July 17, 2020 at 4:09 am #13697tpower50Participant
Lived in Washington State most of my life and cold damp weather occurs many months of the year. My first serious episode of “cold dead hands” as I call it, was when I was 28. It was a cold damp day in October and I was helping a friend move stuff outside when I was struck how my hands were not responding like they use to. Since that day my hands have not been the same, and neither has my joy for playing and enjoying video games because of slow response time of my hands fine motor skills. I’m 40 now, and my symptoms no longer just happen on cold damp days, they can occur on mild summer mornings, evenings, or even in a air-conditioned room. I have endlessly struggled for years to find something anything to keep my hands warm while using a keyboard and mouse or video game controller. Even gone as far as having nerve conduction test on my hands but was told everything is fine according to the test. Hand warmers, finger-less gloves, hands under warm water, and hand strengthening exercises have given me varying degrees of temporary relief but usually within minutes the symptoms of “cold dead hands” return. I have seen a few products in this website store, like Sunloops, that I may try but I wanted to know if there’s anything else out there that may help bring back the joy I once had while enjoying my favorite activity. Thank-you in advance for any responses 🙂July 27, 2020 at 10:38 am #13792FrostieKeymaster
Sorry to hear you’re having issues with hand mobility from your Raynaud’s, and understand how frustrating that can be.
If the solutions you’ve been trying only offer temporary relief, have you talked with your doctor about medication? There are drugs clinically proven to help alleviate Raynaud’s symptoms in the category of calcium channel blockers. May be worth checking to see if you’re a a candidate for these drugs.
Other options for more severe symptoms include the ED drugs and medical procedures called sympathectomies that cut the nerves to the fingers and block attacks. Botox injections are still in trials, but appear promising.
One other suggestion is alternative therapies like acupuncture. These won’t work for everyone, but some people do report success. A lot depends on finding a practitioner you connect with and who has experience with Raynaud’s sufferers.
Hope that helps and that you find some relief!
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