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  • #5089
    Kareliakarelia
    Participant

    Hi! I’m Karelia and I have fibromyalgia, among other things, and Raynaud’s is one of the issues I deal with regularly. My hands and feet (but more the hands) get so cold sometimes the bones actually ache.

    I’ve also found I will have random swelling (which makes wearing my wedding rings hard and that makes me sad) without warning. This past winter I have had multiple attacks of chilblains. too.

    I’m glad I found this forum and hope it helps me deal with this frustrating condition.

    #5091
    JudithJudith
    Participant

    Hi Karelia. Have you seen a rheumatologist? Swelling is not a typical symptom of Raynaud’s but it can be a symptom of an underlying condition that causes Raynaud’s, so it might be a good idea to be evaluated by a rheumatologist.

    #5092
    Rachelrachel
    Moderator

    Hi Karelia,

    Judith is spot on. I actually had my first bout with chilblains this winter too! I was scared the swelling was a sign of rheumatoid arthritis. Fortunately I have some great doctors and after some tests was able to rule that out and confirm it was just chilblains.

    I hope you’ll keep posting and coming back to the forum for support!

    Rachel

    #5094
    Kareliakarelia
    Participant

    I haven’t been to a rheumatologist for any of these issues. I went to one in October 2008 to try to get a fibromyalgia diagnosis but she was sadly more interested in fat shaming than helping, so my primary care doctor diagnosed it and treats me for it.

    I have, however, been tested for a wide spectrum of AI diseases, as I already have one (Hashimoto’s) and I know that increases the risks of others developing. The tests were all normal, which doesn’t rule out everything but at least makes it less likely.

    #5096
    Rachelrachel
    Moderator

    I’m glad, Karelia, that you have found a supportive primary care doctor. Maybe try finding a new, more supportive, rheumatologist. They’re the experts when it comes to Raynaud’s.

     

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