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#5383
Kr486Kari Anne
Participant

Hi Gary,

I lived in the Dakotas at the time. Since my original post I have only gotten worse. I have been to dozens of doctors, each of whom knew even less than I do about the procedure and it’s adverse side effects. I’ve had to become my own expert on it.

I am permanently disabled, especially in the upper right extremity from the T2-T4 bi-lateral sympathectomy, where I have also developed another known side effect called Reflex Sympathetic Dystrophy (RSD – aka The Most Painful Chronic Disease). I have problems from the neck down, which vary from shooting pain, burning pain, tingling, numbness, a feeling of glass in my elbow, etc. I have intercoastal nerve pain around the rib cage. I’ve also lost all the muscle in my body now and that’s just the tip of the iceberg.

One of the most in depth resources I’ve found which explain all of the post surgical symptoms I’ve experienced is the Corposcindosis Wiki . Corposcindosis refers to the “split-body” syndrome patients are left with after the surgery, trying to accommodate two opposite conflicting needs (e.g. can’t warm hands/feet while trunk of body feels trapped in a sauna). Having lived in both cold and hot areas of the country, I can say that some of those symptoms are less pronounced in colder climates.

I urge you to review how ETS effects the different systems in your body. If I had been informed, I would’ve never let the surgeon talk me into it. Missing a finger would’ve been so minor compared to spending the rest of my life in constant pain, stuck in my home on multiple medications just to get through the day.

Another important fact worth mentioning – the country of sympathectomy’s birthplace, Sweden, outlawed the surgery due to the disabling side effects in patients. Funny how doctors never mention something so important! Just know that if you do decide to gamble with your entire body to try an improve Raynaud’s symptoms, what comes in the months and years after is forever. There is no going back, and nothing the doctors can do.

I wish you the best of luck in whatever decision you make, and hope I have answered some of your questions. If you have anymore, please don’t hesitate to ask!