We found an article on Prevention’s web site that includes information that we contributed in 2009 to a book published by Rodale, Prevention’s parent company, called the Doctor’s Book on Home Remedies. The web article is dated 2014, so it’s good to see our efforts recycled! Two things covered by Prevention that aren’t commonly shared by doctors: First, […]
I am a huge fan of (the RA) site. They continue to keep me up to date with research, potential methods to help reduce the frequency of a flare up, as well as new gadgets that can help! It is definitely my “go to” for the latest and greatest for trust worthy information…I highly recommend this site!!! by A.J. (TN)
This organization helped me with ways to explain what Raynaud’s is and how it affects me and my family. by Anonymous
Thank you so much for your efforts in raising awareness about Raynaud’s…it’s great to have a site like yours to go to when I need advice and tips : ) by S. S. (Facebook Fan)
I have Raynaud’s and it’s a great help to have this resource. by S. (Facebook Fan)
Very helpful site 🙂 by T.P. (Pinterest Follower)
Hi, I am so happy to have found your organization…Enclosed is a donation…Please add me to your membership list. I have had extreme cold fingers for years and years. by M. J. L. (OH)
Thanks for all the work you do and the posts – you give us sufferers hope! by M.S. (CA)
It’s really nice to have come across this support page…most of my family just don’t understand…I appreciate this group so much! by H.B. (Facebook Fan)
No one understands me, that’s why I’m glad I found you all. by D.D. (Facebook Fan)
Just discovered your organization…looking forward to learning more as my feet move from annoying to painful at times. Thanks so much for being there. by C.G. (WA)
Welcome to the Raynaud's Association
- If your fingertips, toes or any other extremity become painful when exposed to cold temperatures, you might be suffering from Raynaud's phenomenon.
- If holding an iced drink - or putting your hands in the freezer - causes your fingers to turn blue (or white), you could be one of an estimated 28 million people in the US who have Raynaud's phenomenon.
- If air conditioning often triggers your fingers or toes to hurt, you might be experiencing a Raynaud's spasm.
The Raynaud's Association is here to help. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures.
What Is Raynaud's
Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. The disease causes an interruption of blood flow to the fingers, toes, nose, and/or ears when a spasm occurs in the blood vessels of these areas. Spasms are caused by exposure to cold or emotional stress. Typically, the affected area turns white, then blue, then bright red over the course of the attack. There may be associated tingling, swelling, or painful throbbing. The attacks may last from minutes to hours. In severe cases, the area may develop ulcerations and infections, which can lead to gangrene.
Raynaud’s can occur as a “primary” disease; that is, with no associated disorder. It can also occur as a “secondary” condition related to other diseases, such as scleroderma, lupus, and rheumatoid arthritis.
Approximately 5-10 percent of all Americans suffer from Raynaud’s, but only one out of ten sufferers seeks treatment. Both men and women suffer from Raynaud’s, but women are nine times more likely to be affected. Some researchers estimate as many as 20% of all women in their childbearing years have Raynaud’s.
Although it’s been over 100 years since Raynaud’s was recognized, little is still known about the condition, its cause, or its cure. The Raynaud’s Association seeks to raise awareness and understanding of this perplexing phenomenon.
In The News…
Well & Good, a publication in New Zealand, published an article in August titled How to Manage the Pain of Raynaud’s Disease. We’re always glad to see Raynaud’s in the press, and given the fact that this article was published during winter in that part of the world, this was very timely content for local Kiwis. […]
Our founder and chairman Lynn Wunderman was interviewed on October 17th on the iHeart Radio show for women, Fearless Fabulous You! The host Melanie Young is a fellow Frostie, and it was a good opportunity to discuss Raynaud’s symptoms, the issues associated with being properly diagnosed, along with coping strategies for Raynaud’s sufferers. The interview […]
Thanks to all of our members, fans and followers who posted positive reviews on the Great Nonprofits web site, we made the list of Top Rated Nonprofit Organizations again for 2016! Here’s what the award is all about: The GreatNonprofits Top-Rated Awards is a people’s choice award where volunteers, donors, and people served cast their vote […]
We recently came across two great visuals Raynaud’s sufferers will find amusing, and laughter is good medicine!
Announcing our new store – launched to offer awareness-building items featuring our logo, our mascot Shivers and our educational resources. Current items in the store include: Special Edition Heated Wristies®: Our Sponsor at Wristies® created a limited edition version of their fingerless gloves etched with our logo. Heated Wristies® have a patented design with a pocket that holds a mini […]
We found some new products this season that could bring warmth and comfort to fellow Frosties in some categories we haven’t seen before. Lollilook Stroller Hand Warmer – This is a hand warmer made to fit over the bar of a stroller so that mom doesn’t get frosty paws during her walks with baby – what a great idea! […]
This was the second year we promoted October as Raynaud’s Awareness Month, and we’re happy to report the word is getting out to a wide audience. Here’s a summary of some of the press and media activity: Raynaud’s Association Press Release In addition to the national distribution of our Raynaud’s Awareness Month press release with […]