Nicole Edwards (www.NicoleEdwardsMusic.com), a fellow Frostie and a talented singer-songwriter from Canada wrote a song for us called the Raynaud’s Blues. You can hear part of the song as the background music in our Raynaud’s Awareness Public Service Announcements, and we created ringtones that can be purchased in iPhone and Android-ready formats for just $1.99 from […]
I want to thank you for the knowledge and resources you continue to provide…this organization has played a big role…so I say thank you. by L. S. (Facebook Fan)
Thank you so much for having your Facebook page. It’s comforting to know that people understand the pain. That we are not alone. by L.M. (Facebook Fan)
It is so wonderful to have a resource for my condition. They provide me with support and resources that I can’t get elsewhere. by Anonymous
You guys and gals are awesome. Thanks! by L.C. (Facebook Fan)
Hi Raynaud’s – I am glad that I’m not “alone”. by I.C. (Facebook Fan)
I’m happy to find your site. I’m newly diagnosed and am educating myself beyond the medications for control! by M.R. (Forum Member)
…and the Raynaud’s Association has been helpful to me and my fellow scleroderma patients. Thank you! by D.D. (Facebook Fan)
Just wanna say I love your site because it helped me learn more about Raynaud’s…thought I was alone until I found you all…getting to read what others do for it helps a lot…thank you for your association 🙂 by C.U. (KY)
I’m glad I found this on facebook, at least I could get some info here… by S.F. (Facebook Fan)
Many thanks…your web site looks great! by K.T. (New Zealand)
Welcome to the Raynaud's Association
- If your fingertips, toes or any other extremity become painful when exposed to cold temperatures, you might be suffering from Raynaud's phenomenon.
- If holding an iced drink - or putting your hands in the freezer - causes your fingers to turn blue (or white), you could be one of an estimated 28 million people in the US who have Raynaud's phenomenon.
- If air conditioning often triggers your fingers or toes to hurt, you might be experiencing a Raynaud's spasm.
The Raynaud's Association is here to help. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures.
What Is Raynaud's
Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. The disease causes an interruption of blood flow to the fingers, toes, nose, and/or ears when a spasm occurs in the blood vessels of these areas. Spasms are caused by exposure to cold or emotional stress. Typically, the affected area turns white, then blue, then bright red over the course of the attack. There may be associated tingling, swelling, or painful throbbing. The attacks may last from minutes to hours. In severe cases, the area may develop ulcerations and infections, which can lead to gangrene.
Raynaud’s can occur as a “primary” disease; that is, with no associated disorder. It can also occur as a “secondary” condition related to other diseases, such as scleroderma, lupus, and rheumatoid arthritis.
Approximately 5-10 percent of all Americans suffer from Raynaud’s, but only one out of ten sufferers seeks treatment. Both men and women suffer from Raynaud’s, but women are nine times more likely to be affected. Some researchers estimate as many as 20% of all women in their childbearing years have Raynaud’s.
Although it’s been over 100 years since Raynaud’s was recognized, little is still known about the condition, its cause, or its cure. The Raynaud’s Association seeks to raise awareness and understanding of this perplexing phenomenon.
In The News…
This is the second year for Raynaud’s Awareness Month (RAM), and we already feel the momentum building! October is an important time for us to reach to the millions of sufferers who experience Raynaud’s symptoms, particularly in the coming colder months, but have no idea that their pain and discomfort relates to a medical condition. Of the 15 […]
Our Sponsor at Winter Leash is giving away three of its warm dog-walking mitts. To be one of the three lucky Frosties to receive these toasty glove covers, here’s what you need to do: Read our Product Review on Winter Leash and learn about its specific features and how it can provide warmth and comfort from the cold for dog […]
We just published our press release with PR Newswire announcing October as Raynaud’s Awareness Month, along with a link to our latest public service announcement. Please check out the news on “Why Millions of Americans Are Feeling Blue” and share it with your family and friends. We need your support to help get the word out! […]
NY Magazine’s web site The Cut defines it’s mission as “Combining the beauty of a high-end fashion magazine with the dynamic energy of the web…The Cut is fashion, forward.” So we were excited to see the publication feature an article on Raynaud’s titled “Why Are My Hands Always Freezing?” It’s great having such a respected resource devote […]
We recently came across an article on the Verywell web site title: A Guide to Raynaud’s Phenomenon: Raynaud’s Phenomenon Explained. While we see articles on Raynaud’s periodically (wish it more often!), this one stands out as an excellent resource, as it covers a number of issues in plain, easy-to-understand language (no “doctor speak”). Content covered […]
We’ve signed on to Pinterest and created six boards that should be of interest to fellow Frosties: Hot Products Cold Facts Raynaud’s in the News Cool Quote Raynaud’s Stories Warm Inspirations Please check us out and start sharing our content to help us increase awareness of Raynaud’s. We’d also love to connect with fellow Frosties and […]
Nicole Edwards, a fellow Frostie and a talented singer-songwriter from Canada wrote a song for us, and it’s the driving force behind this year’s Raynaud’s Awareness Campaign theme “Feeling Blue.” The song is featured in our newly-released public service announcements, and we created ringtones that can be purchased in iPhone and Android-ready formats for just […]