Reply To: Hi- I am also new.

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#5147
Rachelrachel
Moderator

Hi clk2137. I’ve learned that most people who have primary Raynaud’s are diagnosed in their late-twenties/early-thirties, so you aren’t alone in that regard. I was diagnosed at 29 as well. I’m sorry that it took so long for you to find a doctor who would listen to your concerns.

I am not taking medications so I can’t address that. But I can address the occasional fear that comes with your hands and feet changing colors and losing feeling. And the frustration that comes when friends are unaware and/or unsupportive. Suffice to say, it gets easier. The more you learn about your own body’s triggers, the more peace of mind you may have. Maybe try tracking your triggers/episodes for awhile.

And the more we talk about Raynaud’s to others, the more people will be aware of what it is and what we face.

Best.