February 28, 2013 is Rare Disease Day – an annual event where hundreds of patient organizations from around the world are showing their support for rare causes with awareness-building activities and events.
While Raynaud’s is far too widespread to be considered a rare disease, Raynaud’s can be a secondary disease to a number of rare primary ailments, such as Lupus, Scleroderma, and Sjogren’s Disease. So we want to show our support for fellow Frosties with these serious and rare autoimmune conditions and hope our members will, too.
Click here for a list of ways you can get involved. For more information on Rare Disease Day go to http://www.rarediseaseday.org/.
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What People are Saying About Us…
So happy that I found you, as I am newly-diagnosed with Raynaud’s and I need help! Thank you! L.C. (SD)
So Happy I Found You - Newly-Diagnosed and Need Help!
Just discovered your organization…looking forward to learning more as my feet move from annoying to painful at times. Thanks so much for being there. by C.G. (WA)
Thanks So Much for Being There
So helpful for recommendations of survival tips, product reviews & discounts. Humorous posts to get you through challenging days. This is the only site that speaks to Raynaud’s. by L.C.
Only Site That Speaks to Raynaud's
I thank God there’s a web site like this. by C. (Blog Post)
Thank God for Web Site
I am so thankful and happy that I have found the Raynaud’s Association, and I have already learned so much just by reading through the site. Thank you so much for your time and dedication to the awareness of Raynaud’s. by S. C. (AL)
So Thankful That I Found the Raynaud's Association
Thank you so much for such an informative site. I really feel you have helped me not only understand the disease, but how to deal with it effectively. by L.W. (MD)
Thank You So Much
I am ecstatic that I found this association! I did my usual engine search of Raynaud’s and came across the association for the first time and shared the information with my colleague as well. by H.R. (VA)
Ecstatic I Found This Association!
Thank you so much for your suggestion…Much appreciated and now not feeling like such an oddity! Great that someone knows what I am talking about. by S.M. (UK)
Great That Someone Knows What I am Talking About
Thank you! The Association was THE resource after I was diagnosed!…enjoy your newsletters…always recommend your site to fellow sufferers and curious friends. by A. M. (Facebook Fan)
THE Resource After I was Diagnosed!
It’s been very helpful to find things that can help. It’s a nasty thing to contend with and definitely comforting to know there are others who share the struggle. I am so glad to be here. I.A. (Facebook)
Comforting Knowing Others Share the Struggle - So Glad to Be Here
