Raynaud’s

How Are We Doing?

Many of you have given us direct feedback on how we're doing in helping to support the Raynaud's community, and we've published your testimonials here on our web site at https://www.raynauds.org/index.php/about-us/member-testimonials/. Now there's a place to formally feature product reviews for nonprofit associations on Guidestar - a leading resource for information about non-profit organizations. Guidestar offers

2011-09-12T09:14:55-04:00June 1st, 2011|In The News|Comments Off on How Are We Doing?

Raynaud’s Sufferers Wanted for Research Study

Survey is now closed.  We had an awesome response - thanks for your support! Orion Pharma, a pharmaceutical company based in Finland, would like to gather information about Raynaud’s from people suffering from this condition.  The data gathered in the research will be used by Orion to help develop a new class of medication for Raynaud's patients.

2011-07-19T18:53:54-04:00May 19th, 2011|In The News|5 Comments

A Parent’s Story & Creative Solutions

After knowing for years that something was wrong but not having enough to go on to prove it, my pediatrician suspected that my then 5 year old had Juvenile Arthritis.   It took a long time to diagnose her- almost a year! Eventually she was also diagnosed with scleroderma and mixed connective tissue disease.  Her new

2011-06-04T14:17:14-04:00May 17th, 2011|Stories|Comments Off on A Parent’s Story & Creative Solutions

Bubble Wrap® Inspires Raynaud’s Product Idea

Bubble Wrap® sponsors an annual contest that challenges students nationwide in grades six through eight to demonstrate their creativity and ingenuity by designing an invention that incorporates the use of Bubble Wrap® brand cushioning.  The children compete to win $25,000 in prizes and savings bonds. One of this year's finalists invented a way to use Bubble Wrap® to

2011-04-23T09:12:24-04:00April 23rd, 2011|In The News|1 Comment
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