Our Sponsor at Heat Holders® has expanded their product line to much more than the basic thermal socks we feature in our Marketplace section. To help introduce their full line of products to Raynaud’s sufferers, they are offering to give away one of each of the following products to lucky Frosties: Heat Holders® Original Socks – Keep […]
Has a great facebook site with lots of information for Raynaud’s sufferers. Thank You Raynaud’s Association Inc! by G.K. (Facebook Fan)
Thank you for the info! First time I have been here, and it’s nice to have the ‘connection’ with others in the world! by J.F. (NY)
I’m very grateful for your Facebook page as I feel like I’m not alone as I have never met anyone else with Raynaud’s. by N.J. (Africa)
I am glad I have found this website. I have been searching the internet forever for solid information. Thank you for creating it. by C.B. (TN)
I’m glad to find this page and this group for more ideas and for support. Thanks for being here! by M.F. (Facebook Fan)
I’m grateful for all the info you provide!! by J. S. (MA)
It helps to have someone listen to our stories and makes us feel that we are not alone. by S.P. (IN)
I have Raynaud’s and it’s a great help to have this resource. by S. (Facebook Fan)
I just found this site and I’m so happy! I’ve had Raynauds for years but somehow never thought that there would a community such as this around it. That’s so great! 🙂 Thanks for being there… by S. G. (Facebook Fan)
Thank you for allowing me to join this group…I am so miserable right now. It somehow makes me feel a little better to know someone else understands. by L.R. (Facebook Fan)
Welcome to the Raynaud's Association
- If your fingertips, toes or any other extremity become painful when exposed to cold temperatures, you might be suffering from Raynaud's phenomenon.
- If holding an iced drink - or putting your hands in the freezer - causes your fingers to turn blue (or white), you could be one of an estimated 28 million people in the US who have Raynaud's phenomenon.
- If air conditioning often triggers your fingers or toes to hurt, you might be experiencing a Raynaud's spasm.
The Raynaud's Association is here to help. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures.
What Is Raynaud's
Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. The disease causes an interruption of blood flow to the fingers, toes, nose, and/or ears when a spasm occurs in the blood vessels of these areas. Spasms are caused by exposure to cold or emotional stress. Typically, the affected area turns white, then blue, then bright red over the course of the attack. There may be associated tingling, swelling, or painful throbbing. The attacks may last from minutes to hours. In severe cases, the area may develop ulcerations and infections, which can lead to gangrene.
Raynaud’s can occur as a “primary” disease; that is, with no associated disorder. It can also occur as a “secondary” condition related to other diseases, such as scleroderma, lupus, and rheumatoid arthritis.
Approximately 5-10 percent of all Americans suffer from Raynaud’s, but only one out of ten sufferers seeks treatment. Both men and women suffer from Raynaud’s, but women are nine times more likely to be affected. Some researchers estimate as many as 20% of all women in their childbearing years have Raynaud’s.
Although it’s been over 100 years since Raynaud’s was recognized, little is still known about the condition, its cause, or its cure. The Raynaud’s Association seeks to raise awareness and understanding of this perplexing phenomenon.
In The News…
We found a blog called Girl on the River written by Patricia Carswell, a freelance journalist whose work is focused on health, fitness, lifestyle and travel. Patricia has several physical challenges that would put the odds of taking up rowing against her – she’s petite in height (5’3″), and suffers from myalgic encephalopathy and chronic fatigue syndrome, causing debilitating fatigue, […]
We were surprised to find an article titled “My Raynaud’s Disease Means I Have to Wear Gloves All Year Round” on Racked, Vox’s online magazine on style and shopping. It’s an essay written by Jennifer Billock, a fellow Frostie, who shares her pain, along with her shopping and wardrobe challenges living with Raynaud’s. It’s well-written, and surely fellow […]
NHS Inform is Scotland’s national health information service with a mission to provide accurate and relevant information for making informed health decisions. In addition to information about medical conditions and related news and events, the service offers interactive self-help guides and a National Services Directory containing hundreds of support groups and thousands of NHS services in Scotland. Their […]
We recently introduced a new product line in our Marketplace section: Öjbro Swedish Gloves and Mittens – beautiful, colorful designs made of 100% merino wool, reinforced with four layers of insulation that will keep you warm and toasty! Sweater Chalet, our Sponsor who represents Öjbro in the U.S., wants Raynaud’s sufferers to get to know the brand […]
For years we’ve lamented the lack of fashionable choices for Raynaud’s sufferers who want warm fingers in the dead of winter. Most options force us to wear thick, stiff bulky gloves and mittens that look like they were made for ski bunnies. This year we’ve discovered new options that offer Frosties stylish gloves and mittens […]
What a surprise to see a full feature article in the New York Times this past week on the Blue-Footed Booby, our organizations’s mascot (we named him Shivers!). The article covers a lot of information we hadn’t seen before about these cute seabirds with webbed teal blue feet, and we wanted to share these new […]
Editor’s note: Herbal remedies and wellness techniques are not clinically proven to successfully alleviate Raynaud’s symptoms. Please speak with your doctor before trying any herbal treatment strategies, as they can interact with medications.