By Joe Fleming President ViveHealth.com Holiday seasons are much anticipated. They allow you to have a momentary break from the usual 9-5 and spend a festive moment with family and friends. However, this anticipation can lead to expectations for a perfect holiday. With tons of items on our to-do lists like shopping, planning, cooking, gift-wrapping, […]
I was diagnosed with Raynaud’s at age 16, I am now 41. Every day is a new adventure in keeping and staying warm, summer or winter. Thank you for this website. by E.G. (NY)
Stressing so ready to get diagnosed and onto treatment. Thanks for this site! by A.T. (Facebook Fan)
Thanks for all the info you guys provide. by J.L. (CA)
The Raynaud’s Association was my sanity saver!…It helped me and my doctor diagnose my Raynaud’s and continues to be my authoritative resource! The support I receive has been absolutely amazing! by A. M. (Facebook Fan)
This site is amazing, I’ve now met great other people that are in the same boat as myself and know that there are people out there that can help. by N.D.
Thanks so much for the web site and the information…I was feeling quite alone but your web site made me feel much better about what I can do to control my symptoms. by A.A. (Ontario)
I’m so thankful for this forum. It’s great to have the support when needed. by Raynaud’s Forum Member
Thank you for doing the work you do and for providing the info you provide. by J.M. (AZ)
Finally a whole group of people who know exactly what I’m going through & even tips and products that really help. I can’t tell you how much it means to not feel all alone. by D. (Twitter Follower)
I’ve just found this page with great relief. by J.A. (UK)
Welcome to the Raynaud's Association
- If your fingertips, toes or any other extremity become painful when exposed to cold temperatures, you might be suffering from Raynaud's phenomenon.
- If holding an iced drink - or putting your hands in the freezer - causes your fingers to turn blue (or white), you could be one of an estimated 28 million people in the US who have Raynaud's phenomenon.
- If air conditioning often triggers your fingers or toes to hurt, you might be experiencing a Raynaud's spasm.
The Raynaud's Association is here to help. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures.
What Is Raynaud's
Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. The disease causes an interruption of blood flow to the fingers, toes, nose, and/or ears when a spasm occurs in the blood vessels of these areas. Spasms are caused by exposure to cold or emotional stress. Typically, the affected area turns white, then blue, then bright red over the course of the attack. There may be associated tingling, swelling, or painful throbbing. The attacks may last from minutes to hours. In severe cases, the area may develop ulcerations and infections, which can lead to gangrene.
Raynaud’s can occur as a “primary” disease; that is, with no associated disorder. It can also occur as a “secondary” condition related to other diseases, such as scleroderma, lupus, and rheumatoid arthritis.
Approximately 5-10 percent of all Americans suffer from Raynaud’s, but only one out of ten sufferers seeks treatment. Both men and women suffer from Raynaud’s, but women are nine times more likely to be affected. Some researchers estimate as many as 20% of all women in their childbearing years have Raynaud’s.
Although it’s been over 100 years since Raynaud’s was recognized, little is still known about the condition, its cause, or its cure. The Raynaud’s Association seeks to raise awareness and understanding of this perplexing phenomenon.
In The News…
We tested Volt’s heated slippers when they first came on the market several years back and it was love at first sight and burst of warmth! There’s a great story behind the product. The inventor created these slippers for his mother who suffered from both Raynaud’s and peripheral neuropathy and found it difficult to keep […]
Our Sponsor at Infracare is giving away up to 5 pairs each of their socks and touchscreen-friendly glove liners designed to keep Frosties warm. To be one of the five lucky Frosties to receive these products, here’s what you need to do: Read our Product Review on Infracare Glove Liners and Socks and learn about their specific features that […]
It’s that time of the year when we come across new products that may bring warmth and comfort to Raynaud’s sufferers and share them with fellow Frosties. Echo Classic Glittens – Ann in Texas found a great solution to warm her frosty fingers. Here’s what she tells us about these gloves: “I have tried a number of techniques and […]
We’ve added two new items this season to help keep Frosties warm: Special Edition Glider Gloves Our Sponsor at Glider Gloves is offering a limited edition version of their Winter style gloves branded with our logo on both hands. Unlike other touchscreen-friendly gloves, their triple layer, well-insulated design helps trap heat and circulate it. But […]
Jacqueline (CA) has had Raynaud’s since childhood. More recently she developed some additional health issues and cryotherapy treatment was recommended to her. She tried it and tells us “It was the worst thing I have ever been through in my life. I told the people at the facility about my disease but they said I would […]
We at the Raynaud’s Association are delighted to see a spate of new warming products designed with Frosties in mind. One such producer is EMBR Labs, a Cambridge, MA based company that has launched a very successful Kickstarter campaign for its Embr Wave heating and cooling wristband. The device delivers an instant dose of localized […]
Fellow Frostie Enrique Cubillo, innovator of a new endurance sport called SpikeBoarding, took to the road this month to help promote Raynaud’s Awareness Month. Here’s a link to our press release announcing his team’s efforts, and you can see Dan Bowen from his group in action in the pictures below. For our earlier story on how Enrique’s need […]