We came across a video that suggests citrus fruits can help keep you hands warm, seriously! It’s published by NutritionFacts.org, an organization that provides updates on nutrition research. In non-doctor speak, here’s the story: Albert Szent-Györgyi, the doctor who discovered Vitamin C also discovered what a class of nutrients called flavonoids. One nutrient in this class is […]
This organization helped me with ways to explain what Raynaud’s is and how it affects me and my family. by Anonymous
You all do an excellent job running this site and keeping everyone informed. by A.J. (TN)
The Raynaud’s Association was my sanity saver!…It helped me and my doctor diagnose my Raynaud’s and continues to be my authoritative resource! The support I receive has been absolutely amazing! by A. M. (Facebook Fan)
After years of feeling alone. I am not. Thank you. by B.D. (NY)
Hi Raynaud’s – I am glad that I’m not “alone”. by I.C. (Facebook Fan)
I was diagnosed with Raynaud’s at age 16, I am now 41. Every day is a new adventure in keeping and staying warm, summer or winter. Thank you for this website. by E.G. (NY)
The Raynaud’s Association has given me a platform to speak about my journey with Raynaud’s. I felt alone, but once I found this association I met thousands of other sufferers. by A.C. (NY)
I was recently diagnosed with Raynaud’s, and I have found it to be a blessing to have found this Facebook page. I now don’t feel as alone, and it has really helped me to understand the disease. by T.E. (Facebook Fan)
Thank you for the info! First time I have been here, and it’s nice to have the ‘connection’ with others in the world! by J.F. (NY)
I’m so thankful for this forum. It’s great to have the support when needed. by Raynaud’s Forum Member
Welcome to the Raynaud's Association
- If your fingertips, toes or any other extremity become painful when exposed to cold temperatures, you might be suffering from Raynaud's phenomenon.
- If holding an iced drink - or putting your hands in the freezer - causes your fingers to turn blue (or white), you could be one of an estimated 28 million people in the US who have Raynaud's phenomenon.
- If air conditioning often triggers your fingers or toes to hurt, you might be experiencing a Raynaud's spasm.
The Raynaud's Association is here to help. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures.
What Is Raynaud's
Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. The disease causes an interruption of blood flow to the fingers, toes, nose, and/or ears when a spasm occurs in the blood vessels of these areas. Spasms are caused by exposure to cold or emotional stress. Typically, the affected area turns white, then blue, then bright red over the course of the attack. There may be associated tingling, swelling, or painful throbbing. The attacks may last from minutes to hours. In severe cases, the area may develop ulcerations and infections, which can lead to gangrene.
Raynaud’s can occur as a “primary” disease; that is, with no associated disorder. It can also occur as a “secondary” condition related to other diseases, such as scleroderma, lupus, and rheumatoid arthritis.
Approximately 5-10 percent of all Americans suffer from Raynaud’s, but only one out of ten sufferers seeks treatment. Both men and women suffer from Raynaud’s, but women are nine times more likely to be affected. Some researchers estimate as many as 20% of all women in their childbearing years have Raynaud’s.
Although it’s been over 100 years since Raynaud’s was recognized, little is still known about the condition, its cause, or its cure. The Raynaud’s Association seeks to raise awareness and understanding of this perplexing phenomenon.
In The News…
By Ronni Shulman Vice Chair Raynaud’s Association Ask most doctors how to avoid a Raynaud’s “attack” and chances are they’ll advise their patients to avoid the cold as much as possible. That’s easier said than done, but for Enrique Cubillo it was an outright challenge. Indeed, for the life-long skateboarder and bicyclist, Raynaud’s was the […]
Our Sponsors have generously been awarding samples of their products to fellow Frosties in support of recent contest efforts. Below is a list of our winners – give them a warm hand of applause! G-Tech Hand Warmer Contest Winners: Angelique Jones Kathleen Donegan Laura-Gayle Louise Anderson G-Tech Heated Hoodie Contest Winners: Amanda Lovelady Angel Lowe Murphy Katelyn Mikalishen […]
This was a light season for new product discoveries, but we wanted to share one interesting product that appears promising for Frosties, and another that may not deliver on its promises based on customer reviews – both from the same company. Heated Car Seat Pad – For Frosties who don’t have the luxury of heated car seats […]
Our Sponsor at Heat Holders® has expanded their product line to much more than the basic thermal socks we feature in our Marketplace section. To help introduce their full line of products to Raynaud’s sufferers, they are offering to give away one of each of the following products to lucky Frosties: Heat Holders® Original Socks – Keep […]
We found a blog called Girl on the River written by Patricia Carswell, a freelance journalist whose work is focused on health, fitness, lifestyle and travel. Patricia has several physical challenges that would put the odds of taking up rowing against her – she’s petite in height (5’3″), and suffers from myalgic encephalopathy and chronic fatigue syndrome, causing debilitating fatigue, […]
We were surprised to find an article titled “My Raynaud’s Disease Means I Have to Wear Gloves All Year Round” on Racked, Vox’s online magazine on style and shopping. It’s an essay written by Jennifer Billock, a fellow Frostie, who shares her pain, along with her shopping and wardrobe challenges living with Raynaud’s. It’s well-written, and surely fellow […]
NHS Inform is Scotland’s national health information service with a mission to provide accurate and relevant information for making informed health decisions. In addition to information about medical conditions and related news and events, the service offers interactive self-help guides and a National Services Directory containing hundreds of support groups and thousands of NHS services in Scotland. Their […]