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Going back to the doctor after your website helped inform me better! by K. M. (Twitter Follower)
Thank you for all of your hard work…your web site has helped me so much. by N.P. (MA)
Your site has been very helpful. Continue to do your good work. by T. B. (CT)
Raynauds.org has been an invaluable resource for my family…I’ve learned so much from your site and it has helped me to better care for my “frostie.” by M.R.
Thank you for the info! First time I have been here, and it’s nice to have the ‘connection’ with others in the world! by J.F. (NY)
So helpful for recommendations of survival tips, product reviews & discounts. Humorous posts to get you through challenging days. This is the only site that speaks to Raynaud’s. by L.C.
I’m so glad I joined this site for your informative educational posts helping me to understand what my children feel. by L. J. (Facebook Fan)
I’d like to take the opportunity to say that I really appreciate The Raynaud’s Association’s website and Facebook posts. by D.R. (OH)
I am so glad I found this website. Please keep me on your mailing and email list. THANK YOU So much! by C.W. (KS)
I am so thankful and happy that I have found the Raynaud’s Association, and I have already learned so much just by reading through the site. Thank you so much for your time and dedication to the awareness of Raynaud’s. by S. C. (AL)
Welcome to the Raynaud's Association
- If your fingertips, toes or any other extremity become painful when exposed to cold temperatures, you might be suffering from Raynaud's phenomenon.
- If holding an iced drink - or putting your hands in the freezer - causes your fingers to turn blue (or white), you could be one of an estimated 28 million people in the US who have Raynaud's phenomenon.
- If air conditioning often triggers your fingers or toes to hurt, you might be experiencing a Raynaud's spasm.
The Raynaud's Association is here to help. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures.
What Is Raynaud's
Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. The disease causes an interruption of blood flow to the fingers, toes, nose, and/or ears when a spasm occurs in the blood vessels of these areas. Spasms are caused by exposure to cold or emotional stress. Typically, the affected area turns white, then blue, then bright red over the course of the attack. There may be associated tingling, swelling, or painful throbbing. The attacks may last from minutes to hours. In severe cases, the area may develop ulcerations and infections, which can lead to gangrene.
Raynaud’s can occur as a “primary” disease; that is, with no associated disorder. It can also occur as a “secondary” condition related to other diseases, such as scleroderma, lupus, and rheumatoid arthritis.
Approximately 5-10 percent of all Americans suffer from Raynaud’s, but only one out of ten sufferers seeks treatment. Both men and women suffer from Raynaud’s, but women are nine times more likely to be affected. Some researchers estimate as many as 20% of all women in their childbearing years have Raynaud’s.
Although it’s been over 100 years since Raynaud’s was recognized, little is still known about the condition, its cause, or its cure. The Raynaud’s Association seeks to raise awareness and understanding of this perplexing phenomenon.
In The News…
We were glad to see Self Magazine cover Raynaud’s this chilly season in an article titled “Raynaud’s Disease: Why Your Hands and Feet Hurt So Badly When They’re Cold.” In addition to covering color changes and symptoms experienced by Raynaud’s sufferers, they do an excellent job of describing the key triggers causing attacks. In particular, […]
We found this video on a site called WarmCool.com titled “10 Amazing Winter Life Hacks” It offers several practical tips for dealing with winter hazards and the cold. Some are more relevant to Raynaud’s sufferers than others, but all are pretty useful. Our favorite? How to turn up the heat in an office where the […]
We’ve seen and tried several heated apparel items over the years, and many are well made and do a good job of keeping Frosties warm. But when you make an investment in a piece of heated apparel, particularly in a jacket, you may find the item doesn’t go with every outfit, or isn’t long enough […]
Dear Friend, In past holiday messages, we’ve shared our progress in educational and awareness-building initiatives that have reached millions of people. We’ve talked about the great need for building awareness of Raynaud’s, as so few (less than 10%) realize their pain and discomfort have a medical explanation. And we’ve lamented the loss of our largest […]
We found a post from Username “Playoutsidegal” on a blog called playoutsideguide.com titled “Cold Feet: Surviving Winter With Raynaud’s.” Like many Raynaud’s sufferers, she’s had the condition from a young age, but was told by parents and teachers she just had poor circulation. Finally a doctor witnessed her symptoms years later and diagnosed her properly. The […]
Don’t know if there’s any science behind these exercises, but they appear to at least warm up the body in ways that could send more blood to the extremities. Let us know if they work for you!
Hope you’re staying warm this season! To help you manage the chills this time of year in Minneapolis, we wanted to make you aware that Warm Skin, a cold protection cream manufactured by one of our Corporate Sponsors, is now available at two Target stores in Minneapolis: 900 Nicollet Mall (Flagship store next to Corporate […]