Stories

Alison Levine – More Inspirational Stories

Nearly a year ago, we shared the inspirational story of Alison Levine, diagnosed with Wolff-Parkinson-White Syndrome at age 17 and Raynaud’s in her early 20’s. Despite these disorders, she become team captain of the first American Women’s Everest Expedition and one of only 30 people in the world to have successfully climbed the highest peaks

2021-02-02T11:19:33-05:00January 14th, 2012|In The News, Stories|Comments Off on Alison Levine – More Inspirational Stories

A Raynaud’s Student’s Test Nightmare

We just read where a high school in Wichita Falls scheduled their three-hour PSAT's in the town's local colisium hockey arena.  All that stood between the shivering students and the ice was a thin flooring made of lightweight plastic.  The cold was bad enough, but it was further complicated by the wet condensation covering the

2011-10-21T16:40:13-04:00October 21st, 2011|In The News, Stories|Comments Off on A Raynaud’s Student’s Test Nightmare

Member Tip: Kinesio Tape

Janet in NY is having success keeping her fingers warm while typing with a special tape developed to help heal muscle and joint injuries for athletes.  Here's her story: "I am a technology consultant and so am at the keyboard typing most of the day. My right and left index and middle fingers are particularly

2016-06-01T18:06:33-04:00October 6th, 2011|In The News, Stories|3 Comments

Raynaud’s Daydream Comes True

So happy to find you… A few days ago, I had a daydream that there was a support group for people like me (which I just discovered has an actual name). I was feeling so alone, so sad and so frustrated with the pain I feel from temperatures I experience as cold – but no

2011-10-26T23:07:50-04:00August 26th, 2011|Stories|3 Comments

Dress Codes in the Workplace and Raynaud’s

Just found this quote in a legal newsbrief about dress codes in the workplace as they relate to Raynaud’s.  We had a member a couple of years ago who was let go from a theatre as a volunteer for this very reason – wearing a sweater!

2011-08-02T21:00:57-04:00August 2nd, 2011|In The News, Stories|Comments Off on Dress Codes in the Workplace and Raynaud’s
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