February 5, 2013 at 7:04 pm #3553aftertheteacupsParticipant
Hi! I am cross posting this from a different forum I belong to in hopes of getting some answers. I used to belong to the other Raynaud’s forum but now that’s it moved I’ve reregistered.
I have had Raynaud’s since I was a small child (so about 15 years). I also get an “inverse” of Raynaud’s where my hands and feet get uncomfortably hot, itchy, red, and puffy. I think this may be erythromelalgia, but I am not positive.
Anyway, list night I had mild Raynaud’s on a few toes, which went away on its own once I was out of my car and warm. One of the toes affected was my middle toe on my left foot.
Today, at work, I realized that the middle toe on my left foot felt like it had Raynaud’s, but I know my body and I know it was unlikely that I was having an attack while I was warm, wearing boots and socks, and inside all day. The only way that would happen would be if I was super stressed, which I wasn’t. I was busy though, so I just ignored my foot and tried not to focus on it.
When I got home, I realized that my toe was red, swollen, and warmer to the touch than my other toes, but it felt like I had Raynaud’s. I thought maybe my boot had aggravated it, so I figured it would go away as my feet “aired out.” But it has been four hours since then, and my toe is still warm, red, swollen, but feeling “tingly” and weird like it does when I have Raynaud’s.
Any idea what might be going on? Thank you, everyone!
Edit: I also want to add that it isn’t nearly as red or hot as when I get attacks that I think might be erythromelalgia. This seems to be some type of weird, in between hybrid of the two that I have never experienced before!
February 6, 2013 at 6:01 pm #3566KarenModerator
- This topic was modified 7 years, 7 months ago by aftertheteacups.
Glad to see you found us on our new site, aftertheteacups!
Your initial symptoms do coincide with erythromelalgia, but since Raynaud’s attacks are an exaggerated response to cold, you shouldn’t be experiencing warmth until the blood flow is restored to an area that is affected. Also, people do have different symptoms, different intensities or duration of an attack, so maybe your warming stage lasts longer than others with Raynaud’s disease or phenomenon.
Perhaps you could be seen by your physician to get more information on what’s going on. Taking photos of the area(s) in question to your appointment will also help your doctor see what you’re, or, have been exhibiting.
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