
The Raynaud’s Association provides a lot of essential tips and resources to help me manage my day-to-day symptoms. I’m able to manage much better thanks to this association. by Anonymous
I want to learn everything I can about this disease and to deal with it…Thank you for this website. by M.R-B. (VA)
I was just diagnosed and found your site. It’s very helpful!!! by K.M. (Canada)
When I was diagnosed with Raynaud’s, my Doctor provided very little information about the disease, or how to live with it. Upon searching online, I found the Raynaud’s Association to be the best source for information and support. by J.W.
Welcome to the Raynaud's Association
- If your fingertips, toes or any other extremity become painful when exposed to cold temperatures, you might be suffering from Raynaud's phenomenon.
- If holding an iced drink - or putting your hands in the freezer - causes your fingers to turn blue (or white), you could be one of an estimated 28 million people in the US who have Raynaud's phenomenon.
- If air conditioning often triggers your fingers or toes to hurt, you might be experiencing a Raynaud's spasm.
The Raynaud's Association is here to help. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures.
What Is Raynaud's
Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. The disease causes an interruption of blood flow to the fingers, toes, nose, and/or ears when a spasm occurs in the blood vessels of these areas. Spasms are caused by exposure to cold or emotional stress. Typically, the affected area turns white, then blue, then bright red over the course of the attack. There may be associated tingling, swelling, or painful throbbing. The attacks may last from minutes to hours. In severe cases, the area may develop ulcerations and infections, which can lead to gangrene.
Raynaud’s can occur as a “primary” disease; that is, with no associated disorder. It can also occur as a “secondary” condition related to other diseases, such as scleroderma, lupus, and rheumatoid arthritis.
Approximately 5-10 percent of all Americans suffer from Raynaud’s, but only one out of ten sufferers seeks treatment. Both men and women suffer from Raynaud’s, but women are nine times more likely to be affected. Some researchers estimate as many as 20% of all women in their childbearing years have Raynaud’s.
Although it’s been over 100 years since Raynaud’s was recognized, little is still known about the condition, its cause, or its cure. The Raynaud’s Association seeks to raise awareness and understanding of this perplexing phenomenon.
In The News…
We’re doing a “Mysterious Zombie Hands” theme for Raynaud’s Awareness Month, talking about the way hands can turn ghoulish white during attacks and how the phenomenon has mystified the medical community for over 150 years. We’re hoping this Halloween-inspired approach will attract attention in October for the event, and would love to have some videos to circulate […]
By Joe Fleming President ViveHealth.com Is your child with Raynaud’s Phenomenon heading back to school soon? When it comes to back to school season, your days may quickly fill with shopping, scheduling, organizing transportation, signing up for volunteer activities, coordinating sports calendars, the list goes on… Don’t let managing Raynaud’s symptoms sneak up on your […]
Little is known about Raynaud’s, in fact you’re way ahead of most people if you’ve even heard of it. Unfortunately some information published about Raynaud’s is inaccurate, and we want to set the record straight on many of these myths. Myth #1: Raynaud’s is a rare disease. It can be difficult putting firm numbers on […]
We sometimes come across articles and information on Raynaud’s that are enough to scare sufferers into an anxiety attack because they lead them to believe that they will be on medication for the rest of their lives and likely lose fingers or toes to gangrene. Guess the publishers think it will help sell more magazines! […]
By Joe Fleming President ViveHealth.com Stress plays an important role in triggering unwanted symptoms of Raynaud’s Phenomenon. Why? Well, when you feel stressed out and experience strong emotions, your blood vessels naturally constrict in your body. Because people with Raynaud’s have over-reactive blood vessels that spasm and narrow to a point of cutting off blood […]
Readers may recall our two previous features about gymnastics champion Kristle Lowell, a record-holding trampoline athlete with the additional challenge of Raynaud’s: World Champion Gymnast Finds Warm-Ups Among Her Biggest Challenges published on February 13, 2014, and Raynaud’s, Plus New Diagnosis, Doesn’t Deter Champion Gymnast published on August 8, 2016. Good news! Lowell returned recently from the United […]