The Raynaud’s Association, along with Raynaud’s and Scleroderma organiztions in the UK and Europe, helped recruit patients for a research study conducted in 2011, and results have just been published (yes, analysis can take a vey long time!). The objective of the study was to determine how well Raynaud’s patients can predict the occurrance and severity of […]
Thank you so much for this website! It has been a tremendous help to me. Mostly just the fact that I’m not a weakling. I have a condition and other people do too! Thanks also for ALL your helpful hints. by A.M. (MO)
Hi, I am so happy to have found your organization…Enclosed is a donation…Please add me to your membership list. I have had extreme cold fingers for years and years. by M. J. L. (OH)
I’m so thankful for this forum. It’s great to have the support when needed. by Raynaud’s Forum Member
I really value the Raynaud’s Association; it’s so nice to know that I’m not alone. by J. S. (OH)
Great video – I’ve recently been diagnosed…mine is secondary to another autoimmune disorder. Raynaud’s is what sent me to the doctor. Thanks for this clear explanation! by M. F. (Facebook Fan)
I’m glad I found this on facebook, at least I could get some info here… by S.F. (Facebook Fan)
(Your moderator) was very kind, helpful and patient with me!…I’m elated to return to this wonderful forum. Thank you. by A.K. (WI)
Thank you so much for your efforts in raising awareness about Raynaud’s…it’s great to have a site like yours to go to when I need advice and tips : ) by S. S. (Facebook Fan)
…and the Raynaud’s Association has been helpful to me and my fellow scleroderma patients. Thank you! by D.D. (Facebook Fan)
I’m so glad I joined this site for your informative educational posts helping me to understand what my children feel. by L. J. (Facebook Fan)
Welcome to the Raynaud's Association
- If your fingertips, toes or any other extremity become painful when exposed to cold temperatures, you might be suffering from Raynaud's phenomenon.
- If holding an iced drink - or putting your hands in the freezer - causes your fingers to turn blue (or white), you could be one of an estimated 28 million people in the US who have Raynaud's phenomenon.
- If air conditioning often triggers your fingers or toes to hurt, you might be experiencing a Raynaud's spasm.
The Raynaud's Association is here to help. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures.
What Is Raynaud's
Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. The disease causes an interruption of blood flow to the fingers, toes, nose, and/or ears when a spasm occurs in the blood vessels of these areas. Spasms are caused by exposure to cold or emotional stress. Typically, the affected area turns white, then blue, then bright red over the course of the attack. There may be associated tingling, swelling, or painful throbbing. The attacks may last from minutes to hours. In severe cases, the area may develop ulcerations and infections, which can lead to gangrene.
Raynaud’s can occur as a “primary” disease; that is, with no associated disorder. It can also occur as a “secondary” condition related to other diseases, such as scleroderma, lupus, and rheumatoid arthritis.
Approximately 5-10 percent of all Americans suffer from Raynaud’s, but only one out of five sufferers seeks treatment. Both men and women suffer from Raynaud’s, but women are nine times more likely to be affected. Some researchers estimate as many as 20% of all women in their childbearing years have Raynaud’s.
Although it’s been over 100 years since Raynaud’s was recognized, little is still known about the condition, its cause, or its cure. The Raynaud’s Association seeks to raise awareness and understanding of this perplexing phenomenon.
In The News…
By Ronni Shulman Vice Chair Raynaud’s Association Looking for a fundraising idea to raise awareness of Raynaud’s in your own community? “Lunch in Your Gloves” might be the ideal vehicle. The simple concept is relatively easy for anyone to execute. Here in Venice, FL, we invited friends, neighbors and the community at large to attend […]
It’s not easy finding good products for Raynaud’s sufferers this time of year, but fortunately we had some discoveries from fellow Frosties: FrostGuard® Windshield and Wiper Cover – Earlier this year our blog featured a winter beach towel tip found in the press as a homemade strategy for avoiding frozen fingers when cleaning windshields in the winter. Colleen in Pennsylvania […]
Samm (Ohio) was frustrated about her attacks, unsure of how and when the next one would be triggered. So she started a journal documenting her attacks and began to identify patterns, like leaving the warmth of her bed or a warm shower for a cold bathroom, or not wearing gloves for certain activities. Solutions included a space heater […]
When you think about Raynaud’s attacks in the extremities, you don’t necessarily think about breasts, but we continue to hear from Raynaud’s sufferers who are having problems with breastfeeding. We’ve posted information in the past on the subject, but recently found two more articles and wanted to bring them to the attention of fellow Frosties […]
It’s summertime, and Raynaud’s sufferers should be in Paradise, but instead of welcoming the warm temperatures, shedding layers and finally being free from winter shivers, alas air conditioning is in high season, and once again our extremities turn icy blue. While Frosties may have believed for a good part of their cold lives that it’s only […]
We found this video on Twitter of Nicole Edwards and the Joy Seekers. It’s more than a great blues performance – listen to the words, they are very powerful!
This infographic and the accompanying content provides some useful information to lupus sufferers and those looking to learn more about the symptoms of the disorder.