I was recently diagnosed. I have another rare disease and I’m trying to figure out which to attribute my new symptoms to and was wondering if you guys experience anything similar with Raynauds. I have constant tingling in my feet and legs. It is accompanied by weakness and sometimes unsteadiness. They both started at the same time and have gone on for 3 weeks. Thanks in advance 🙂
Hi HilaryAkin, the tingling could definitely be Raynaud’s related. Generally Raynaud’s symptoms are limited to the extremities, so it would explain the issue with your feet, but not necessarily the full leg.
As for weakness and unsteadiness, that’s not something we often hear from people with Raynaud’s, but if you’re losing feeling in your feet (extremities can “fall asleep” or go numb), it could make you somewhat unsteady. Regarding the weakness, we had a recent post from another Frostie saying she loses energy during transition seasons and was wondering if it’s related to her Raynaud’s. Here’s the post with our response: https://www.raynauds.org/discuss/topic/temperature-changes-and-lack-of-energy/
Since your Raynaud’s appears to be secondary to another more serious disorder, you may be on medication that works to open your arteries so the blood flows more freely (calcium channel blockers). These drugs can also lower your blood pressure which could possibly explain the weakness.
Would suggest discussing your experience with a rheumatologist just to be sure. Hope you’ll come back and share what you learn!