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    LSWLarry
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    Hi!

    My name is Larry. I have had Raynaud’s for I do not know how long. I believe, at least, since my mid-30s. I discovered what it was from my landlord when I was in my late 30s. I remember one experience right around this time that drove home to me how bad it really was. My landlord invited me to a baseball game – a free ticket. It was April in Maine. I hesitated on going because of the coolness my poor limbs would be exposed to, brrrr!!!! Anyway, I went. Big mistake! Temp. was somewhere in the upper 50s. I was dressed like a teddy bear. I had at minimum 4 layers of clothing on. I couldn’t have been dressed warmer. I must have looked like someone who had never left the deep tropics, who, in fearful anticipation of an arctic expedition, well, down winter jacket, hood, winter hat, scarves, heavy socks, boots, several pairs of thermal underwear… Within 15 minutes of sitting down, I was chattering uncontrollably. Raynaud’s in my limbs had onset. Another 15 minutes, I felt like a block of ice. I was counting every minute and saying to myself, when will it be over, when will it be over, if I can just survive… I just couldn’t ask him to leave so early. We had just arrived there. Miraculously, it seemed an understated word at the time, I had made it to the end of the game. I had never felt before or since so close to death. My landlord wasn’t feeling cold at all, only had a light spring jacket on, and, unbelievably, a young hot dog vendor was making his rounds in shorts, seemingly unbothered! My feet were totally numb. I can’t explain what it was like walking, no sensation, like walking on swelled up bloated balls. When I got home to my apartment, I did not feel like a human being. I immediately threw layers of covers onto my bed and turned the electric blanket on to 10. I went underneath the covers and scrunched up into a ball for at least an hour shivering and chattering uncontrollably the entire time, like what you would expect from someone going through hardcore drug withdrawal would experience I suppose. It was one of the most hellish experiences of my life – truly.

    I look forward to participating in the forum.

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