Hi! I am 40 years old and was diagnosed with secondary Raynauds about 2 years ago. More recently I have been diagnosed with Lupus but my doctor thinks I may have CREST (a horrible disorder from what I have googled!!)
I am currently taking a calcium channel blocker but am on the lowest dose (20mg) and I feel like it’s doing nothing to help. I still have attacks frequently throughout the day. I also work out every morning and the pressure from holding weights seems to turn all my fingers white. I spend much of my time between sets just circling my arms to get the blood flowing again.
Hoping to find some support and information as I try to learn to live with this. So far it’s not fun.
Hello Phoebe and welcome to the forum. Thanks for joining the forum and posting.
Your story sounds similar to mine. I take 60mg of the extended release nifedipine for my limited scleroderma. I have been on nifedipine daily for over 15 years. You may want to try a higher dose with your doctor’s approval and see if it helps. Also, you need to have a good rheumatologist who can manage your lupus and Crest.