Raynaud’s sufferers would like to believe that just by changing their diet, they could better control their Raynaud’s attacks – unfortunately, it’s not always that easy. This past year, I’ve been trying a number of combinations of Asian herbs provided by my acupuncture specialist: some were in pill form, some in powders, others were raw […]
Thank you! This newsletter is SO comforting and helpful. by A.C. (NE)
Great video – I’ve recently been diagnosed…mine is secondary to another autoimmune disorder. Raynaud’s is what sent me to the doctor. Thanks for this clear explanation! by M. F. (Facebook Fan)
Your site has been very helpful. Continue to do your good work. by T. B. (CT)
I want to learn everything I can about this disease and to deal with it…Thank you for this website. by M.R-B. (VA)
Thank God I came to know what is my problem. You have an excellent page. by M.N. (Facebook Fan)
I can’t believe I didn’t think to look for a group like this before on Facebook!…people just don’t understand what Raynaud’s is like if they don’t have it. I’m just glad I found this group by M.P. (Facebook Fan)
I just discovered this website now and am very happy to see this kind of support is available to someone like me. by M.W. (Canada)
Glad I found a site that may offer a little more information for me about Raynaud’s and ways to manage this. by T.V. (Facebook Fan)
I love the product reviews and great ideas for keeping warm. by K.T. (PA)
I wouldn’t wish this disease on anyone…but it sure feels good to know you can share experiences with someone who TRULY knows your pain. by M.H. (Facebook Fan)
Welcome to the Raynaud's Association
- If your fingertips, toes or any other extremity become painful when exposed to cold temperatures, you might be suffering from Raynaud's phenomenon.
- If holding an iced drink - or putting your hands in the freezer - causes your fingers to turn blue (or white), you could be one of an estimated 28 million people in the US who have Raynaud's phenomenon.
- If air conditioning often triggers your fingers or toes to hurt, you might be experiencing a Raynaud's spasm.
The Raynaud's Association is here to help. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures.
What Is Raynaud's
Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. The disease causes an interruption of blood flow to the fingers, toes, nose, and/or ears when a spasm occurs in the blood vessels of these areas. Spasms are caused by exposure to cold or emotional stress. Typically, the affected area turns white, then blue, then bright red over the course of the attack. There may be associated tingling, swelling, or painful throbbing. The attacks may last from minutes to hours. In severe cases, the area may develop ulcerations and infections, which can lead to gangrene.
Raynaud’s can occur as a “primary” disease; that is, with no associated disorder. It can also occur as a “secondary” condition related to other diseases, such as scleroderma, lupus, and rheumatoid arthritis.
Approximately 5-10 percent of all Americans suffer from Raynaud’s, but only one out of five sufferers seeks treatment. Both men and women suffer from Raynaud’s, but women are nine times more likely to be affected. Some researchers estimate as many as 20% of all women in their childbearing years have Raynaud’s.
Although it’s been over 100 years since Raynaud’s was recognized, little is still known about the condition, its cause, or its cure. The Raynaud’s Association seeks to raise awareness and understanding of this perplexing phenomenon.
In The News…
We came across a post by Dana Symons on her blog At the Water’s Edge about the process she went through discovering she suffers from Raynaud’s. Like so many stories we hear and read about, Dana has experienced her fingers and toes turning white when exposed to cold as long as she can remember. Does this […]
We’re designating October as Raynaud’s Awareness Month, as it’s the start of the colder weather and a good time to alert sufferers (many of whom are not aware they have a medical condition) to arm themselves for the upcoming season. We’d like to hear from our members and followers with ideas for helping us get the word […]
We were pleased to see the Huffington Post cover a reporter’s personal story on living with Raynaud’s since her teenage years. Like many of us, however, she wasn’t formally diagnosed until well into her 30’s. The article titled Are Your Hands Almost Always Cold? You Might Have Raynaud’s Syndrome by Jill Brown includes experiences that […]
On August 3, 2015, the New York Times ran an article on the front page titled “Chilly at Work? Icy Office Was Devised for Men”. Like many of these articles (see our earlier posts: Summertime, and the Livin’ is Freezing and Let the Thermostat Wars Begin), it covers the predictable frozen females bundled up in response to office […]
We became aware of Nutrasal’s Magnesium L-arginine skin cream through a call from the owner of the company, Bruce Perry. He and his family all have Raynaud’s, and their “home grown tests” indicated that this cream – through continued usage (not instant warmth) – has the potential over time to minimize the frequency and severity […]
The Raynaud’s Association, along with Raynaud’s and Scleroderma organizations in the UK and Europe, helped recruit patients for a research study conducted in 2011, and results have just been published (yes, analysis can take a vey long time!). The objective of the study was to determine how well Raynaud’s patients can predict the occurrance and severity of […]
By Ronni Shulman Vice Chair Raynaud’s Association Looking for a fundraising idea to raise awareness of Raynaud’s in your own community? “Lunch in Your Gloves” might be the ideal vehicle. The simple concept is relatively easy for anyone to execute. Here in Venice, FL, we invited friends, neighbors and the community at large to attend […]