I have joined here in the hope of finding others with children with Reynauds, and tips and strategies to help her.
My daughter is 10 and only recently diagnosed. She is having really frequent attacks, despite it being summer here in Australia.
This past weekend she had at least 10 episodes, despite the days ranging from 26 -39 degrees Celsius. She did swim, but the water temp was warm.
I’m dreading how she will go in the winter and at school, where they are encouraged to play outside no matter the weather.
How do other children manage with their Reynauds?
Thanks in advance
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