For most people living with Raynaud’s, they have the primary form which can often be addressed with lifestyle issues. But for those with more severe symptoms, particularly those with the secondary form, they are more at risk for developing painful ulcers and potentially experiencing permanent damage to skin tissue and blood vessels.
In severe cases, doctors usually start with drugs in the category of calcium channel blockers or topical creams and gels containing nitroglycerin or nifedipine (a calcium channel blocker). If more ammunition is required, they may prescribe drugs in the phosphodiesterase inhibitors category – these are better known as Viagra and Cialis used more commonly by men for other purposes, but they are proving effective for severe Raynaud’s symptoms (getting insurance coverage for female Frosties is a separate issue…).
When the above drugs aren’t enough, what are the treatment options for severe Raynaud’s sufferers? The article lists the following:
Sympathetic Nerve Block Injections
Botox® Injections (still experimental and not clinically proven)
Spinal Cord Stimulation (a new one we haven’t heard before)
Some of the above options are painful and not permanent, but for those in danger of losing a digit, they warrant serious consideration.
One option not mentioned in the article is Iloprost injections. The injections are delivered over a series of days under hospital supervision, and have proven effective in opening the blood vessels to save digits from extreme Raynaud’s symptoms potentially leading to gangrene.
The above treatment options for severe Raynaud’s won’t be needed for most sufferers, but it’s good to know there are alternatives for those who require more than the standard medications.
Keep up the great work with the newsletter, always a pleasure to read.
By J.C. (Canada)
Great Work with the Newsletter
I want to learn everything I can about this disease and to deal with it…Thank you for this website.
by M.R-B. (VA)
Thank You for This WebsiteG. Grant
Glad I found you! I live in Minnesota and I am really glad you test products that might help me. I’ll keep an eye on your web site this winter!
by C.G. (MN)
Glad I Found You!
Found the information on products to help me cope with this disease very informative and helpful. The product reviews are exactly what I was looking for.
Very Informative and Helpful
I’m thrilled I found your website – glad to know there are others just like me out there dealing with ‘cold’ fingers. Can’t wait to be included on your mailing list and newsletter. Thanks!
by S.S. (PA)
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I am a huge fan of (the RA) site. They continue to keep me up to date with research, potential methods to help reduce the frequency of a flare up, as well as new gadgets that can help! It is definitely my “go to” for the latest and greatest for trust worthy information…I highly recommend this site!!!
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Definitely My "Go To" for the Latest and Greatest
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Thanks For All of Your Championing for Patients
I was diagnosed with Raynaud’s in 2013. This website is very much appreciated. My doctor couldn’t really give me any tips on daily living, so your blog is invaluable.
Your Blog Is Invaluable
After years of issues, this group has been essential not only for providing helpful information, but also for support from others who suffer from Raynaud’s.
Helpful Information and Support
I am happy to finally come across a site like this…I really hope to learn more about this through other fellow members…and to try to help them with my experience.
by H.R. (NY)