I just discovered this page and am greatly encouraged by knowing that I’m not alone. by R.J. (Facebook Fan)
Honestly, I don’t know what I would have done without all your tips…Thank you for pulling it all together – now the winter isn’t looking quite so intimidating! by M.L. (Ontario, Canada)
Thank GOODNESS. In my years of perusing the web, I just found this group. by Forum Member
Your site has been very helpful. Continue to do your good work. by T. B. (CT)
…It is so frustrating as I am so active in the outdoors. It limits most outdoor activities that are below 65 degrees…Thanks for your website!!!!!!!!!!!!!!! by S.H. (WI)G. Washington
…relieved to know what it is…comforted to know there are other folks that have this condition…nice to have a place to share what works for us. by J.J. (VA)
Thanks for all the info you guys provide. by J.L. (CA)
I really appreciate your web site and information you give to us. I’ve learned more about the disease from you than from my doctors. Thanks and God bless. by M-J F (IL)
Thanks so much for the web site and the information…I was feeling quite alone but your web site made me feel much better about what I can do to control my symptoms. by A.A. (Ontario)
I just found this Facebook page today and think it will be of great help. by K.M. (Facebook Fan)
Welcome to the Raynaud's Association
- If your fingertips, toes or any other extremity become painful when exposed to cold temperatures, you might be suffering from Raynaud's phenomenon.
- If holding an iced drink - or putting your hands in the freezer - causes your fingers to turn blue (or white), you could be one of an estimated 28 million people in the US who have Raynaud's phenomenon.
- If air conditioning often triggers your fingers or toes to hurt, you might be experiencing a Raynaud's spasm.
The Raynaud's Association is here to help. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures.
What Is Raynaud's
Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. The disease causes an interruption of blood flow to the fingers, toes, nose, and/or ears when a spasm occurs in the blood vessels of these areas. Spasms are caused by exposure to cold or emotional stress. Typically, the affected area turns white, then blue, then bright red over the course of the attack. There may be associated tingling, swelling, or painful throbbing. The attacks may last from minutes to hours. In severe cases, the area may develop ulcerations and infections, which can lead to gangrene.
Raynaud’s can occur as a “primary” disease; that is, with no associated disorder. It can also occur as a “secondary” condition related to other diseases, such as scleroderma, lupus, and rheumatoid arthritis.
Approximately 5-10 percent of all Americans suffer from Raynaud’s, but only one out of five sufferers seeks treatment. Both men and women suffer from Raynaud’s, but women are nine times more likely to be affected. Some researchers estimate as many as 20% of all women in their childbearing years have Raynaud’s.
Although it’s been over 100 years since Raynaud’s was recognized, little is still known about the condition, its cause, or its cure. The Raynaud’s Association seeks to raise awareness and understanding of this perplexing phenomenon.
In The News…
The Internet of Things is all the rage, and health and fitness applications are at the top of the list for many of the newer devices on the market: They keep track of your activity, monitor your heart rate, and more… So in a perfect world (one that was always warm and stress free!), what […]
We’re excited to announce two new Sponsors: Warm Skin® and Heat Holders® – both great products for Raynaud’s sufferers. We’re also sharing an additional discovery that may be of interest to fellow Frosties. Warm Skin® – This cream is different from others we’ve featured, in that it doesn’t offer immediate warmth or relief. Instead, it’s […]
Carole (Canada) posted on Facebook about Thermohair socks (www.thermohair.ca). These are mohair socks made by a small company in Ontario. She says she’s been using them to warm her cold feet for 10 years and they really help! Quite pricey ($35-$35 Cdn), but worth it. (Editors note: For Frosties with wool issues, give Heat Holders® socks […]
We found an excellent article on Raynaud’s published by Molly’s Fund, a non-profit organization dedicated to educating the public and medical community about Lupus. It’s very comprehensive, including symptoms, causes, treatments, and prevention strategies. For anyone looking for a good overview on Raynaud’s, this is a good resource that’s a quick read: Molly’s Fund Article
More recent research has shown promise in using ED drugs such as sildenafil (Viagra®), vardenafil (Levitra®), and talkalafil (Cialis®) in treating Raynaud’s symptoms, particularly when traditional treatments such as vasodilators and topical nitroglycerine-based creams provide insufficient relief or aren’t well tolerated. These drugs, while typically prescribed for ED in males, act as vasodilators which work […]
We rarely have the opportunity to test a product with a good-sized sample of our members, but when one of our Sponsors started carrying Heat Holders® socks a couple of years ago, we were given the chance to let a number of Frosties use the product and provide their feedback, and the results were impressive. […]
We’ve probably all experienced situations when others don’t understand the pain associated with triggering a Raynaud’s attack. But we’d like to believe that our families will be supportive. Recently we saw a question to a physician on About.com where a brother accuses his sister of lying about not being able to walk down the freezer aisle […]
Rachel Boehm, like many of us when first diagnosed, considered Raynaud’s a minor inconvenience. But when the frequency and intensity of her attacks increased, she feared she was developing a more serious autoimmune disorder. She was relieved to learn her Raynaud’s was primary (not secondary to another condition), but as she learned more about Raynaud’s in […]