We worked with our partners at HotHands to create two infographics on Raynaud’s Myths. Here’s Part 2.
…my fingers kept “bruising,” yesterday I took in pictures to my new doctor after trying to explain it on my last visit, he said you have Raynaud’s…Thank you for being here 🙂 by W.K. (Facebook Fan)
Gives very helpful information on products that make living with Raynaud’s easier. Shows that you are not alone and that there are others that understand what you are going through. by J.O.
No one understands the pain. So glad to have this site available to share our illness. by S.B. (Facebook Fan)
Love reading the posts on here, such great advice on how to stay warm. by C.U. (WA)
The Raynaud’s Association was my sanity saver!…It helped me and my doctor diagnose my Raynaud’s and continues to be my authoritative resource! The support I receive has been absolutely amazing! by A. M. (Facebook Fan)
Never heard of this condition until I was diagnosed. Came upon the Raynaud’s Association website where I was provided with a wealth of information and tips on how to deal with this disease. by S.S.
Thankful for this site. It gives lots of information and resources I was unable to obtain when I first learned of my conditions. by M.M. (WA)
Thank you for all your support. I used to feel so alone in my suffering!!! by M.D. (NH)
…So happy I found this page – thanks for being here. by J.R. (Facebook Fan)
…relieved to know what it is…comforted to know there are other folks that have this condition…nice to have a place to share what works for us. by J.J. (VA)
Welcome to the Raynaud's Association
- If your fingertips, toes or any other extremity become painful when exposed to cold temperatures, you might be suffering from Raynaud's phenomenon.
- If holding an iced drink - or putting your hands in the freezer - causes your fingers to turn blue (or white), you could be one of an estimated 28 million people in the US who have Raynaud's phenomenon.
- If air conditioning often triggers your fingers or toes to hurt, you might be experiencing a Raynaud's spasm.
The Raynaud's Association is here to help. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures.
What Is Raynaud's
Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. The disease causes an interruption of blood flow to the fingers, toes, nose, and/or ears when a spasm occurs in the blood vessels of these areas. Spasms are caused by exposure to cold or emotional stress. Typically, the affected area turns white, then blue, then bright red over the course of the attack. There may be associated tingling, swelling, or painful throbbing. The attacks may last from minutes to hours. In severe cases, the area may develop ulcerations and infections, which can lead to gangrene.
Raynaud’s can occur as a “primary” disease; that is, with no associated disorder. It can also occur as a “secondary” condition related to other diseases, such as scleroderma, lupus, and rheumatoid arthritis.
Approximately 5-10 percent of all Americans suffer from Raynaud’s, but only one out of ten sufferers seeks treatment. Both men and women suffer from Raynaud’s, but women are nine times more likely to be affected. Some researchers estimate as many as 20% of all women in their childbearing years have Raynaud’s.
Although it’s been over 100 years since Raynaud’s was recognized, little is still known about the condition, its cause, or its cure. The Raynaud’s Association seeks to raise awareness and understanding of this perplexing phenomenon.
In The News…
We worked with our partners at HotHands to create two infographics on Raynaud’s Myths. Here’s Part 1.
By Joe Fleming President ViveHealth.com Managing Raynaud’s Phenomenon and preventing attacks always seems to be about what you put on the outside of your body, right? Gloves, scarves, socks, hats . . . the list goes on. As the weather cools off and the crisp Autumn winds roll in, however, colder temperatures might suggest thinking […]
We found an editorial in the Valley Bugler, a newspaper published in Reton, Washington. The publisher/editor is a Frostie, her mother was a Frostie, and the editorial is about the advent of Fall and the coming winter months that bring on chills, something we all lament! It’s great seeing local papers build awareness of Raynaud’s, […]
Thanks to all of our members, fans and followers who posted positive reviews on the Great Nonprofits web site, we made the list of Top Rated Nonprofit Organizations again for 2017! Here’s what the award is all about: The GreatNonprofits Top-Rated Awards is a people’s choice award where volunteers, donors, and people served cast their vote […]
Here’s the Times Square photo that accompanied our Raynaud’s Awareness Month press release.
Ever find yourself freezing in an airport and wish you’d brought something warmer to snuggle up in on the plane? Or realized you forgot to pack your warm jacket on a trip headed north? No problem – just look for the Uniglo vending machine! Uniglo is stocking airport vending machines in limited markets with basic, […]
A couple of years ago, we wrote a post about how smart wearables would soon make life easier and more tolerable for Raynaud’s sufferers. One of the earliest products we found in the wearable category was Digitsoles, and they’ve just become available in the U.S. market. Digitsoles are the first connected, interactive, heated insoles that […]