I’m happy to find a group that understands this disorder and is supporting it. Thanks! by L.K. (KY)
…and the Raynaud’s Association has been helpful to me and my fellow scleroderma patients. Thank you! by D.D. (Facebook Fan)
I thank God there’s a web site like this. by C. (Blog Post)
…It is so frustrating as I am so active in the outdoors. It limits most outdoor activities that are below 65 degrees…Thanks for your website!!!!!!!!!!!!!!! by S.H. (WI)G. Washington
I stumbled across this website because I have a research paper I am doing on Raynaud’s…and seemed to have found a place to call my own! by E.P. (UK)
Great website. Thanks for the helpful information and products! by C.S. (PA)
My 17 year old daughter has recently been diagnosed with Raynauds…I love this website and find it very helpful. Thank you. by L.B. (IL)
Hi, I am so happy to have found your organization…Enclosed is a donation…Please add me to your membership list. I have had extreme cold fingers for years and years. by M. J. L. (OH)
Hi, I’m glad I found this page, it helps to know that others suffer from this, too…Thank you for your page : ) x by S.C. (Facebook Fan)
I haven’t spent much time on this forum but I have to say I have learned so much about my own condition…Today I used a tip that I read on this site..I am happy to say that it works! by P.M. (Raynaud’s Forum Member)
Welcome to the Raynaud's Association
- If your fingertips, toes or any other extremity become painful when exposed to cold temperatures, you might be suffering from Raynaud's phenomenon.
- If holding an iced drink - or putting your hands in the freezer - causes your fingers to turn blue (or white), you could be one of an estimated 28 million people in the US who have Raynaud's phenomenon.
- If air conditioning often triggers your fingers or toes to hurt, you might be experiencing a Raynaud's spasm.
The Raynaud's Association is here to help. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures.
What Is Raynaud's
Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. The disease causes an interruption of blood flow to the fingers, toes, nose, and/or ears when a spasm occurs in the blood vessels of these areas. Spasms are caused by exposure to cold or emotional stress. Typically, the affected area turns white, then blue, then bright red over the course of the attack. There may be associated tingling, swelling, or painful throbbing. The attacks may last from minutes to hours. In severe cases, the area may develop ulcerations and infections, which can lead to gangrene.
Raynaud’s can occur as a “primary” disease; that is, with no associated disorder. It can also occur as a “secondary” condition related to other diseases, such as scleroderma, lupus, and rheumatoid arthritis.
Approximately 5-10 percent of all Americans suffer from Raynaud’s, but only one out of five sufferers seeks treatment. Both men and women suffer from Raynaud’s, but women are nine times more likely to be affected. Some researchers estimate as many as 20% of all women in their childbearing years have Raynaud’s.
Although it’s been over 100 years since Raynaud’s was recognized, little is still known about the condition, its cause, or its cure. The Raynaud’s Association seeks to raise awareness and understanding of this perplexing phenomenon.
In The News…
The Sclerodema Foundation’s Tri-State group is hosting phone-in events through their new Tri-State Connect Program. Our own Jan Gnall, Board member with the Raynaud’s Association, is the program’s Group Leader and event host. Events are held the third Tuesday of each month.
Check out these special offers for our members. DISCLAIMER: Product reviews are the opinion of the reviewer(s) and are not formally endorsed. While the evaluation process is not clinically-based, products are tested by Raynaud’s sufferers for their potential benefit in real life situations. Products have not been tested by nor are regulated by the FDA.
The American Self-Help Clearinghouse is working to proclaim January as “National Support Group Awareness Month.” You can help by signing their petition addressed to the White House.
One frustration with Raynaud’s is that there’s no definitive scientific test for diagnosing the condition. While there are blood tests and diagnostics to determine if a patient’s Raynaud’s is a by-product of a more serious autoimmune disorder, only through a review of symptoms with your doctor or by a medical professional witnessing an attack can [...]
One recent article in the Independent Mail on stess and Raynaud’s made some good suggestions regarding the importance of taking care of your skin for Raynaud’s sufferers:
It’s important to understand and identify the factors most likely to trigger a patient’s Raynaud’s in order to best defend against attacks. While each sufferer may have a different response or threshold level to key stimuli associated with Raynaud’s, the following triggers were noted in a recent article published in Yahoo! Voices:
Announcing the launch of a new web site to help the 50 million americans with autoimmune diseases (including Raynaud’s) live better.
Good news! Scientists have pinpointed specific proteins within the skin’s blood vessels that play a part in the body’s reaction to cold stimuli and may provide clues to the mystery behind Raynaud’s attacks.