Thanks to all of our members, fans and followers who posted positive reviews on the Great Nonprofits web site, we made the list of 2018 Top Rated Nonprofit Organizations! Here’s what the award is all about: The GreatNonprofits Top-Rated Awards is a people’s choice award where volunteers, donors, and people served cast their vote in the […]
Glad I found a site that may offer a little more information for me about Raynaud’s and ways to manage this. by T.V. (Facebook Fan)
This site has helped me a lot and I wanted to know if I could put a link to it on my web site…I think it is important to spread the good news about your site. by T.B. (NY)
…So happy I found this page – thanks for being here. by J.R. (Facebook Fan)
…This site is great for information…I love this site and the people here I can share myself with. by M.D. (Facebook Fan)
I’m so glad to have discovered this group because I feel like you people here are my 7400 new best friends. Nobody else “gets it!” by L. G. (Facebook Fan)
I want to thank you for the knowledge and resources you continue to provide…this organization has played a big role…so I say thank you. by L. S. (Facebook Fan)
I’m very grateful for your Facebook page as I feel like I’m not alone as I have never met anyone else with Raynaud’s. by N.J. (Africa)
I am pleased to discover the wealth of resources on your website…I appreciate the important work you are doing, and I look forward to exploring your resources more fully. by S.S. (NC)
This site is really helpful to those new with this rare condition like me. Health providers don’t really understand
what Raynaud’s syndrome or the cause of it, again thank you for this Associatio n. by J.W. (Facebook Fan)
Thank you so much for your efforts in raising awareness about Raynaud’s…it’s great to have a site like yours to go to when I need advice and tips : ) by S. S. (Facebook Fan)
Welcome to the Raynaud's Association
- If your fingertips, toes or any other extremity become painful when exposed to cold temperatures, you might be suffering from Raynaud's phenomenon.
- If holding an iced drink - or putting your hands in the freezer - causes your fingers to turn blue (or white), you could be one of an estimated 28 million people in the US who have Raynaud's phenomenon.
- If air conditioning often triggers your fingers or toes to hurt, you might be experiencing a Raynaud's spasm.
The Raynaud's Association is here to help. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures.
What Is Raynaud's
Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. The disease causes an interruption of blood flow to the fingers, toes, nose, and/or ears when a spasm occurs in the blood vessels of these areas. Spasms are caused by exposure to cold or emotional stress. Typically, the affected area turns white, then blue, then bright red over the course of the attack. There may be associated tingling, swelling, or painful throbbing. The attacks may last from minutes to hours. In severe cases, the area may develop ulcerations and infections, which can lead to gangrene.
Raynaud’s can occur as a “primary” disease; that is, with no associated disorder. It can also occur as a “secondary” condition related to other diseases, such as scleroderma, lupus, and rheumatoid arthritis.
Approximately 5-10 percent of all Americans suffer from Raynaud’s, but only one out of ten sufferers seeks treatment. Both men and women suffer from Raynaud’s, but women are nine times more likely to be affected. Some researchers estimate as many as 20% of all women in their childbearing years have Raynaud’s.
Although it’s been over 100 years since Raynaud’s was recognized, little is still known about the condition, its cause, or its cure. The Raynaud’s Association seeks to raise awareness and understanding of this perplexing phenomenon.
In The News…
For Raynaud’s Awareness Month this October, we’re launching a new campaign titled “Don’t Turn a Cold Shoulder to Painful Fingers.” We’re urging sufferers, plus their doctors, friends, family and co-workers not to dismiss the pain Raynaud’s sufferers endure. How many Frosties have been told by their physicians “move to Florida” or “just stay warm,” without further […]
The same day we published the article “Workers Are More Productive in Warmer Offices” the New York Times published one titled “Can an Office Temperature Be ‘Sexist’? Women, and Science, Say So.” The issue was sparked by the New York Gubernatorial race debate between Andrew Cuomo and Cynthia Nixon. Prior to the event, Ms. Nixon […]
Finally some hard research to take to the boss as defense against freezing summer temps: Workers are more productive in warmer offices. That’s not just for Raynaud’s sufferers, it’s all workers! For years we’ve heard a theory that workers are more productive in cold environments, but research has proven the opposite to be true – […]
Research linking estrogen to blood flow indicates there may be a connection between estrogen and the development of Raynaud’s phenomenon. If true, it would explain why the incidence of Raynaud’s among women is significantly (nine times) higher than found among men. The study titled “G-protein coupled estrogen receptor-mediated non-genomic facilitatory effect of estrogen on cooling-induced […]
VeryWell Health recently published an article titled “Natural Remedies for Raynaud’s Phenomenon.” You would expect from the title that they were publishing a list of supplements and natural treatment options for Raynaud’s, but just the opposite. The article states upfront that “there is a lack of scientific support for the use of remedies in the […]
Forget Cross Fit, HIIT (high-intensity training), and VBarre, the new workout craze freezes your way to fitness, and the boutique studio in New York City that founded the concept is appropriately called Brrrn. Makes a Raynaud’s sufferer shiver just to think about entering a 45 degree gym that feels like a refrigerator! Many of the […]
A study conducted at the University of Otago in New Zealand concluded that lab workers exposed to solvents are at risk for Raynaud’s phenomenon. While toxins (including chemo) have been known to be a potential factor associated with Raynaud’s for many years, this study from 2011 claims to be the first linking work conditions involving […]