Hi, I did not know what I had until I found this site. I have both rosasea and Raynauds and it is affecting my life…Thank you so much. by K.R. (Ontario)
It’s really nice to have come across this support page…most of my family just don’t understand…I appreciate this group so much! by H.B. (Facebook Fan)
The Forum has been so helpful…Thank you for all who are involved. I am grateful. by D.C. (CA)
Kudos. Great web site. Keep up the good work. by E. C. N. (NY)
I’d like to take the opportunity to say that I really appreciate The Raynaud’s Association’s website and Facebook posts. by D.R. (OH)
I found the information very informative and would like to receive the newsletter. Thank you! by L.S. (NM)
I just wanted to pass along my thanks to your organization and Gerbing…I learned of a great resource regarding Raynaud’s! Thanks so much! by J.P. (PA)
Thank you for the information…my daughter is suffering quite a bit but I think she is relieved that she is not alone and her pain is not in her head…We are both thankful for the support given and information. by B.N. (Australia)
I can’t believe I didn’t think to look for a group like this before on Facebook!…people just don’t understand what Raynaud’s is like if they don’t have it. I’m just glad I found this group by M.P. (Facebook Fan)
Just wanna say I love your site because it helped me learn more about Raynaud’s…thought I was alone until I found you all…getting to read what others do for it helps a lot…thank you for your association :) by C.U. (KY)
Welcome to the Raynaud's Association
- If your fingertips, toes or any other extremity become painful when exposed to cold temperatures, you might be suffering from Raynaud's phenomenon.
- If holding an iced drink - or putting your hands in the freezer - causes your fingers to turn blue (or white), you could be one of an estimated 28 million people in the US who have Raynaud's phenomenon.
- If air conditioning often triggers your fingers or toes to hurt, you might be experiencing a Raynaud's spasm.
The Raynaud's Association is here to help. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures.
What Is Raynaud's
Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. The disease causes an interruption of blood flow to the fingers, toes, nose, and/or ears when a spasm occurs in the blood vessels of these areas. Spasms are caused by exposure to cold or emotional stress. Typically, the affected area turns white, then blue, then bright red over the course of the attack. There may be associated tingling, swelling, or painful throbbing. The attacks may last from minutes to hours. In severe cases, the area may develop ulcerations and infections, which can lead to gangrene.
Raynaud’s can occur as a “primary” disease; that is, with no associated disorder. It can also occur as a “secondary” condition related to other diseases, such as scleroderma, lupus, and rheumatoid arthritis.
Approximately 5-10 percent of all Americans suffer from Raynaud’s, but only one out of five sufferers seeks treatment. Both men and women suffer from Raynaud’s, but women are nine times more likely to be affected. Some researchers estimate as many as 20% of all women in their childbearing years have Raynaud’s.
Although it’s been over 100 years since Raynaud’s was recognized, little is still known about the condition, its cause, or its cure. The Raynaud’s Association seeks to raise awareness and understanding of this perplexing phenomenon.
In The News…
In June of this year we published a blog post hypothesizing about how new products in the category of smart wearables might benefit Raynaud’s sufferers. Voila, we found one! The product is Digitsoles, the first connected, interactive, heated insole that can be controlled via your smartphone. These smart insoles connect to an app on your […]
If you’re on this site, you’ve either been formally diagnosed with Raynaud’s, or are familiar enough with the condition to have determined you or a friend or loved one likely suffers from this widespread but little known autoimmune disease. Most of us have been through this experience – that moment when we learn that it’s […]
We found this list on BuzzFeed and thought it could have been written by a fellow Frostie. What a response! It’s one of our most talked about posts on Facebook: seen by over 9,000 people, generating 263 likes and 217 shares. We received many comments like: “So true.” “The story of my life.” “I feel […]
It’s hard discovering new products for Raynaud’s sufferers in the summer months, but fortunately we had input from a two fellow Frosties and a manufacturer who found us. So here are three new glove options that may prove helpful when the colder months come: High Heat Gear Heated Gloves and Mittens – These thin, stretchy […]
The University of Oklahoma Health Science Center Department of Obstetrics and Gynecology is recruiting Raynaud’s sufferers to participate in a survey regarding their experiences during pregnancy. The objective of the research is to provide information on the prevalence of pregnancy complications in patients with Raynaud’s phenomenon. To qualify, participants should meet the following criteria: Female […]
In our Spring 2014 issue of Cold Cuts, we introduced this cute Blue-footed Booby (an Eastern Pacific seabird) as a possible mascot for the Raynaud’s Association. (Here’s the original post in case you missed it.) Turns out he generated a lot of positive feedback from fellow Frosties. Most loved the idea of making him an […]
It’s not uncommon that we’ll hear from a fellow Frostie that their doctor prescribed one of the ED drugs (e.g. Cialis, Viagra) for their condition, and the insurance company denied the claim. It’s tough enough that there are no drugs on the market yet specifically FDA-approved for the treatment of Raynaud’s, but when trying to […]
For Frosties, it sounds like cruel punishment: Take a bucket of ice water, dump it over your head, record it and post the video on social media. All for raising awareness and funds for charities. Those who participate, then challenge others who either have to take the icy plunge, or donate a sizeable amount to […]