New member here, have had Raynaud's for all my life

Home Forums Meet and Greet New member here, have had Raynaud's for all my life

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  • #5588
    LafillerevanteLafillerevante
    Participant

    Hello everyone!

    I have had Raynaud’s disease for as long as I can remember. Ever since I was little my hands and feet have always been cold and my toes have always looked purple. I’ve never really had problems with it, apart from the ‘dead fingers’ (as I call them). When it’s cold outside and I don’t have mittens on my fingers go white and numb and they hurt a lot. That sometimes happens to my toes as well, for example when I’m driving. That’s actually not so safe, now that I think of it.. I also hate being in the fridge areas of grocery stores because I get way too cold very fast. The opposite also happens, I can’t leave a shower without having blood red hands and feet. They sometimes swell and feel heavy when that happens.

    I never knew there was a name for this ‘phenomenon’ until my doctor told me this a few years ago. I’m now 20 years old and she has known me for all my life so I guess she knew I wasn’t having too many problems with it so she never told me what it was.

    Anyway, I’m happy I found this place and I look forward to sharing experiences with you!

    #5666
    Tstametststamets
    Participant

    Lafillerevante and Everyone,

    I just wanted to pop in and introduce myself to everyone!  My name is Therese and I have had Raynauds Pheonmeon since I was about nine years old.  I had gangrene in every finger.  Doctors at that time 1965 had to do a unilateral sympathectomy on me which only allows me to perspire on one side, one eye darker/lighter than the other.  I am now finding out since the surgery I guess constricts the blood flow and now the blood flow is limited to my brain and eyes.  They say I have an a microaneursyms which I did not know until the other day from their testing.  I have to go back in a couple of months for more testing.  I am interested in purchasing heated gloves, with rechargable battery and etc.  Does anyone have any recommendations on who is a good vendor for this??

     

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