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  • #5461
    Phoebe1973Phoebe1973
    Participant

    Hi! I am 40 years old and was diagnosed with secondary Raynauds about 2 years ago. More recently I have been diagnosed with Lupus but my doctor thinks I may have CREST (a horrible disorder from what I have googled!!)

    I am currently taking a calcium channel blocker but am on the lowest dose (20mg) and I feel like it’s doing nothing to help. I still have attacks frequently throughout the day. I also work out every morning and the pressure from holding weights seems to turn all my fingers white. I spend much of my time between sets just circling my arms to get the blood flowing again.

    Hoping to find some support and information as I try to learn to live with this. So far it’s not fun.

    #5465
    SarahSarah
    Moderator

    Hello Phoebe and welcome to the forum. Thanks for joining the forum and posting.

    Your story sounds similar to mine. I take 60mg of  the extended release nifedipine for my limited scleroderma. I have been on nifedipine daily for over 15 years. You may want to try a higher dose with your doctor’s approval and see if it helps. Also, you need to have a good rheumatologist who can manage your lupus and Crest.

    I hope to read more of your posts.

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