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#10896
LoisDLoisD
Moderator

Dear Outabout,

Thanks for the post, and sorry you have had a rough time this past year. To answer your question about the diagnosis. Your doctor most likely diagnosed Raynaud’s by observing the color changes and tissue damage to your cuticles, not sure, however, there is no formal test for Raynauds, so the MD bases it on what he sees.

It appears that the IV drug you were given prior to your diagnosis fights infection, but does not help rebuild circulation. Again, assuming that’s what he means when using the phrase(lack of energy). One drug that is used to do that in severe cases is iloprost, also given IV in the hospital.

The doctors at Johns Hopkins are excellent and the game plan they’ve mapped out sounds like a good one. You’re in good hands now!

Best of luck to you and keep us posted,

LoisD