Stories

Raynaud’s Daydream Comes True

So happy to find you… A few days ago, I had a daydream that there was a support group for people like me (which I just discovered has an actual name). I was feeling so alone, so sad and so frustrated with the pain I feel from temperatures I experience as cold – but no

2011-10-26T23:07:50-04:00August 26th, 2011|Stories|3 Comments

Dress Codes in the Workplace and Raynaud’s

Just found this quote in a legal newsbrief about dress codes in the workplace as they relate to Raynaud’s.  We had a member a couple of years ago who was let go from a theatre as a volunteer for this very reason – wearing a sweater!

2011-08-02T21:00:57-04:00August 2nd, 2011|In The News, Stories|Comments Off on Dress Codes in the Workplace and Raynaud’s

A Parent’s Story & Creative Solutions

After knowing for years that something was wrong but not having enough to go on to prove it, my pediatrician suspected that my then 5 year old had Juvenile Arthritis.   It took a long time to diagnose her- almost a year! Eventually she was also diagnosed with scleroderma and mixed connective tissue disease.  Her new

2011-06-04T14:17:14-04:00May 17th, 2011|Stories|Comments Off on A Parent’s Story & Creative Solutions
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