For most people living with Raynaud’s, they have the primary form which can often be addressed with lifestyle issues. But for those with more severe symptoms, particularly those with the secondary form, they are more at risk for developing painful ulcers and potentially experiencing permanent damage to skin tissue and blood vessels.
In severe cases, doctors usually start with drugs in the category of calcium channel blockers or topical creams and gels containing nitroglycerin or nifedipine (a calcium channel blocker). If more ammunition is required, they may prescribe drugs in the phosphodiesterase inhibitors category – these are better known as Viagra and Cialis used more commonly by men for other purposes, but they are proving effective for severe Raynaud’s symptoms (getting insurance coverage for female Frosties is a separate issue…).
When the above drugs aren’t enough, what are the treatment options for severe Raynaud’s sufferers? The article lists the following:
Sympathetic Nerve Block Injections
Botox® Injections (still experimental and not clinically proven)
Spinal Cord Stimulation (a new one we haven’t heard before)
Some of the above options are painful and not permanent, but for those in danger of losing a digit, they warrant serious consideration.
One option not mentioned in the article is Iloprost injections. The injections are delivered over a series of days under hospital supervision, and have proven effective in opening the blood vessels to save digits from extreme Raynaud’s symptoms potentially leading to gangrene.
The above treatment options for severe Raynaud’s won’t be needed for most sufferers, but it’s good to know there are alternatives for those who require more than the standard medications.
I so enjoy your great newsletter and thank you for it…for your valuable contribution to our lives!!
By A.W. (LA)
Enjoy Your Great Newsletter
Just learned I have Raynaud’s…Glad to have found this org!
by N.H. (Canada)
Glad to Have Found This Org!
As a fairly new Raynaud’s sufferer, it’s great to see this organization spreading the word and providing support.
Great to See This Organization Spreading the Word
The tips, the different ways of treating it, knowing the experiences & taking the good advice of other people who suffer from (Raynaud’s) and help me to deal with this…I am constantly checking the page, to see the posts to take new ideas that will be useful for me.
by M.H. (Mexico)
Constantly Checking for New Ideas That Will Help Me
Great to find you here! Trying to thaw out for over an hour…
by S.M. (Facebook Fan)
Great to Find You Here!
Thanks for your website, my first visit has really helped!!
by R.L. (OH)
Thanks for Your Website
I found the Raynaud’s Association online and joined right away. Thank you for putting so much helpful info on the web.
by P.K. (MO)
So Much Helpful Info
This organization helped me with ways to explain what Raynaud’s is and how it affects me and my family.
Helped Me Explain Raynaud's
Kudos. Great web site. Keep up the good work.
by E. C. N. (NY)
I am so happy I found this page!!!!! Just changes my life…Thank you so much for having this page!!! It’s great to know there’s people who understand this struggle.
by T.F. (Facebook Fan)