It’s an essay written by Jennifer Billock, a fellow Frostie, who shares her pain, along with her shopping and wardrobe challenges living with Raynaud’s.
It’s well-written, and surely fellow Frosties will identify with several of her references, such as:
Summer issues with air conditioning and beach breezes
How to look classy when you need to dress in so many layers
Never being able to wear sleeveless tank tops (without cover) or shorts
The complicated process of getting dressed in the morning given the day’s planned activities and multiple environments
Raynaud’s can be a very individualized experience, and we hear sufferers describe their symptoms in different ways. Jennifer listed some issues that aren’t typical of what we hear, but can certainly understand, such as not being able to tolerate stores that are too warm because she’s so used to being so chilled. Definitely not a complaint we hear often!
She also references a side effect of hearing loss associated with the calcium channel blocker drug she was prescribed. That’s not a common side effect we’re familiar with, but everyone’s body is different. There are, however, several different drugs in the category, so if the one you’re on isn’t working after giving it time and taking it up to the level you can tolerate, or you’re experiencing uncomfortable side effects, ask your doctor to try another one until you find one that works best for your body.
Thank you for helping me understand why I am so messed up! I am so grateful to know I am not alone!
by L.O. (WI)
So Grateful to Know I'm Not Alone!
I am thankful to have the Raynaud’s Association as a very important source of information, without you guys many of us would never know of the useful tips and information you share!
by J. W. (Canada)
Learned So Much Just By Reading Through the Site
Love them for keeping us updated on products, and sharing stories of other people who live with Raynaud’s.
Love Them for Keeping Us Updated and Sharing Stories
So thankful for this page (Facebook) full of info and great products.
by A.M. (TX)
I went to your website today for the first time and was very impressed…I’m anxious to learn how to control the symptoms and am anxious to receive your newsletter.
by B.C. (NJ)
Was Very Impressed
…relieved to know what it is…comforted to know there are other folks that have this condition…nice to have a place to share what works for us.
by J.J. (VA)
A Place to Share What Works for Us
This site is truly a blessing…you’ve helped me a lot!
This Site is Truly a Blessing!
Thanks so much for all the information. Raynauds.org has been a terrific resource.
The Forum has been so helpful…Thank you for all who are involved. I am grateful.
by D.C. (CA)
The Forum Has Been So Helpful
I had no idea there was a name for what I’d been experiencing…found the Raynaud’s Association. THERE I found useful information & was connected with a network of support. I’ve learned so much & am so grateful to have this resource.
by S. F. (Facebook Fan)