anybody experience muscle-weakness with Reynaud's?

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  • #11647
    AnnaAnna
    Participant

    Hi there!

    I have had primary Reynaud’s for decades, most of my life (I am 65), and also for decades I have a symptom I never hear discussed. I like to walk/hike in cold weather and have been able to manage my Reynaud’s using hand warmers but I find them necessary only if it is near freezing outside. Otherwise exercise warms me up and I often walk for an hour or more in 50 degree weather comfortably with no gloves. My strange symptom is that, once my body is warmed up, I don’t feel cold in my fingers (they look pink and rosy with health) but they become so weak that turning a key in a door or unbuttoning pants or jacket is near impossible. They do not hurt and I become aware of the weakness only when I try to do something with my fingers. Once I heat up my hands for a few minutes, ideally with a hot tub soak, all my finger strength comes back right away. I call it my little ALS. Otherwise I am quite healthy and have no other complaints as I have learned how to live with Reynaud’s and enjoy being outside in winter. Is anyone else is affected this way?

    #11653
    LoisDLoisD
    Moderator

    Dear Anna,

    Welcome to this forum! I can only speak for myself, but I have not experienced weakness after an attack as you have described. I have had secondary Raynauds for over 30 years. The problem I have after recovering from an attack is that of stiffness and a lack of dexterity. I’m hoping others will jump in and share their experiences with you.

    However, I would recommend that you see a Rheumatologist to be fully evaluated.

    Best of luck and thank you for your post,

    LoisD

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