I’ve had Reynaud’s for at least ten years. I get the usual fingers turning white and going numb but I’m mainly affected by being cold all the time and my feet and hands being especially cold. If it’s really cold outside I feel so cold it actually hurts, not just my hands and feet but my entire body. I don’t even know what it’s like being a comfortable temperature and not having freezing hands and feet unless I’m somewhere really hot on my holidays.
Having a nice warm bath or shower is one of the only times when I can feel my hands and feet properly and not feel cold. However I find that when I first get into a hot shower it’s such a shock that it almost hurts for at least a couple of minutes while I get used to it. Having a hot bath is worse because although being in the hot water really helps warm me up I have to ease myself into the water and it does hurt for a bit. If I have a bath/ shower at warm temperature then I end up still feeling cold and not warming up at all.
This is a typical ‘is this normal?!’ post because I’ve not really seen anyone talk about this specifically… I’ve spoken to my GP but they’ve not been very informative at all. I hope that doesn’t sound ridiculous, it’s just really hard to know how many of my issues are Reynauds related or whether they could be something else!
I know this is an old post, but yes, this happens to me. It is pain, but almost welcome pain…..lol. like it hurts so good because it feels soooooooo hot. A real shock to your system. I can sit in a just pretty warm bath and my whole body is fine, but my hands and feet are on fire!