Another newbie!

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  • #5203
    Wevrldywevrldy
    Participant

    Hello everybody!  I’m happy to find this place!  I was diagnosed with Raynauds 2 months ago – finally!  After being poked, prodded, having multiple physicians shake their heads and say “I don’t know what it is”, I found the cause for the dark red spots I developed on the tips of my toes last February!  They were not a rash (as some thought).  They were not part of embolic phenomenon (as others thought).  As soon as I was put on the vasodilators, I could feel flow return to my feet and hands!  Amazing….After a couple of increases in meds, I have lost the burning pain and developing neuropathy in my feet!  Can’t stand AC (which is too bad since we are living in the south at this time!).  I might look silly dressed in sweatshirts and sweatpants inside my home while it’s 90 degrees outside, but that’s OK.  I’ve learned to wear a long sleeved shirt whenever I go into the grocery store.  I hope this relief will last…

    Martha

    #5206
    SarahSarah
    Moderator

    Hello Martha, welcome to the forum. Thanks for posting about your experience with Raynaud’s. I’m glad you found a doctor who was able to diagnose and treat you.

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