A couple of years ago, we wrote a post about how smart wearables would soon make life easier and more tolerable for Raynaud’s sufferers. One of the earliest products we found in the wearable category was Digitsoles, and they’ve just become available in the U.S. market. Digitsoles are the first connected, interactive, heated insoles that […]
Just discovered your organization…looking forward to learning more as my feet move from annoying to painful at times. Thanks so much for being there. by C.G. (WA)
I am so happy to have found this page and see that I am not the only one with this disease… by T.S. (Facebook Fan)
I have enjoyed belonging to the group (the Forum) and participating in it. Thanks for a wonderful site. by L.D. (GA)
Thank you for maintaining this organization and for the newsletters. by M.L. (KS)
Great resource! Incredible experience and caring people. by K. (Twitter Follower)
Thanks for being a great Raynaud’s resource! by C.B.
Helps me not feel like I am not alone, gives me a way to stay connected to new products & the newest medical findings, or new medical ways to treat Raynaud’s. by Anonymous
I love that I found a page for this crazy condition I also share. by H.P. (Facebook Fan)
After years of thinking I was just sensitive, I’ve found the truth! So much great info on your site. Thanks!!! by S.B. (Twitter Follower)
Researching for info on Raynaud’s and found you. Thanks for all the information and products that may help…Nice to know that so many are searching for cures/help/etc. by M.H. (MN)
Welcome to the Raynaud's Association
- If your fingertips, toes or any other extremity become painful when exposed to cold temperatures, you might be suffering from Raynaud's phenomenon.
- If holding an iced drink - or putting your hands in the freezer - causes your fingers to turn blue (or white), you could be one of an estimated 28 million people in the US who have Raynaud's phenomenon.
- If air conditioning often triggers your fingers or toes to hurt, you might be experiencing a Raynaud's spasm.
The Raynaud's Association is here to help. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures.
What Is Raynaud's
Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. The disease causes an interruption of blood flow to the fingers, toes, nose, and/or ears when a spasm occurs in the blood vessels of these areas. Spasms are caused by exposure to cold or emotional stress. Typically, the affected area turns white, then blue, then bright red over the course of the attack. There may be associated tingling, swelling, or painful throbbing. The attacks may last from minutes to hours. In severe cases, the area may develop ulcerations and infections, which can lead to gangrene.
Raynaud’s can occur as a “primary” disease; that is, with no associated disorder. It can also occur as a “secondary” condition related to other diseases, such as scleroderma, lupus, and rheumatoid arthritis.
Approximately 5-10 percent of all Americans suffer from Raynaud’s, but only one out of ten sufferers seeks treatment. Both men and women suffer from Raynaud’s, but women are nine times more likely to be affected. Some researchers estimate as many as 20% of all women in their childbearing years have Raynaud’s.
Although it’s been over 100 years since Raynaud’s was recognized, little is still known about the condition, its cause, or its cure. The Raynaud’s Association seeks to raise awareness and understanding of this perplexing phenomenon.
In The News…
Since there’s no single test to diagnose Raynaud’s, doctors generally rely on either witnessing an attack or listening to a patient describe their symptoms. But if their description doesn’t correspond to the text book triad of color changes (white/blue/red) or reference to pain or experience (e.g., numbness) they studied in medical school, Raynaud’s symptoms can […]
Our Sponsor at Glider Gloves is giving away five pairs of their touchscreen-friendly gloves. To be one of the five lucky Frosties to receive these triple-insulated mitts, here’s what you need to do: Read our Product Review on Glider Gloves and learn about their specific features that provide warmth and protection from the cold for Raynaud’s sufferers – even […]
We found an article in Independent. ie, an Irish news publication, titled “Always chilly? From an underactive thyroid to Raynaud’s disease here are some possible explanations.” The article offers explanations for why some people experience cold with greater difficulty, and provides some interesting scientific explanations that we rarely come across, such as why we develop […]
We had the opportunity to test products from Infracare, a company based in Canada that specializes in supplying products to the medical community that are specifically designed for people with a common problem very familiar to Raynaud’s sufferers – cold hands and feet. The company has spent time studying patients with Raynaud’s, diabetes, chilblains and […]
Fellow Frostie and world champion gymnast Kristle Lowell celebrated the eclipse on August 21st with one of her amazing trampoline jumps – what an incredible photo! For more about Kristle’s accomplishments, see our earlier posts: World Champion Gymnast Finds Warm-Ups Among Her Biggest Challenges Raynaud’s, Plus New Diagnosis, Doesn’t Deter Champion Gymnast Athlete […]
We’re doing a “Mysterious Zombie Hands” theme for Raynaud’s Awareness Month, talking about the way hands can turn ghoulish white during attacks and how the phenomenon has mystified the medical community for over 150 years. We’re hoping this Halloween-inspired approach will attract attention in October for the event, and would love to have some videos to circulate […]
By Joe Fleming President ViveHealth.com Is your child with Raynaud’s Phenomenon heading back to school soon? When it comes to back to school season, your days may quickly fill with shopping, scheduling, organizing transportation, signing up for volunteer activities, coordinating sports calendars, the list goes on… Don’t let managing Raynaud’s symptoms sneak up on your […]