At what age did you develop Raynaud's? Is it Primary or Secondary?

Home Forums Questions and Answers At what age did you develop Raynaud's? Is it Primary or Secondary?

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  • #3579
    SarahSarah
    Moderator

    Primary Raynaud’s, the most common type, is not linked to another underlying medical condition or disease. There is no apparent cause for the phenomenon to occur. Primary Raynaud’s is not usually “disabling” in the typical sense, but sufferers can experience great discomfort and pain – requiring lifestyle adjustments to minimize exposure to cold and stress.

    Secondary Raynaud’s is the term used when Raynaud’s is associated with another medical condition or disease, often of a rheumatic nature such as scleroderma (also known as systemic sclerosis), lupus (systemic lupus erythematosus) and rheumatoid arthritis. Often, Raynaud’s symptoms are the first sign that such an underlying connective tissue disease exists. Patients with the secondary form are more likely to suffer more serious problems from Raynaud’s, such as skin ulcers (which can cause serious long-term damage to the blood vessels), or even gangrene. Some workers have been known to develop Raynaud’s because of prolonged use of vibrating tools. This form is secondary to a condition known as Vibration White Finger.

    From FAQ

    #3580
    SarahSarah
    Moderator

    I was 28 when I first developed Raynaud’s. I was pregnant with my first child. Systemic lupus was diagnosed several months after the delivery. Twenty years later I was also diagnosed with limited scleroderma.

    #4130
    Littlemissshylittlemissshy
    Participant

    i suffer from primary raynauds and was diagnosed earlier this year, but i have had it for at least a year already. i am yet to recieve my first rheumo app which takes place nxt thurs… with the amount ofsymptoms i have it is highly possible i have something else. i was 11/12 when i developed it, which was 2010/11/12….im not sure what symptoms are normal, but i have a loooonggg list!! haha, all the best x

    #5329
    VickiVicki
    Participant

    I was diagnose with Raynauds when I was about 5 years old so I have been living with it for over 20 years. I was being monitored for Lupus for quite a long time but recently been given the all clear.

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