Rare Disease Day was established in 2008 to raise awareness about rare diseases, which together impact millions of people worldwide. While the Raynaud’s population is too large to be considered in this category, many among us with secondary Raynaud’s suffer from these rare medical conditions.
In recognition of Rare Disease Day, the FDA has launched a new set of web pages with personal stories of individuals with rare diseases, giving these patients a greater voice: http://is.gd/KQfoMw. They include links about the offices and programs within the FDA that help address the unmet medical needs of patients with rare diseases.
Let’s hope that this annual attention and government assistance offered to support medical research and product development for orphan diseases brings better treatment and cures to the cause!