I haven’t spent much time on this forum but I have to say I have learned so much about my own condition…Today I used a tip that I read on this site..I am happy to say that it works! by P.M. (Raynaud’s Forum Member)
I’m so glad to have discovered this group because I feel like you people here are my 7400 new best friends. Nobody else “gets it!” by L. G. (Facebook Fan)
I just discovered this website now and am very happy to see this kind of support is available to someone like me. by M.W. (Canada)
It’s great to have all these support groups and to know that you’re not alone. Thank you. by K.C. (Facebook Fan)
I really value the Raynaud’s Association; it’s so nice to know that I’m not alone. by J. S. (OH)
Sad to see so many suffer from this, and yet, comforting to have an outlet to talk. by L.D. (Facebook Fan)
Thank you for the newsletter. I liked it very much. by B.M. (WA)
Thanks so much for having this page, I’d be so freaked out without you guys! by L.D. (Facebook Fan)
I thank God there’s a web site like this. by C. (Blog Post)
It’s really nice to have come across this support page…most of my family just don’t understand…I appreciate this group so much! by H.B. (Facebook Fan)
Welcome to the Raynaud's Association
- If your fingertips, toes or any other extremity become painful when exposed to cold temperatures, you might be suffering from Raynaud's phenomenon.
- If holding an iced drink - or putting your hands in the freezer - causes your fingers to turn blue (or white), you could be one of an estimated 28 million people in the US who have Raynaud's phenomenon.
- If air conditioning often triggers your fingers or toes to hurt, you might be experiencing a Raynaud's spasm.
The Raynaud's Association is here to help. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures.
What Is Raynaud's
Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. The disease causes an interruption of blood flow to the fingers, toes, nose, and/or ears when a spasm occurs in the blood vessels of these areas. Spasms are caused by exposure to cold or emotional stress. Typically, the affected area turns white, then blue, then bright red over the course of the attack. There may be associated tingling, swelling, or painful throbbing. The attacks may last from minutes to hours. In severe cases, the area may develop ulcerations and infections, which can lead to gangrene.
Raynaud’s can occur as a “primary” disease; that is, with no associated disorder. It can also occur as a “secondary” condition related to other diseases, such as scleroderma, lupus, and rheumatoid arthritis.
Approximately 5-10 percent of all Americans suffer from Raynaud’s, but only one out of five sufferers seeks treatment. Both men and women suffer from Raynaud’s, but women are nine times more likely to be affected. Some researchers estimate as many as 20% of all women in their childbearing years have Raynaud’s.
Although it’s been over 100 years since Raynaud’s was recognized, little is still known about the condition, its cause, or its cure. The Raynaud’s Association seeks to raise awareness and understanding of this perplexing phenomenon.
In The News…
Purlygirl knits was created in 2006 by Jill Wieder after a local retailer admired the hand-knit scarf she was wearing and asked her to knit a collection for his fall/winter season. With a background in art and design, Jill has a keen eye that really comes across in her one-of-a-kind colorful and fun hand warmers, […]
We have been contacted by a pharmaceutical company to help recruit patients for a clinical trial being conducted in patients with Raynaud’s phenomenon secondary to scleroderma/systemic sclerosis. The study medication is a topical cream that will be applied to the hand. Participation will require travel to a clinical site. The first site is in Encinitas, […]
This past week two major news groups published articles promoting hot products any Raynaud’s sufferer would love! The Huffington Post article is titled “21 Ridiculously Hot Products That Every Ridiculously Cold Person Will Want” – that’s us! While it includes some products we’ve featured in past newsletters, like the hand-warming Toasty Mug and heated toilets, […]
At long last, we found a heated steering wheel cover that appears to have great potential for Raynaud’s sufferers. We chose to give this product its own post, rather than include it with our other new product discoveries, because this is one product that has been in big demand for many years by the Raynaud’s […]
With a chill in the air, we’re all searching for new products to keep us comfortable and toasty for the season. Here are a few items we’ve discovered that Frosties may want to try – if you can find them, as some are selling out fast! Hand Warming Flashlight – This is a multi-tasking product […]
A few months ago, we posted our hopes that the advent of the Internet of Things would result in wearable products that make life easier and more tolerable for Raynaud’s sufferers. Someone must have been listening, because since this post, we’ve come across several wearable devices – some in market, some still in development – that […]
We love sharing stories about fellow Raynaud’s sufferers who conquer their fears and live life to its fullest under very challenging conditions. This is an inspiring story by Kimberly Erin Davies – a true Raynaud’s warrior who conquered the Inca Trail trek with Raynaud’s, with special thanks to her Baffin Boots! Conquering the Inca Trail with Raynaud’s Disease
The digital news publication The Onion is known for its satirical articles on everything from politics to local news. One of our Facebook followers found this recent spoof in The Onion reporting a young woman in Providence, Rhode Island who buried herself in her living room under a large blanket and vowed to stay there […]