I recently found your website and love the Cold Cuts Newsletter! by P.M. (OK)
I just found this Facebook page today and think it will be of great help. by K.M. (Facebook Fan)
Great website. Thanks for the helpful information and products! by C.S. (PA)
Love reading the posts on here, such great advice on how to stay warm. by C.U. (WA)
I am so excited that I came across this page. I look forward to discussions and the insight I will gain on this site. by N.E. (Facebook Fan)
I’m glad I found this on facebook, at least I could get some info here… by S.F. (Facebook Fan)
The Raynaud’s Association was my sanity saver!…It helped me and my doctor diagnose my Raynaud’s and continues to be my authoritative resource! The support I receive has been absolutely amazing! by A. M. (Facebook Fan)
Thank you so much for such an informative site. I really feel you have helped me not only understand the disease, but how to deal with it effectively. by L.W. (MD)
The site is great! by B.F. (IA)
Thank you. Your site has been so helpful for my 13-year old daughter – so much easier when she realizes she is not alone. by K.N. (WI)
Welcome to the Raynaud's Association
- If your fingertips, toes or any other extremity become painful when exposed to cold temperatures, you might be suffering from Raynaud's phenomenon.
- If holding an iced drink - or putting your hands in the freezer - causes your fingers to turn blue (or white), you could be one of an estimated 28 million people in the US who have Raynaud's phenomenon.
- If air conditioning often triggers your fingers or toes to hurt, you might be experiencing a Raynaud's spasm.
The Raynaud's Association is here to help. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures.
What Is Raynaud's
Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. The disease causes an interruption of blood flow to the fingers, toes, nose, and/or ears when a spasm occurs in the blood vessels of these areas. Spasms are caused by exposure to cold or emotional stress. Typically, the affected area turns white, then blue, then bright red over the course of the attack. There may be associated tingling, swelling, or painful throbbing. The attacks may last from minutes to hours. In severe cases, the area may develop ulcerations and infections, which can lead to gangrene.
Raynaud’s can occur as a “primary” disease; that is, with no associated disorder. It can also occur as a “secondary” condition related to other diseases, such as scleroderma, lupus, and rheumatoid arthritis.
Approximately 5-10 percent of all Americans suffer from Raynaud’s, but only one out of five sufferers seeks treatment. Both men and women suffer from Raynaud’s, but women are nine times more likely to be affected. Some researchers estimate as many as 20% of all women in their childbearing years have Raynaud’s.
Although it’s been over 100 years since Raynaud’s was recognized, little is still known about the condition, its cause, or its cure. The Raynaud’s Association seeks to raise awareness and understanding of this perplexing phenomenon.
In The News…
The University of Oklahoma Health Science Center Department of Obstetrics and Gynecology is recruiting Raynaud’s sufferers to participate in a survey regarding their experiences during pregnancy. The objective of the research is to provide information on the prevalence of pregnancy complications in patients with Raynaud’s phenomenon. To qualify, participants should meet the following criteria: Female […]
In our Spring 2014 issue of Cold Cuts, we introduced this cute Blue-footed Booby (an Eastern Pacific seabird) as a possible mascot for the Raynaud’s Association. (Here’s the original post in case you missed it.) Turns out he generated a lot of positive feedback from fellow Frosties. Most loved the idea of making him an […]
It’s not uncommon that we’ll hear from a fellow Frostie that their doctor prescribed one of the ED drugs (e.g. Cialis, Viagra) for their condition, and the insurance company denied the claim. It’s tough enough that there are no drugs on the market yet specifically FDA-approved for the treatment of Raynaud’s, but when trying to […]
For Frosties, it sounds like cruel punishment: Take a bucket of ice water, dump it over your head, record it and post the video on social media. All for raising awareness and funds for charities. Those who participate, then challenge others who either have to take the icy plunge, or donate a sizeable amount to […]
The Internet of Things is all the rage, and health and fitness applications are at the top of the list for many of the newer devices on the market: They keep track of your activity, monitor your heart rate, and more… So in a perfect world (one that was always warm and stress free!), what […]
We’re excited to announce two new Sponsors: Warm Skin® and Heat Holders® – both great products for Raynaud’s sufferers. We’re also sharing an additional discovery that may be of interest to fellow Frosties. Warm Skin® – This cream is different from others we’ve featured, in that it doesn’t offer immediate warmth or relief. Instead, it’s […]
Carole (Canada) posted on Facebook about Thermohair socks (www.thermohair.ca). These are mohair socks made by a small company in Ontario. She says she’s been using them to warm her cold feet for 10 years and they really help! Quite pricey ($35-$35 Cdn), but worth it. (Editors note: For Frosties with wool issues, give Heat Holders® socks […]
We found an excellent article on Raynaud’s published by Molly’s Fund, a non-profit organization dedicated to educating the public and medical community about Lupus. It’s very comprehensive, including symptoms, causes, treatments, and prevention strategies. For anyone looking for a good overview on Raynaud’s, this is a good resource that’s a quick read: Molly’s Fund Article