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  • #11270
    KellKollmanKellKollman
    Participant

    I’m one of the few men that has Raynaud’s.

    It took a while to finally get diagnosed with it. I’ve been dealing with pretty bad symptoms for about 11 years, but had some slight symptoms when I was a kid.

    I found that whenever I get my body temp up high enough, my symptoms temporarily go away. I also found that if I do something that enhances my balance, it can mitigate my symptoms. Altogether I’ve documented more than 20 ways that can temporarily mitigate my symptoms to a greater or lesser degree.

    And my current doctor won’t even acknowledge the problem.

    And I’m having a bad winter.

    So I’m here for some help.

    #11279
    GregoryDGregoryD
    Participant

    I found out about 10 years ago when I was 58/59 after dealing with Raynauds all my life what it was from a friend who had it and saw my white fingers one day when I came in from the cold. He also had Raynauds and went to the Emergency Room 3 or 4 times before a Doctor familiar with Raynauds knew what it was. When I told my Doctor about it he didnt know either but researched it to find out. I find as I’m getting older its getting worse but I dont let that stop me from living the way I want to.

    Greg

    #11283
    LoisDLoisD
    Moderator

    Dear Kellkollman,

    Thank you for your post and I am sorry you are having a bad winter. I’m very impressed that you have found over 20 ways to diminish your symptoms. Would you be willing to share more of those ideas here?

    Regarding your physician’s lack of help have you considered seeing a Rheumatologist? They will certainly take your symptoms more seriously.

    As you probably know, there is no cure. However,I can share a few things that have helped me over the years.

    1. Medication. It’s not for everyone but I have been taking Nifedipine for years with good results. It does not eliminate the symptoms, however, it lessons them so that I do not have to worry about frostbite or severe skin infections.

    2. Dressing warmly for all seasons. I always carry a sweater and light gloves in warm months (air conditioning). I wear layers in cold months including hats, scarves and gloves. I have many different weights of gloves in order to be prepared for all kinds of weather.
    3. Handwarmers, these are relatively inexpensive and can be used inside your gloves if you can’t avoid the cold.

    Hope this helps, please keep us posted.

    LoisD

    #11346
    KellKollmanKellKollman
    Participant

    Hi Greg and LoisD!

    I’ve gotten tired of the Raynaud’s holding me back. It’s keeping me from doing what I want. This needs to be fixed. These Doctors are raking in the insurance money from not fixing it. My Doctor doesn’t even pronounce it right. He calls it ‘Raynards’.

    I was tested for Rheumatoid and a couple of other things at one point, but it came back negative.

    I’ll definitely post up what I’ve found. I’ve been wanting to write it all out for a while. Now’s a good time. I’ll work on that this week.

    Thanks for being here,

    Kell

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