Raynaud’s Syndrome

Member Tip: Kinesio Tape

Janet in NY is having success keeping her fingers warm while typing with a special tape developed to help heal muscle and joint injuries for athletes.  Here's her story: "I am a technology consultant and so am at the keyboard typing most of the day. My right and left index and middle fingers are particularly

2016-06-01T18:06:33-04:00October 6th, 2011|In The News, Stories|3 Comments

Clinical Trials For BOTOX® Study

Southern Illinois University School of Medicine is currently recruiting Raynaud’s patients to participate in a clinical trial of BOTOX® therapy for chronic pain and ulcerations.  This is a 28-day randomized, double-blind, placebo-controlled clinical trial requiring travel to the clinic in Springfield, Illinois. 

2012-11-24T14:19:37-05:00September 27th, 2011|In The News|3 Comments

Summer 2011 Newsletter Is Out

It may be the first few days of Fall, but we'd all love to extend the Summer season.  We'd also like to have published our Summer issue of Cold Cuts sooner, but hope it's worth waiting for.   This is our first year with quarterly editions, so please bear with us as we work to double

2011-09-26T22:01:48-04:00September 26th, 2011|In The News, Site Information|Comments Off on Summer 2011 Newsletter Is Out

Autoimmunity Is From Venus

Why do women have more problems like Sjögren’s syndrome and lupus? Venus Williams dropped out of the U.S. Open tennis tournament, citing a recent diagnosis of Sjögren’s syndrome, an autoimmune disease known to cause dryness of the mouth and eyes as well as fatigue and joint pain. Like most other autoimmune diseases, Sjögren’s affects many

2011-09-13T19:45:17-04:00September 2nd, 2011|In The News|3 Comments

Raynaud’s Daydream Comes True

So happy to find you… A few days ago, I had a daydream that there was a support group for people like me (which I just discovered has an actual name). I was feeling so alone, so sad and so frustrated with the pain I feel from temperatures I experience as cold – but no

2011-10-26T23:07:50-04:00August 26th, 2011|Stories|3 Comments
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