Our Winter-Spring 2010 issue of Cold Cuts is now posted on the site.   This issue includes lots of member stories – thanks for all of your contributions, please keep them coming! Read the rest of this entry »

I was diagnosed about 4 years ago with Raynaud’s Disease.  I had gone through many many tests to make sure I didn’t have Lupus like my aunt does, or any other autoimmune disease.  I do live in a cold climate, and although it’s not too cold for most, I think I am in the deep freeze 365 days a year!  Read the rest of this entry »

I have suffered from Raynaud’s for several years but as I have aged the symptoms have increased and have made life a little less enjoyable especially during our cold Midwest winters.    Read the rest of this entry »

By raising your hand, you show your support for the 30 million Americans who are affected by rare diseases.  Lundbeck Inc., a Rare Disease Day Partner, announced the launch of a campaign to raise funds for rare disease research in conjunction with Rare Disease Day. 

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Rare Disease Day is an annual event observed worldwide on the last day of February each year.   The purpose of this day is to raise awareness of rare diseases as a public health issue. 

In the U.S., a rare disease is defined as affecting fewer than 200,000 people.  There are nearly 7,000 rare diseases affecting nearly 30 million Americans. In other words, as many as one in ten Americans are suffering from a rare disease. Read the rest of this entry »

The Sjögren’s Syndrome Foundation is holding its 5th annual Sjögren’s Walkabout and Autoimmune Disease Health Awareness Fair on Saturday, February 27th, 2010 at the Paradise Valley Mall in Phoenix, Arizona.  Read the rest of this entry »

Thanks to the positive response from our members, we’ve recruited our test group for these socks.  We’ll be requesting more testers for additional products in the future, so please keep watching the site for new announcements.

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GoodShop.com is a gateway to over 100 great stores including Target, Macy’s, The Gap, Best Buy, Nordstrom, PetSmart, Staples and Wal-Mart.  When you start your shopping at www.goodshop.com each of these major stores share a percentage of every dollar you spend with the Raynaud’s Association.  So before you redeem those holiday gift cards for a new book, computer, DVD, pair of shoes or clothing, go to GoodShop first. Read the rest of this entry »

Checks continue to come in from our fundraising campaign.  Thanks to all of our supporters these past few weeks.  Between our recent fundaising mailing and the donors responding to our onsite challenge, we raised a total of $1,680 - over three times our goal! Read the rest of this entry »