By raising your hand, you show your support for the 30 million Americans who are affected by rare diseases. Lundbeck Inc., a Rare Disease Day Partner, announced the launch of a campaign to raise funds for rare disease research in conjunction with Rare Disease Day.
Rare Disease Day is an annual event observed worldwide on the last day of February each year. The purpose of this day is to raise awareness of rare diseases as a public health issue.
In the U.S., a rare disease is defined as affecting fewer than 200,000 people. There are nearly 7,000 rare diseases affecting nearly 30 million Americans. In other words, as many as one in ten Americans are suffering from a rare disease. [Read more…]
Thanks to the positive response from our members, we’ve recruited our test group for these socks. We’ll be requesting more testers for additional products in the future, so please keep watching the site for new announcements.
Checks continue to come in from our fundraising campaign. Thanks to all of our supporters these past few weeks. Between our recent fundaising mailing and the donors responding to our onsite challenge, we raised a total of $1,860 – over three times our goal! [Read more…]