Hello – have had for over 40 yrs

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    Hello everyone,

    Hope you are all doing well during this crazy time.

    I am almost 55 and have had Raynauds (secondary) since about 14 yrs old. Wasn’t too much of a problem until the last 15 yrs or so. It is really bad these days. So much so that I am considering moving from NY down south in a couple of years. I was able to not get any ulcers on my toes last year by being extremely vigilant but it took a lot of work. About 12 yrs ago I had ulcers on my toes that were heading towards necrosis. At the time we had a company Dr in our building that we could go see any time (how I miss those days). He took one look and said “I don’t like the way those look” and he told me to come back down to see him every day for a while until he was sure they were getting better. That scared me so I tried to be more careful after that. Still got ulcers almost every year but never let them get nearly that bad again.

    I have lots of other medical conditions which I won’t get into but my daughter, niece, mother and cousin also have Raynauds (and my son started looking like he was getting but never progressed much). We have lots of auto-immune, connective tissue and other disorders in the family, but the worst thing for me is migraines that I have also had since about age 14.

    I’m going to ask a few questions in another post but just wanted to introduce myself.

    Take care,

    Lynn WundermanFrostie

    Welcome BC2, glad you found us! I can identify with the toe issues, went through a bad time with toe ulcers myself. At least you were aware of the cause and how to manage it. I had no idea what was causing it and had a difficult time getting properly diagnosed. Glad your symptoms are better, but sorry for the challenges!

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