Thank you for the info! First time I have been here, and it’s nice to have the ‘connection’ with others in the world! by J.F. (NY)
(Your moderator) was very kind, helpful and patient with me!…I’m elated to return to this wonderful forum. Thank you. by A.K. (WI)
Thank you for allowing me to join this group…I am so miserable right now. It somehow makes me feel a little better to know someone else understands. by L.R. (Facebook Fan)
I’m pleased to find this website. I’m learning more than I ever knew about my condition. Thank you. by R.Z. (PA)
It is nice to have an association where others are going through the same thing I am. by P.S. (NJ)
It’s great to have all these support groups and to know that you’re not alone. Thank you. by K.C. (Facebook Fan)
I just discovered this page and am greatly encouraged by knowing that I’m not alone. by R.J. (Facebook Fan)
Thanks so much. I’m so glad I posted here. by C.D. (Facebook Fan)
I’d like to take the opportunity to say that I really appreciate The Raynaud’s Association’s website and Facebook posts. by D.R. (OH)
Thank you for your great site! by R.B. (TN)
Welcome to the Raynaud's Association
- If your fingertips, toes or any other extremity become painful when exposed to cold temperatures, you might be suffering from Raynaud's phenomenon.
- If holding an iced drink - or putting your hands in the freezer - causes your fingers to turn blue (or white), you could be one of an estimated 28 million people in the US who have Raynaud's phenomenon.
- If air conditioning often triggers your fingers or toes to hurt, you might be experiencing a Raynaud's spasm.
The Raynaud's Association is here to help. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures.
What Is Raynaud's
Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. The disease causes an interruption of blood flow to the fingers, toes, nose, and/or ears when a spasm occurs in the blood vessels of these areas. Spasms are caused by exposure to cold or emotional stress. Typically, the affected area turns white, then blue, then bright red over the course of the attack. There may be associated tingling, swelling, or painful throbbing. The attacks may last from minutes to hours. In severe cases, the area may develop ulcerations and infections, which can lead to gangrene.
Raynaud’s can occur as a “primary” disease; that is, with no associated disorder. It can also occur as a “secondary” condition related to other diseases, such as scleroderma, lupus, and rheumatoid arthritis.
Approximately 5-10 percent of all Americans suffer from Raynaud’s, but only one out of five sufferers seeks treatment. Both men and women suffer from Raynaud’s, but women are nine times more likely to be affected. Some researchers estimate as many as 20% of all women in their childbearing years have Raynaud’s.
Although it’s been over 100 years since Raynaud’s was recognized, little is still known about the condition, its cause, or its cure. The Raynaud’s Association seeks to raise awareness and understanding of this perplexing phenomenon.
In The News…
Catherine from Facebook suggests: “I have been known to use my nose when my finger doesn’t register on a touch screen. :-)” We’ve all been there, trying to punch numbers into the ATM and nothing happens. It may look funny, but could be effective! Claire from Facebook shared the following idea: “Tip for anyone working in […]
By Rachel Boehm You may have heard I dedicated my first 50-mile run, the JFK 50, to Raynaud’s awareness. Many of those who heard about this via the Raynaud’s Association’s Facebook page asked about my strategy for staying warm. Here’s what I did (for more tips on endurance events, check out my blog post geared […]
Purlygirl knits was created in 2006 by Jill Wieder after a local retailer admired the hand-knit scarf she was wearing and asked her to knit a collection for his fall/winter season. With a background in art and design, Jill has a keen eye that really comes across in her one-of-a-kind colorful and fun hand warmers, […]
We have been contacted by a pharmaceutical company to help recruit patients for a clinical trial being conducted in patients with Raynaud’s phenomenon secondary to scleroderma/systemic sclerosis. The study medication is a topical cream that will be applied to the hand. Participation will require travel to a clinical site. The first site is in Encinitas, […]
This past week two major news groups published articles promoting hot products any Raynaud’s sufferer would love! The Huffington Post article is titled “21 Ridiculously Hot Products That Every Ridiculously Cold Person Will Want” – that’s us! While it includes some products we’ve featured in past newsletters, like the hand-warming Toasty Mug and heated toilets, […]
At long last, we found a heated steering wheel cover that appears to have great potential for Raynaud’s sufferers. We chose to give this product its own post, rather than include it with our other new product discoveries, because this is one product that has been in big demand for many years by the Raynaud’s […]
With a chill in the air, we’re all searching for new products to keep us comfortable and toasty for the season. Here are a few items we’ve discovered that Frosties may want to try – if you can find them, as some are selling out fast! Hand Warming Flashlight – This is a multi-tasking product […]
A few months ago, we posted our hopes that the advent of the Internet of Things would result in wearable products that make life easier and more tolerable for Raynaud’s sufferers. Someone must have been listening, because since this post, we’ve come across several wearable devices – some in market, some still in development – that […]