Victoria Abbott-Fleming, the founder of a web site called Burning Nights, shared with us the infographic below. Burning Nights is a charity based in the UK supporting sufferers of complex regional pain syndrome (CRPS), a chronic pain condition most often affecting one of the limbs. The infographic was inspired by the millions of people around […]
Great to find you here! Trying to thaw out for over an hour… by S.M. (Facebook Fan)
I just found this Facebook page today and think it will be of great help. by K.M. (Facebook Fan)
Your site has been very helpful. Continue to do your good work. by T. B. (CT)
I found the information very informative and would like to receive the newsletter. Thank you! by L.S. (NM)
Raynaud’s Association is by far the best source of information. Great job on the guide! by J. W. (Facebook Fan)
Thanks for running this page, it’s been a great resource. by T. H. (Facebook Fan)
(The Raynaud’s Association) has given me products for my health condition I couldn’t find elsewhere.. It has connected me with others to share data to help others.. by G. (Facebook Fan)
Incredibly helpful and useful resource for an underfunded cause. So many sufferers and even more who remain undiagnosed. Thanks. by Anonymous
I’m so glad I found this site!! by W.W. (Maryland)
Thank you for the information…my daughter is suffering quite a bit but I think she is relieved that she is not alone and her pain is not in her head…We are both thankful for the support given and information. by B.N. (Australia)
Welcome to the Raynaud's Association
- If your fingertips, toes or any other extremity become painful when exposed to cold temperatures, you might be suffering from Raynaud's phenomenon.
- If holding an iced drink - or putting your hands in the freezer - causes your fingers to turn blue (or white), you could be one of an estimated 28 million people in the US who have Raynaud's phenomenon.
- If air conditioning often triggers your fingers or toes to hurt, you might be experiencing a Raynaud's spasm.
The Raynaud's Association is here to help. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures.
What Is Raynaud's
Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. The disease causes an interruption of blood flow to the fingers, toes, nose, and/or ears when a spasm occurs in the blood vessels of these areas. Spasms are caused by exposure to cold or emotional stress. Typically, the affected area turns white, then blue, then bright red over the course of the attack. There may be associated tingling, swelling, or painful throbbing. The attacks may last from minutes to hours. In severe cases, the area may develop ulcerations and infections, which can lead to gangrene.
Raynaud’s can occur as a “primary” disease; that is, with no associated disorder. It can also occur as a “secondary” condition related to other diseases, such as scleroderma, lupus, and rheumatoid arthritis.
Approximately 5-10 percent of all Americans suffer from Raynaud’s, but only one out of five sufferers seeks treatment. Both men and women suffer from Raynaud’s, but women are nine times more likely to be affected. Some researchers estimate as many as 20% of all women in their childbearing years have Raynaud’s.
Although it’s been over 100 years since Raynaud’s was recognized, little is still known about the condition, its cause, or its cure. The Raynaud’s Association seeks to raise awareness and understanding of this perplexing phenomenon.
In The News…
This is that time of year when publications run articles about how office air conditioning erupts in office thermostat wars. It’s frustrating when publications recognize females as the usual frozen victims, but never mention why, with Raynaud’s being a potential cause of our chilly discomfort. Last year the New York Times published our editorial response to their article […]
Mike Payne is a Raynaud’s sufferer who found it difficult to hold ordinary objects, particularly quart-sized paint cans, due to muscle cramps during spasms. Rather than succumb to the pain, Mike invented a handy handle-based solution. His daughter Tara was intrigued by her dad’s invention and improved upon it, making it lighter in weight, more […]
We came across a post from Susi Doyle’s blog Lost in Translation called “Surviving Winter with Raynaud’s.” Susi is a professional writer, and does an excellent job of educating the reader on Raynaud’s phenomenon. The post also includes a number of strategies that help Susi get through the winter, and we wanted to share them: Stress […]
We found some new products on the market that may be of interest to Raynaud’s sufferers: Eight Mattress Cover – Eight is a smart mattress cover that can track your sleep patterns, monitor your vital signs and – best of all for us Frosties – offers personalized climate controls with 10 different temperature levels. Choose between three […]
Scleroderma Foundation Member (Tri-State) – A participant in a teleconference seminar with members of the Scleroderma Foundation suggested Raynaud’s sufferers try Russian Friction Massage therapy. The technique uses friction to stimulate heat within the body with slower, more gentle motions than used in a typical sports massage. The friction, combined with the use of kneading, slapping […]
We found a web site called Another Mother Runner that collected a list of tips and preventative measures from fellow runners with Raynaud’s. The tips are organized by the stage of the run: Pre-run, During, and Post-workout. You may find some of the suggestion to be obvious, but we wanted to pass them all along: Pre-run Tips Avoid […]
Our Vice Chair, Ronni Shulman, published an article on Raynaud’s in the Spring 2016 issue of Women magazine titled: The Cold Truth: Raynaud’s Phenomenon. The print version of the magazine is available at Walmart stores and by subscription. You can access it online via the link awomanshealth.com, or here’s a PDF of the article: The […]