Hi, my name is Jackie, and I have Raynaud’s Disease.
I’ve had the condition for years, but it didn’t start getting truly uncomfortable until about five (or so) years ago. And, milestone, this has been the first year where I’ve had episodes not just daily but multiple times daily. It’s so incredibly frustrating and, at times, painful. (I’m typing this entry with gloves on. Sheesh.)
My husband is incredibly supportive, which is a true blessing. So is the rest of my family and many of my friends — they may not “get” it, but they see my fingers and toes go frostbite-yellow and then corpse-purple. (I’m a writer; can you tell?)
I remember the first time I had an episode during taekwondo class, and one of my classmates looked at my toes and said, “What’s wrong with your feet???” I told him I had Raynaud’s, and he took a step back. He asked, “Is it contagious?” I waved my foot at him and said “Booga booga.” (Actually, I just told him nope, not contagious, but a neat party trick.)
Yes, I do taekwondo. I’m a black belt, as are my husband and sons. (The family that kicks together sticks together!) When I went to a vascular specialist two years ago to have my condition officially diagnosed (primary, yay), he told me that the repeated impact on my hands and feet aren’t helping my Raynauds. Maybe not, but I think the exercise helps way more than it hurts.
Anyway, hello, howdy, and how are you. Looking forward to catching up on the posts and reading the articles.
And it’s nice to know there’s a community out there who “gets” it.