I have had Raynaud’s disease for as long as I can remember. Ever since I was little my hands and feet have always been cold and my toes have always looked purple. I’ve never really had problems with it, apart from the ‘dead fingers’ (as I call them). When it’s cold outside and I don’t have mittens on my fingers go white and numb and they hurt a lot. That sometimes happens to my toes as well, for example when I’m driving. That’s actually not so safe, now that I think of it.. I also hate being in the fridge areas of grocery stores because I get way too cold very fast. The opposite also happens, I can’t leave a shower without having blood red hands and feet. They sometimes swell and feel heavy when that happens.
I never knew there was a name for this ‘phenomenon’ until my doctor told me this a few years ago. I’m now 20 years old and she has known me for all my life so I guess she knew I wasn’t having too many problems with it so she never told me what it was.
Anyway, I’m happy I found this place and I look forward to sharing experiences with you!
I just wanted to pop in and introduce myself to everyone! My name is Therese and I have had Raynauds Pheonmeon since I was about nine years old. I had gangrene in every finger. Doctors at that time 1965 had to do a unilateral sympathectomy on me which only allows me to perspire on one side, one eye darker/lighter than the other. I am now finding out since the surgery I guess constricts the blood flow and now the blood flow is limited to my brain and eyes. They say I have an a microaneursyms which I did not know until the other day from their testing. I have to go back in a couple of months for more testing. I am interested in purchasing heated gloves, with rechargable battery and etc. Does anyone have any recommendations on who is a good vendor for this??