Thank God I came to know what is my problem.  You have an excellent page. by M.N. (Facebook Fan)
Thank you for all that you do!! by D. R. (Facebook Fan)
I have enjoyed belonging to the group (the Forum) and participating in it. Thanks for a wonderful site. by L.D. (GA)
Thank you for doing the work you do and for providing the info you provide. by J.M. (AZ)

Thank you for helping me understand why I am so messed up!  I am so grateful to know I am not alone!

by L.O. (WI)

I am so happy I found this page!!!!!  Just changes my life…Thank you so much for having this page!!!  It’s great to know there’s people who understand this struggle. by T.F. (Facebook Fan)
Glad I found this page.  I live in the UK…My hubby and I are glad there is an Association out there where we can get information from. by J.H. (Facebook Fan)
Glad to find this page.  Newly diagnosed…any ideas or experience would be so welcomed at this point. by H.G. (Facebook Fan)
I find your info invaluable.  In fact I’m seeing my doc tomorrow based on the details you provided… by M. U. (Facebook Fan)
Stressing so ready to get diagnosed and onto treatment.  Thanks for this site! by A.T. (Facebook Fan)

Welcome to the Raynaud's Association

  • If your fingertips, toes or any other extremity become painful when exposed to cold temperatures, you might be suffering from Raynaud's phenomenon.
  • If holding an iced drink - or putting your hands in the freezer - causes your fingers to turn blue (or white), you could be one of an estimated 28 million people in the US who have Raynaud's phenomenon.
  • If air conditioning often triggers your fingers or toes to hurt, you might be experiencing a Raynaud's spasm.

The Raynaud's Association is here to help. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures.

What Is Raynaud's

Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. The disease causes an interruption of blood flow to the fingers, toes, nose, and/or ears when a spasm occurs in the blood vessels of these areas. Spasms are caused by exposure to cold or emotional stress. Typically, the affected area turns white, then blue, then bright red over the course of the attack. There may be associated tingling, swelling, or painful throbbing. The attacks may last from minutes to hours. In severe cases, the area may develop ulcerations and infections, which can lead to gangrene.

Raynaud’s can occur as a “primary” disease; that is, with no associated disorder. It can also occur as a “secondary” condition related to other diseases, such as scleroderma, lupus, and rheumatoid arthritis.

Approximately 5-10 percent of all Americans suffer from Raynaud’s, but only one out of five sufferers seeks treatment. Both men and women suffer from Raynaud’s, but women are nine times more likely to be affected. Some researchers estimate as many as 20% of all women in their childbearing years have Raynaud’s.

Although it’s been over 100 years since Raynaud’s was recognized, little is still known about the condition, its cause, or its cure. The Raynaud’s Association seeks to raise awareness and understanding of this perplexing phenomenon.

In The News…

Glider Gloves

Touchscreen-friendly gloves serve an important role for Raynaud’s sufferers, since exposing our frosted paws outside to send or receive messages can result in painful attacks. We wanted to find a good solution for fellow Frosties and found one in Glider Gloves. My first reaction to the gloves was – a bit thick for a liner, […]

Introducing our New Mascot: Shivers!

The support for making this cute Blue-footed Booby the new “spokesbird” for the Raynaud’s Association has been incredible! Here’s our original post where we shared our discovery of this adorable creature with blue feet.  We’ve read that their deep blue color plays an important role in the mating game (video) for this breed in attracting […]

We Need a Warm Helping Hand

A woman grew up cold much of the time as a child.  She didn’t understand why she couldn’t wear the strappy little dresses or cute sandals worn by her friends without being in pain.  As she grew into her mid-thirties, suddenly the pain in her feet on cold days was unbearable.  She would go barefoot […]

How and Why I Ran 50 Miles for Raynaud’s Awareness

By Rachel Boehm You may have heard I dedicated my first 50-mile run, the JFK 50, to Raynaud’s awareness. Many of those who heard about this via the Raynaud’s Association’s Facebook page asked about my strategy for staying warm. Here’s what I did (for more tips on endurance events, check out my blog post geared […]

Raynaud’s Member Tips – Fall 2014

Catherine (Facebook Fan) suggests:  “I have been known to use my nose when my finger doesn’t register on a touch screen. :-)”  We’ve all been there, trying to punch numbers into the ATM and nothing happens.  It may look funny, but could be effective! Claire (Facebook Fan) shared the following idea:  “Tip for anyone  working in […]

Purlygirl Knits

Purlygirl knits was created in 2006 by Jill Wieder after a local retailer admired the hand-knit scarf she was wearing and asked her to knit a collection for his fall/winter season. With a background in art and design, Jill has a keen eye that really comes across in her one-of-a-kind colorful and fun hand warmers, […]

Patients With Scleroderma Wanted for Clinical Trial

We have been contacted by a pharmaceutical company to help recruit patients for a clinical trial being conducted in patients with Raynaud’s phenomenon secondary to scleroderma/systemic sclerosis. The study medication is a topical cream that will be applied to the hand. Participation will require travel to a clinical site.   The first site is in Encinitas, […]

Hot Products Getting Good Press

This past week two major news groups published articles promoting hot products any Raynaud’s sufferer would love! The Huffington Post article is titled “21 Ridiculously Hot Products That Every Ridiculously Cold Person Will Want” – that’s us!  While it includes some products we’ve featured in past newsletters, like the hand-warming Toasty Mug and heated toilets, […]