Stories

A Frostie Tells Her Story of Raynaud’s Discovery

If you're on this site, you've either been formally diagnosed with Raynaud's, or are familiar enough with the disorder to have determined you or a friend or loved one likely suffers from this widespread but little known medical condition. Most of us have been through the experience of Raynaud's discovery - that moment when we

2022-07-23T19:40:10-04:00September 1st, 2014|Stories|Comments Off on A Frostie Tells Her Story of Raynaud’s Discovery

Don’t Give Up on Denied Health Insurance Claims

It's not uncommon that we'll hear from a fellow Frostie that their doctor prescribed one of the ED drugs (e.g. Cialis, Viagra) for their condition, and the insurance company denied the claim. It's tough enough that there are no drugs on the market yet specifically FDA-approved for the treatment of Raynaud's, but when trying to

2014-08-11T19:08:56-04:00August 11th, 2014|In The News, Stories|Comments Off on Don’t Give Up on Denied Health Insurance Claims

Sister Accused of Faking Raynaud’s Attacks

We've probably all experienced situations when others don't understand the pain associated with triggering a Raynaud's attack.  But we'd like to believe that our families will be supportive. Recently we saw a question to a physician on About.com where a brother accuses his sister of lying about not being able to walk down the freezer aisle

2014-06-05T19:37:56-04:00May 10th, 2014|Stories|Comments Off on Sister Accused of Faking Raynaud’s Attacks

Member Turns Frustration into Brave Effort and Support for Raynaud’s

Rachel Boehm, like many of us when first diagnosed, considered Raynaud's a minor inconvenience.  But when the frequency and intensity of her attacks increased, she feared she was developing a more serious autoimmune disorder.  She was relieved to learn her Raynaud's was primary (not secondary to another condition),  but as she learned more about Raynaud's in

2014-06-05T19:53:36-04:00April 28th, 2014|Hot Products, In The News, Stories|Comments Off on Member Turns Frustration into Brave Effort and Support for Raynaud’s

Discovery of Raynaud’s Web Site Brings Some Relief to Farming Frostie

We often hear from fellow sufferers who share their stories with us.  This one is from Jacki in Virginia, and we could truly empathize with the issues she faced dealing with Raynaud's symptoms while working on the farm! "In the winter of 2011-12, we had a bout of strong winds and temperatures in the 20’s that lasted

2014-03-08T16:58:06-05:00February 20th, 2014|Stories|Comments Off on Discovery of Raynaud’s Web Site Brings Some Relief to Farming Frostie
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