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When I was diagnosed with Raynaud’s, my Doctor provided very little information about the disease, or how to live with it. Upon searching online, I found the Raynaud’s Association to be the best source for information and support. by J.W.
The Raynaud’s Association was my sanity saver!…It helped me and my doctor diagnose my Raynaud’s and continues to be my authoritative resource! The support I receive has been absolutely amazing! by A. M. (Facebook Fan)
Just discovered your organization…looking forward to learning more as my feet move from annoying to painful at times. Thanks so much for being there. by C.G. (WA)
Helps me not feel like I am not alone, gives me a way to stay connected to new products & the newest medical findings, or new medical ways to treat Raynaud’s. by Anonymous
Great resource! Incredible experience and caring people. by K. (Twitter Follower)
I am glad I found this site, and you, and now I have some hope and at least I can talk to people that have this…OMG! Thanks so much you’re a lifesaver… by S.F. (Facebook Fan)
I’m so glad to have discovered this group because I feel like you people here are my 7400 new best friends. Nobody else “gets it!” by L. G. (Facebook Fan)
I was just diagnosed and found your site. It’s very helpful!!! by K.M. (Canada)
Has been a very informative group. Prior to them – there was no one that talked about it and ways to help. Thankful they are out there with tips and information needed! by Anonymous
Thank you! The Association was THE resource after I was diagnosed!…enjoy your newsletters…always recommend your site to fellow sufferers and curious friends. by A. M. (Facebook Fan)
Welcome to the Raynaud's Association
- If your fingertips, toes or any other extremity become painful when exposed to cold temperatures, you might be suffering from Raynaud's phenomenon.
- If holding an iced drink - or putting your hands in the freezer - causes your fingers to turn blue (or white), you could be one of an estimated 28 million people in the US who have Raynaud's phenomenon.
- If air conditioning often triggers your fingers or toes to hurt, you might be experiencing a Raynaud's spasm.
The Raynaud's Association is here to help. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures.
What Is Raynaud's
Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. The disease causes an interruption of blood flow to the fingers, toes, nose, and/or ears when a spasm occurs in the blood vessels of these areas. Spasms are caused by exposure to cold or emotional stress. Typically, the affected area turns white, then blue, then bright red over the course of the attack. There may be associated tingling, swelling, or painful throbbing. The attacks may last from minutes to hours. In severe cases, the area may develop ulcerations and infections, which can lead to gangrene.
Raynaud’s can occur as a “primary” disease; that is, with no associated disorder. It can also occur as a “secondary” condition related to other diseases, such as scleroderma, lupus, and rheumatoid arthritis.
Approximately 5-10 percent of all Americans suffer from Raynaud’s, but only one out of ten sufferers seeks treatment. Both men and women suffer from Raynaud’s, but women are nine times more likely to be affected. Some researchers estimate as many as 20% of all women in their childbearing years have Raynaud’s.
Although it’s been over 100 years since Raynaud’s was recognized, little is still known about the condition, its cause, or its cure. The Raynaud’s Association seeks to raise awareness and understanding of this perplexing phenomenon.
In The News…
We were glad to see Self Magazine cover Raynaud’s this chilly season in an article titled “Raynaud’s Disease: Why Your Hands and Feet Hurt So Badly When They’re Cold.” In addition to covering color changes and symptoms experienced by Raynaud’s sufferers, they do an excellent job of describing the key triggers causing attacks. In particular, […]
We found this video on a site called WarmCool.com titled “10 Amazing Winter Life Hacks” It offers several practical tips for dealing with winter hazards and the cold. Some are more relevant to Raynaud’s sufferers than others, but all are pretty useful. Our favorite? How to turn up the heat in an office where the […]
We’ve seen and tried several heated apparel items over the years, and many are well made and do a good job of keeping Frosties warm. But when you make an investment in a piece of heated apparel, particularly in a jacket, you may find the item doesn’t go with every outfit, or isn’t long enough […]
Dear Friend, In past holiday messages, we’ve shared our progress in educational and awareness-building initiatives that have reached millions of people. We’ve talked about the great need for building awareness of Raynaud’s, as so few (less than 10%) realize their pain and discomfort have a medical explanation. And we’ve lamented the loss of our largest […]
We found a post from Username “Playoutsidegal” on a blog called playoutsideguide.com titled “Cold Feet: Surviving Winter With Raynaud’s.” Like many Raynaud’s sufferers, she’s had the condition from a young age, but was told by parents and teachers she just had poor circulation. Finally a doctor witnessed her symptoms years later and diagnosed her properly. The […]
Don’t know if there’s any science behind these exercises, but they appear to at least warm up the body in ways that could send more blood to the extremities. Let us know if they work for you!
Hope you’re staying warm this season! To help you manage the chills this time of year in Minneapolis, we wanted to make you aware that Warm Skin, a cold protection cream manufactured by one of our Corporate Sponsors, is now available at two Target stores in Minneapolis: 900 Nicollet Mall (Flagship store next to Corporate […]