Raynaud’s Association, Inc. has created this privacy statement in order to demonstrate our firm commitment to privacy. WE WILL NOT RENT, SELL OR SHARE YOUR PERSONAL INFORMATION WITH THIRD PARTIES WITHOUT YOUR PERMISSION.

The following discloses our information gathering and dissemination practices for this website, www.raynauds.org.


In designated members’ areas, we use session information which is stored as a cookie. Cookies are a feature of web browser software that allows web servers to recognize the computer used to access a website. The cookie is only in existence as long as the browser is on and should make your online experience easier and more personalized.

We use cookies to enhance your communications with Raynauds.org – for example, recognizing a past user’s browser to eliminate logging in to the Discussion Forum with each visit.

You do have choices with respect to cookies. By modifying your browser preferences, you have the choice to accept all cookies, to be notified when a cookie is set, or to reject all cookies. If you choose to reject all cookies you may be unable to use those web site services that require registration and membership in order to participate, such as Discussion Forum posts, Blog article comments, and future site features.

Our site’s Member Information Form and Registration Form require users to give us contact information (like name and email address). We use member contact information from the Member Information Form to send users our quarterly newsletter, along with news and information about our organization. The member’s contact information is also used to contact a visitor when necessary. Users may opt-out of receiving future mailings; see the choice/opt-out section below.

Services and Links

We use Paypal’s and Stripe’s services for our online donation transactions. You can read their privacy policies and security information at PayPal Privacy Statement and Stripe Privacy Statement.

This site contains links to other web sites that provide medical and product information that may be useful to our users. The Raynaud’s Association is not responsible for the privacy practices or the content of these web sites. Users who choose to visit these third party sites are advised to review their privacy policies.

Public Forums

This site may make message boards available to its users to facilitate the sharing of questions and information that can be of value to other users.  Please remember that any information that is disclosed in these areas becomes public information and you should exercise caution when deciding to disclose your personal information.  We discourage the public sharing of personal contact information in these areas.


Users of this web site should not receive any contact by postal mail or email unless they’ve given us express permission. Should users receive unwanted mail or email from us, the Raynaud’s Association gives users the following options to request removing their information from our database and not receive future communications.

You can send an email request to info@raynauds.org

You can send a postal mail request to the following address:

Raynaud’s Association, Inc.
11 Topstone Road
Redding, CT  06896

Sharing of Information

Except as described below, the Raynaud’s Association does not release personally identifiable information to third parties without your consent.

We use other companies and individuals to perform functions on our behalf. Examples include, but are not limited to payment processors for online donation services and email service providers who assist in our newsletter mailings. These trusted third parties have access to personal information needed to perform their functions, but may not use it for other purposes.

As the Raynaud’s Association continues to grow, we may have an opportunity to merge with other Raynaud’s related groups. In the event of such a transaction, member information generally is one of the transferred assets. The Raynaud’s Association may also release personal information when we believe, in good faith, that releasing the information is necessary to comply with the law, enforce or apply the terms and conditions of our user agreements, or protect the rights, property or safety of the Raynaud’s Association, our users or others.

Your Consent

By using our web site you consent to our collection and use of your personal information as described in this Privacy Policy. If we change our privacy policies and procedures, we will post those changes on our web site to keep you aware of what information we collect, how we use it, and under what circumstances, if any, we disclose it.


Use this form for changing and modifying information previously provided.

Contacting the Web Site

If you have any questions about this privacy statement, the practices of this site, or your dealings with this web site, you can contact:

Lynn Wunderman
Raynaud’s Association, Inc.
11 Topstone Road
Redding, CT  06896