When it comes to living with Raynaud’s, most physicians will advise Raynaud’s sufferers that the best treatment is to avoid the cold. That’s easier said than done, however.
To date, there is no cure for Raynaud’s. Treatments and medications have improved in recent years, but for many sufferers such measures only “take the edge off” the severity of the pain.
In cold climates, we still have to step outdoors to get to work, shop, and attend to our daily chores. There’s no escape in warmer climates either, where air conditioning is often kept at frigid temperatures in stores, offices, schools and other public places. And many of us enjoy outdoor activities and sports; and we don’t want to give these up.
Family members, friends and co-workers may not appreciate how painful Raynaud’s attacks can be. They may resent your requests to shut the door, close the windows, and turn down (or turn off) the air conditioning. They may tease you about wearing gloves and other warm gear when the weather is so mild (to them, that is!).
So awareness isn’t just about reaching the Raynaud’s sufferer. It’s also about educating the public about the disorder, changing attitudes, and enlisting their support. And, ultimately, we need to spur researchers and pharmaceutical companies to step up their efforts to find better treatments – and a cure.
This website offers many strategies for coping with Raynaud’s. We promise credible information (backed by a Medical Advisory Board known worldwide for their Raynaud’s expertise).
Association resources that offer warmth and comfort to people living with Raynaud’s include:
- FAQ’s – Answers to “Frequently Asked Questions” commonly asked by newly-diagnosed patients, their families and caregivers.
- The Cold Facts on Raynaud’s – A comprehensive guide incorporating educational materials from the organization’s web site, brochures, and newsletters.
- Raynaud’s Newsroom – News about medical developments, support from fellow Raynaud’s sufferers, and lots of practical tips about products and devices that really work (or don’t).
- Cold Cut Newsletter – Quarterly member newsletter. Includes all archived issues of the publication back to its launch in April 1994.
- Social Media Connections – Links to where you can follow the Raynaud’s Association on its social media pages.
- Resource Organizations – Links to related non-profit health and support organizations.
- Raynaud’s Information Cards – Cards you can use to easily explain Raynaud’s to friends, family members or business associates.
In return, we ask for your support to allow us to continue our work and fulfill our mission. Please donate as generously as you can.