I have had Raynaud’s for as long as I can remember. As a child, when my friends and I would go out sledding, I would always be the first one to get cold and want to go home. No matter what kind or how many gloves, socks and boots I wore, my fingers and toes would turn white and go numb. I just figured I wasn’t as tough as my friends. So, I would end up staying out with them, until my fingers and toes were numb, white, and extremely painful. It never occurred to me that it might be a condition. But then again I was just a little girl… [Read more…]
One of our Fans on Facebook shared with us the story of Alison Levine, diagnosed with Wolff-Parkinson-White Syndrome at age 17 and Raynaud’s in her early 20’s. Despite these disorders, she become team captain of the first American Women’s Everest Expedition.
She has ascended the highest peaks on every continent and also skied to both the North and South Poles. In 2010 at age 44, she completed the Adventure Grand Slam by reaching the summit of Mt. Everest, having fallen only 200 feet short in her previous attempt in 2002. Today she’s an inspirational speaker, and certainly an inspiration to us Frosties!
Here’s a video with clips from some of her speaking engagements:
Raynaud’s of the nipple most commonly occurs in pregnant or breastfeeding mothers, but can also occur in women who have never been pregnant. Like Raynaud’s in other parts of the body, it is a condition that can usually be managed and, when triggers can be avoided, the vasospasm events will reduce or stop.
Women who have Raynaud’s of the fingers and toes may develop Raynaud’s of the nipple when they become pregnant or start to breastfeed. This does not happen to all women with Raynaud’s in other body parts, but these women should be aware of this condition, and should take precautionary measures where possible. [Read more…]
I have not had a single attack since I started on time release nitroglycerin tablets. Before that? The queen of the rainbow.
My first noticeable issue with Raynaud’s was in the early 80’s and my doctors kept telling me I must have frozen my feet and fingers. I’ve lived on niacin for years being the mainstay. My plan is not to let an attack continue over 30 minutes due to damage that could happen (and has). So a winter walk meant fast-acting niacin in my pocket, besides all the other 9-1-1 things to do.
When I was a teenager my parents and I noticed how sensitive my fingers were to the cold. One day my mother got nervous I was going to lose my fingers because they all turned white and I told her they went numb on me.
She had me go to the doctor who did some tests. I remember he had me put my hands in ice water for about 5 minutes and then he examined them. That was not fun. 🙂 He determined I had Raynaud’s. [Read more…]